Posted by Dr. Marc-Alexander Fluks to various fora. Can't find it online, only similar ones including 'thousands' instead of 'hundreds' of patients. Source: ME Association Winter magazine Ref: http://www.measussex.org.uk Thirty years of seeing patients with ME/CFS ------------------------------------------- The Sussex & Kent ME/CFS Society marks its 30th anniversary during 2017. The organisation was founded in 1987 when people got together supported by Hospital Consultant, Dr Keith Hine and Brighton MP, Sir Andrew Bowden. The Society that has helped many hundreds affected by the illness and is now one of the most successful regional ME charities in the UK. Society patron, the actress Jenny Seagrove, commented: 'Sussex & Kent ME/CFS Society provides absolutely vital support to those people in society who suffer this debilitating and much misunderstood condition. At last research is being done into ME and also into the plasticity of the brain and nervous system, so perhaps hope will be allowed to shine its light into the darkness of some people's lives.' Dr Keith Hine commented: 'I was appointed as a Consultant Physician at Cuckfield Hospital in 1984. On my first weekend in Sussex I was asked by our local GP to see a patient with probable 'Myalgic Encephalomyelitis'. I visited this patient at home and found a fit-looking man who had been pole-axed by a condition of which I had no experience. Clinical examination was normal but here was a genuine patient with extreme fatigue who was unable at times to even get out of bed. I had to agree that this fitted the description of 'ME'.' 'This experience engendered an interest in CFS/ME which has remained with me throughout my consultant career. When central government released a considerable amount of money in to establish regional CFS/ME services, I was involved with Colin Barton and other members of the society in developing this service locally.' 'I retired from the NHS in 2008 but I have continued to see patients privately in the Nuffield Hospital. Since 1984 I have calculated that I have seen well in excess of 1,000 patients with CFS/ME.' 'As a consequence of the Chief Medical Officer's report and subsequently the NICE report, I have seen GP's become more aware of the condition and they have diagnosed and instituted appropriate management earlier. I suspect that this early involvement is the reason that we have seen a reduction in the proportion of patients we would classify as 'severe'.' 'I have now 'hung up my stethescope' and retired completely from clinical work. I am grateful to Colin for his support over the years and I wish the Society a great future.''