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News from Aotearoa/New Zealand and the Pacific Islands

Discussion in 'Regional news' started by Hutan, May 19, 2018.

  1. RoseE

    RoseE Senior Member (Voting Rights)

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    Apparently there will be an interview on Radio NZ's Our Changing World, this Thursday with Prof Warren Tate from Otago and some of those with ME/CFS in the Southland Support Group.
    Changing World is on at 9:35 PM on Thursday evening 17 June
    A shorter version will be available on Wednesday at 3:35 PM. (I am not sure if that is today or next week).

    https://www.rnz.co.nz/national/programmes/ourchangingworld
     
    Ravn, Trish and Andy like this.
  2. Hutan

    Hutan Moderator Staff Member

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    Here's a direct link to the radio piece. It's good - the angle is that people are thinking that Long Covid is essentially the same as ME/CFS, and Warren's lab is working to see if they can find the same epigenetic markers and proteins in a handful of Long Covid people as they found in some ME/CFS people last year. Clare Concannon is the journalist involved. Nice to hear from Anna Blair who is in Warren's lab and has ME/CFS.

    https://www.rnz.co.nz/national/prog...9782/our-changing-world-me-cfs-and-long-covid
     
    cfsandmore, mango, Ravn and 10 others like this.
  3. RoseE

    RoseE Senior Member (Voting Rights)

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    Ravn, Trish, Andy and 1 other person like this.
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    don't know if this has been posted
    on 21/06/2021
    https://www.rnzcgp.org.nz/GPStaff/i...bsiteKey=d683b483-45d7-4e48-9daa-1a916120ba9c

    links to:
    https://www.thinkgp.com.au/education/mecfs-part-2

    Ensuring a patient-centred approach to care for people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
     
    oldtimer, Ravn, RoseE and 2 others like this.
  5. Ravn

    Ravn Senior Member (Voting Rights)

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    Nicely done programme. No breaking news or anything but I'm looking forward to the day when media representations of ME reach this level of accuracy and sensitivity as a matter of course (though RNZ in general is comparatively good on that count).

    Give it some traffic, podcast ratings, reviews, whatever, to show appreciation. The interviewer/producer is quite new to the job on that show. Want to encourage her (and RNZ) to do more good work on ME in the future.
     
  6. RoseE

    RoseE Senior Member (Voting Rights)

    Messages:
    340
    oldtimer, Ravn, Sean and 1 other person like this.
  7. RoseE

    RoseE Senior Member (Voting Rights)

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    New ten minute interview with Dr Ros Vallings on CFS and risks of covid vaccine. Includes introduction to CFS.
    https://www.rnz.co.nz/national/prog...nic-fatigue-syndrome-and-the-covid-19-vaccine
     
    oldtimer, Ravn, Woolie and 1 other person like this.
  8. RoseE

    RoseE Senior Member (Voting Rights)

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    The Science Media Centre (NZ) has published an expert reaction article (6th july) about Andreas Goebel et al study 'Passive transfer of fibromyalgia symptoms from patients to mice'.
    https://www.sciencemediacentre.co.n...may-not-be-only-in-the-brain-expert-reaction/

    Discussion in S4ME on the study here

    ex SMC NZ...
    Prof Tate was one of the 3 experts making comment. And all three mention Long Covid or ME/CFS in their response.
     
    oldtimer, Ravn, Trish and 6 others like this.
  9. rvallee

    rvallee Senior Member (Voting Rights)

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    Location:
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    Because this is outside of my basic understanding of biology: do we know how to reliably clear antibodies? How do they do that and is that something that can be standardized as a treatment? Or would it have to be personalized for every individual depending on which antibodies are found? With the caveat that they probably fluctuate and are hard to find unless you know what you're looking for.

    Related question: why wouldn't those antibodies be cleared? Do they naturally die or do they have to be cleared by an active process?
     
    alktipping and Ravn like this.
  10. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

    Messages:
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    Location:
    Australia
    The half life of most IgGs is between 7-21 days depending on subtype. While in principle, they can be excreted, most are broken down after being internalised by cells, for example pinocytosis by endothelial cells or receptor mediated internalisation. They can also be degraded by extracellular proteases, and this will increase the likelihood of endocytosis into cells.
     
  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
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    Location:
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    Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) - a complex disease that has come of age with the SARS-CoV-2 pandemic

    Seminar presented by Emeritus Professor Warren P Tate FRSNZ CNZM (Department of Biochemistry)

    Thursday, 29 July 2021
    Zoom details (free):
    https://www.otago.ac.nz/news/events/otago830543.html
     
    Last edited by a moderator: Jul 27, 2021
    oldtimer, Ravn, RoseE and 3 others like this.
  12. Subtropical Island

    Subtropical Island Senior Member (Voting Rights)

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    1,978
  13. Ravn

    Ravn Senior Member (Voting Rights)

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    Location:
    Aotearoa New Zealand
    A recording is now available:
    https://echo360.net.au/media/4fdfc7ac-e5d3-4e05-a1df-9241450ef343/public

    This was the description on the original webpage (see quote above):
     
    alktipping, oldtimer, Dolphin and 4 others like this.
  14. RoseE

    RoseE Senior Member (Voting Rights)

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    Campbell Murdoch, retired GP, is presenting at GPCME South (General Practice Conference and Medical Exhibition) in Christchurch on August 22nd. 12 noon. 20 minutes.
    http://www.gpcme.co.nz/south/index.php

    Dr Murdoch was a leading advocate for pwME during the 1980s here in NZ, during the 'Tapanui Flu' period.
    He wrote a book 'Chronic Fatigue Syndrome a Patient-centered Approach' in 2002.


    upload_2021-8-1_12-16-30.png
     
  15. RoseE

    RoseE Senior Member (Voting Rights)

    Messages:
    340
    Cathy Stephenson GP, is presenting at the RNZCGP GP21 conference on Saturday, 7th August, 11:40 am. Wellington, "From harm to help - promoting an evidence based shift in our understanding of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (30 mins)" - Concurrent 3e session.
    Dr Stephenson will be talking about her experience exploring the latest guidance and developing an article for NZ Doctor in 2020 on the topic.
    https://www.generalpractice.org.nz/programme

    Cathy Stephenson’s presentation has been posted in Resources for health professionals, From harm to help.


    M.E. Awareness NZ will be present at the conference at Exhibitors Stand 5. Thanks to the funding raised in December 2019 by Richard Medlicott GP when he participated in The Pioneer mountain bike race.
     
    Last edited by a moderator: Sep 2, 2021
  16. RoseE

    RoseE Senior Member (Voting Rights)

    Messages:
    340
    The Royal New Zealand College of General Practitioners (RNZCGP) General Practice Conference in Wellington started today, and the M.E. Awareness NZ stand is looking great.
    Lot's of conversations and useful connections being made.

    We have curated a great range of resources, including a reprint of the New Zealand Doctor article How to Treat: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

    We are grateful to be here at GP21 - and it's thanks to the 'Doc Pioneers for M.E.' fundraising campaign in December 2019. Thanks to GP Richard Medlicott for riding The Pioneer for us, and to the generous donors.
     

    Attached Files:

  17. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,522
    Location:
    Aotearoa New Zealand
    https://www.rnz.co.nz/programmes/the-detail
    A Radio New Zealand item on Long Covid (12 August) - 22 minutes.
    I just caught the end of it live, but it's here on podcast. There's some information about some research being done.
     
    alktipping, Starlight, Ravn and 3 others like this.
  18. RoseE

    RoseE Senior Member (Voting Rights)

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    340
    MECFS Canterbury has coordinated a series of events in Christchurch for Dr Lynette Hodges from Massey University later this month.
    Full Details on https://www.healthychristchurch.org...ions-on-exercise-and-chronic-fatigue-syndrome

    Exercise Physiologist Dr Lynette Hodges is presenting in Christchurch in August on her leading international research into the abnormal physiological response to exercise in Myalgic Encephalomyelitis (ME)/ Chronic Fatigue Syndrome (CFS).

    These are opportunities to get up to date with research findings about why people with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome have difficulty in completing exercise programmes and activities of daily living.

    Webinar for allied health professionals

    This webinar is organised by the Canterbury Initiative (Canterbury DHB) to support the recent updates to guidance for ME/CFS on Allied Healthways and Health Pathways.
    Seminar for health professionals and people with ME/ CFS and their whānau
    This seminar is hosted by MECFS Canterbury - everyone welcome.
    Research seminar for health, medical and research professionals
    Within the University of Otago, Christchurch campus, Research Seminar Series
    A recording of the presentation will available on the University of Otago website after the event ( https://www.otago.ac.nz/uoc-research-seminar ).

    Grand Rounds, Christchurch Hospital
    Dr Hodges has also been invited to present to Hospital Physicians and medical students.

    About presenter Dr Lynette Hodges
     
    alktipping, Starlight, Ravn and 5 others like this.
  19. Dolphin

    Dolphin Senior Member (Voting Rights)

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    4,987
    Any sign of this?
     
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  20. RoseE

    RoseE Senior Member (Voting Rights)

    Messages:
    340
    RECORDING NOW AVAILABLE:
    The recording of Dr Lynette Hodges' recent presentation in the Research Seminar Series for University of Otago, Christchurch campus, has been shared.
    Dr Hodges, an Exercise Physiologist and senior lecturer at Massey University, spoke about her research into the abnormal physiological response to exercise in ME/CFS on 26th August.

    Key messages included;
    • It is important to validate patient's symptoms
    • Graded exercise therapy has risks and can worsen symptoms for those with ME/CFS
    • Post-exertional malaise (feeling ill and increase in symptoms after exertion) needs to be avoided where possible
    • Patients need to monitor their symptoms. There may be no room for any additional exercise activity over basic daily activities.
    • Heart rate monitoring, activity diary, activity trackers are useful.

    TO WATCH:
    ✦ The video is available on www.otago.ac.nz/uoc-research-seminar The presentation has the title 'The abnormal physiological response to exercise in people with ME/CFS' and is dated 26th August.
    ✦ Direct link to video https://echo360.net.au/media/86177f...toplay=false&automute=false&startTimeMillis=0

    BIO:
    Dr Lynette Hodges (PhD, MSc, BSc) is a senior lecturer at Massey University within the School of Sport, Exercise and Nutrition in Palmerston North.
    She teaches on the Bachelor of Sport and Exercise, Exercise Prescription major. Her main focus is exercise and compromised health. Dr Hodges has specialized in investigating the effects of exercise and its impact on mobility in individuals with spinal cord injuries, multiple sclerosis and myalgic encephalomyelitis/chronic fatigue syndrome. Dr Hodges has been researching into the effects of exercise on ME/CFS for the last 6 years and has a number of publications within this area.

    CAN YOU MAKE A DONATION?
    To make a donation to Dr Hodges to suppport further research visit https://foundation.massey.ac.nz/donate-online
     

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