1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

#MillionsMissing today, 12 May - post news, tweets, etc. here

Discussion in 'General ME/CFS news' started by Sasha, May 12, 2018.

  1. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    Trying to keep an eye on Twitter and I literally couldn't keep up. Amazing!
     
    dangermouse, Woolie, Allele and 9 others like this.
  2. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    We need to be ready for this next time, when interviewed spokespeople should probably say the "leading" researchers continue to cling to their debunked and poorly conducted studies that claim therapies that make patients worse are good for them and in the UK "experts" commit people against their will, force harmful treatment on them, make them sicker before releasing them and calling it a success.
     
    dangermouse, Woolie, Andy and 9 others like this.
  3. Luther Blissett

    Luther Blissett Senior Member (Voting Rights)

    Messages:
    1,678
    Well done. :emoji_fist:

    I'm impressed by how people manage to make emotional public speeches on top of this illness, along with those who spoke for others who couldn't be there.
     
  4. Bill

    Bill Senior Member (Voting Rights)

    Messages:
    509
    Location:
    Los Angeles
    I went with my son today to the Millions Missing event in Santa Monica (Los Angeles).

    It was very moving to meet so many people who are living with this illness and their loved ones and others who care.

    About a hundred people were there. Jen Brea spoke via iPad/internet, being too unwell to attend in person. I met her husband Omar, who did speak.

    I spoke when it was time for people to share our experiences. It meant a lot.

    My boy took a selfie of us (after I left my camera in the car, d'oh!). He'd just broken his iPhone screen so the image has a weird ghostly glow to it. Somehow seems right.

    Bill

    [​IMG]
     
    ahimsa, Joh, dangermouse and 22 others like this.
  5. Bill

    Bill Senior Member (Voting Rights)

    Messages:
    509
    Location:
    Los Angeles
    Another from today in Santa Monica.

    Bill

    [​IMG]
     
    ahimsa, Joh, dangermouse and 12 others like this.
  6. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    Yeah, they specifically chose to end the article on that note, too. "Here is the actual story... now let's close with a word from our sponsors."
     
  7. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    Indeed, it shows how far we have to go

    Well put
    The false equivalence/bothsiderism has migrated from politics to science...
     
  8. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    You can't see it well in the vid, but I sure don't respond to that bolstering shot of adrenaline like I used to... my hands started shaking badly!
     
    Last edited: May 13, 2018
    dangermouse, Woolie, Binkie4 and 9 others like this.
  9. Luther Blissett

    Luther Blissett Senior Member (Voting Rights)

    Messages:
    1,678
    Could be worse, if it was me I would have been swearing and ranting. You did good to keep it to the hands!

    Hope everyone recovers swiftly from their efforts.
     
  10. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
    Just watched that (I went to bed after Ron's talk). You were terrific, @JaimeS! Thanks so much for speaking out. I'm so sorry for what has happened to you and your family. So many doctors should be hanging their heads in shame.

    :hug::hug::hug:
     
    dangermouse, Woolie, Yessica and 12 others like this.
  11. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
    dangermouse, Woolie, lycaena and 8 others like this.
  12. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
    Carol Monaghan speaks 31 mins in:

     
    dangermouse, Woolie, lycaena and 8 others like this.
  13. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
  14. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
  15. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
  16. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
  17. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
  18. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
  19. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
  20. Trish

    Trish Moderator Staff Member

    Messages:
    52,218
    Location:
    UK
    Thank you @Sasha for finding and posting so many links. It's great to be part of a world wide community like this.
     
    ahimsa, dangermouse, Sean and 14 others like this.

Share This Page