ME videos

Biomedical Research in ME/CFS


*Research overviews


The Latest Research on CFS (Lecture)
Massachusetts CFIDS/ME & FM Association
Anthony L. Komaroff, MD
2013
Link to video

Action for M.E. AGM 2013
Action for ME
Stephen Holgate
2013
Link to video

One Person's Highlights of the Biological Research Presentations
IACFS/ME Conference
Anthony L. Komaroff, M.D.
2014
Link to video

The Biology of Chronic Fatigue Syndrome
Medicine Grand Rounds - Stanford School of Medicine
Anthony L. Komaroff, M.D.
2014
Link to video

ME & possible treatments
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Charles Shepherd
2014
Link to video

Promising discoveries and research
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Charles Shepherd
2014
Link to video

State of affairs regarding ME
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Charles Shepherd
2014
Link to video

ME and the future
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Julia Newton
2014
Link to video

2014 ME/CFS Research Review
Solve ME/CFS
Suzanne D Vernon
2014
Link to video

New Developments in ME/CFS Research
Solve ME/CFS
Dr. Alan R. Light
2015
Dr. Alan R. Light, Research Professor of Anesthesiology and Neurobiology and Anatomy at the University of Utah.
Link to video

Pre-Conference Dinner Keynote Speech Kjersti Krisner
11th International ME Conference 2016 - IIMEC11
Kjersti Krisner
2016
Link to video


*Specific Research programs


NIH
Webinar with Avindra Nath, M.D.
Solve ME/CFS
Dr. Avindra Nath
2016
Link to video

Cornell university
Webinar with Dr. Maureen Hanson
Solve ME/CFS
Maureen Hanson
2016
Maureen Hanson, PhD, professor of molecular biology and genetics at Cornell University.
Link to video

Solve ME/CFS
Progress and Challenges in ME/CFS with Zaher Nahle, PhD, MPA
Solve ME/CFS
Zaher Nahle
2016
Link to video

Standford University

ME/CFS Symposium at Stanford
2017
Link to video

An Update on ME/CFS Research with Dr. Ronald W. Davis
Open Medicine Foundation - OMF
Ronald W. Davis
2017
Link to video

UK ME/CFS Biobank

London School of Hygiene and Tropical Medicine
Dr Charles Shepherd
2015
Link to video

*International research

What do we need to do – research in ME/CFS
Invest in ME
Prof Julia Newton, Karl Morten
2017
Prof Julia Newton of Newcastle University and Karl Morten of Oxford University talk about forging international collaborations in the field of M.E./CFS research.
Link to video

 

Biomedical Research in ME/CFS

*Metabolism

ME, exercise and the mitochondria
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Charles Shepherd
2014
Link to video

Research into Mitochondria & M.E.
Dr Karl Morten
2016
Link to video
S4ME thread

Mitochondria not Hypochondria
CCDP
2016
Link to video

Abnormal Exercise Response and Metabolism in ME/CFS
RME Konferens Malmö
Pr. Maureen Hanson, Cornell University, New York
2017
Link to video

Professor Warren Tate's Update on His Research into ME/CFS
ANZMES Annual General Meeting
Professor Warren Tate
2017
Link to video
S4ME thread

Metabolites

Webinar with Christopher Armstrong
Solve ME/CFS
2016
Link to video

*PEM

Top 10 Things You Should Know About Post-Exertional Relapse
Solve ME/CFS
2012
During a webinar held July 19, 2012, researchers from the Pacific Fatigue Lab at the University of the Pacific shared their insights into the characteristics of PEM and addressed the 10 most-asked questions about it based on hundreds of questions submitted in advance.
Link to video

Deciphering Post Exertional Malaise
Dane B. Cook
Solve ME/CFS
2014
Dane B. Cook, Ph.D. is assistant professor of Kinesiology at the University of Wisconsin, Madison. Cook describes the system biology approach his team is taking to provide a clear picture as to what causes post-exertional malaise.
Link to video

Mark VanNess 'Exercise and ME/CFS' at Bristol Watershed
2014
Prof Mark VanNess from the Workwell Foundation USA presents evidence of the damaging consequences of aerobic exercise programmes (such as GET) for people with ME, comments on observations made by people in the 'Voices from the Shadows' film shown, and explains a more helpful approach to activity and exercise management. Filmed & edited by J Biggs.
Link to video

Post-Exertional Malaise: History, Characteristics, Evidence
Dr. Lily Chu
Solve ME/CFS
2015
Dr. Chu is Co-Vice President of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and a Stanford University ME/CFS Initiative Community Advisory Board Member
Link to video

Inducing Post-Exertional Malaise in ME/CFS: A Look at the Research Evidence
Dr. Peter Rowe, Johns Hopkins Children’s Center
Solve ME/CFS
2015
Link to video

Post-Exertion Malaise: The Intersection of Biology and Behavior
Solve ME/CFS
Dr. Dane B. Cook
2015
Much of Dr. Cook’s research uses functional magnetic resonance imaging (fMRI), in conjunction with biological and behavioral outcomes, to understand central nervous system mechanisms of pain and fatigue in patients with fibromyalgia and ME/CFS and veterans with Gulf War illness. These studies combine exercise science and brain imaging methods to better understand these diseases. More recently, Dr. Cook’s research has begun to incorporate additional biological systems, such as the immune, autonomic and gut microbiome to better understand how distinct, yet related, physiological responses interact to maintain illness.
Link to video

PEM
MEFM Society of BC May Awareness Event
Stacie Stevens
2015
Link to video

Exercise

Clinical exercise testing in CFS/ME research and treatment
RME Stockolm
Professor Christopher R. Snell, Pacific Fatigue Laboratory, Kalifornien, USA
2012
Link to video

Exercise and ME/CFS
Bristol Watershed
Dr Nigel Speight
2014
Link to video

Expanding Physical Capability in ME/CFS
MEFM Society of BC
Dr. Mark Van Ness
2016
Part 1
Part 2

*Immunology

Stanford's Dr. Jose Montoya on Chronic Fatigue Syndrome
Stanford Health Care
Dr. Jose Montoya
2011
This talk features discussion about CFS and current research regarding diagnosis and treatment, and the possible CFS-infection connection.
Link to video

Investigator Report: Decoding the Human Immune Response
Solve ME/CFS
Derya Unutmaz
2014
Derya Unutmaz, MD, is Professor of Microbiology, Pathology and Medicine at NYU Langone Medical Center. Unutmaz is using samples from the SolveCFS BioBank to understand the “Good, Bad and Ugly” aspects of the immune response in ME/CFS. Unutmaz hypothesizes that a disproportionate immune response leads to damage in ME/CFS. He will describe what the immune signature of ME/CFS looks like compared to a healthy immune response.
Link to video

Olav Mella speaks about the Rituximab study and ME/CFS future
Olav Mella
2014
Olav Mella from Haukeland University Hospital in Norway speaks about the upcoming Rituximab study at the premiere for the film Perversely Dark.
Link to video

The RituxME and CycloME studies – Ongoing Clinical Research in the ME/CFS Research Group
RME Sverige
Öystein Fluge
2016
Link to video

ME/CFS and the immune system. Where are we now?
RME Konferens Malmö
Geraldine (Jo) Cambridge, PhD, Dep.Medicine, University College, London
2017
Link to video

CMRC Conference 2017 day 2 - Prof Jose Montoya
ActionFor M.E.
Prof Jose Montoya
2017
Prof Jose Montoya of Stanford University talks about his latest research involving Cytokines in the blood of people with M.E./CFS.
Link to video

Discovery Forum 2017: An Interview with Dr. Ian Lipkin
Solve ME/CFS
Dr. Ian Lipkin
2017
In this exclusive interview, Dr. Zaher Nahle discusses ME/CFS science and policy with Dr. Ian Lipkin, Director of the Center for Infection & Immunity at Columbia University and the director of the new NIH-funded Center for Solutions for ME/CFS.
Link to video

From Theater to Science: A ’Medical Detective’ Describes His Journey
White House Chronicle Llewellyn King
Dr. Ian Lipkin
2017
Link to video
S4ME thread

*Neurology

Webinar with Jarred Younger, Ph.D.
Solve ME/CFS
Jarred Younger
2016
Jarred Younger, Ph.D., is Associate Professor in the Departments of Psychology, Anesthesiology and Rheumatology in the University of Alabama at Birmingham. Dr. Younger obtained his Ph.D. in Experimental Psychophysiology at the University of Tennessee, Knoxville in 2003 and completed postdoctoral pain research fellowships at Arizona State University and Stanford University before accepting an Assistant Professor position at Stanford University in Anesthesiology in 2010. Dr. Younger moved to the University of Alabama at Birmingham in 2014 to establish the Neuroinflammation, Pain and Fatigue Laboratory, where he oversees the development of new diagnostic tests and treatments for chronic pain and fatigue disorders.
Link to video

ME/CFS Biomarkers in the Cerebrospinal Fluid
Professor Jonas Bergquist, Department of Chemistry, Uppsala University, Sweden
RME Sverige
2017
Link to video

Neuroradiology studies of ME/CFS
Doctor Per Julin, MD, ME/CFS Clinic, Stora Sköndal Neuro Rehabilitation Center, Stockholm, Sweden
RME Sverige
2017
Link to video

*Autonomic dysfunction

Guidance for GPs and other health professionals on autonomic dysfunction fatigue in ME-CFS
Professor Julia Newton (Newcastle Hospitals NHS Trust, Dean for Clinical Medicine Newcastle University) on autonomic dysfunction and fatigue in ME-CFS.
Action for ME
2014
Link to video

Managing Orthostatic Intolerance
Peter Rowe
Solve ME/CFS
2010
In this Sept. 1, 2010 webinar, Peter Rowe, MD, of Johns Hopkins University School of Medicine describes orthostatic intolerance (OI) and approaches to its treatment in chronic fatigue syndrome (CFS). He explains the different forms of OI, including neurally mediated hypotension (NMH) and postural orthostatic tachycardia syndrome (POTS) and other names used to describe these conditions. Dr. Rowe covers overlapping and co-existing conditions including joint hypermobility, Ehlers Danlos Syndrome (EDS), migraine, allergy, pelvic congestion syndrome. He reviews medications used to treat OI as well as postural and dietary approaches to comprehensive care.
Link to video

CMRC Conference 2017 day 1 - Dr Peter Rowe
Action For M.E.
Dr Peter Rowe
2017
Dr Peter Rowe of the John Hopkins Children's Centre for CFS in the USA talks about Orthostatic Intolerance and the lessons that have been learned about it over the last two decades.
Link to video

*Neuromuscular dysfunction

Neuromuscular Strain in ME/CFS
Peter Rowe
Solve ME/CFS
2014
Peter Rowe, MD, describes some novel observations about restrictions in range of motion in the limbs and spine in those with ME/CFS. Many affected individuals have restricted movements and increased mechanical tension in nerves. Applying a further mechanical strain to the nervous system can provoke increased symptoms in some patients. These concepts are starting to help explain the pathogenesis of some symptoms and neurological abnormalities in the illness—not only how they might arise but also how we might treat them more effectively.
Link to video

The metabolism and the muscles
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Julia Newton
2014
Link to video


*Microbiome

The Altered Gut Microbiome in ME/CFS
Professor Jonas Blomberg, Uppsala Universitet
2017
Link to video

*Genes

Investigator Report: Epigenetics of ME/CFS
Solve ME/CFS
Patrick O. McGowan
2014
Patrick O. McGowan used blood samples from the SolveCFS BioBank to identify the chemical modifications (e.g., methylation) to the DNA that is different in ME/CFS patients compared to healthy people. This type of research will help explain the immune dysfunction of ME/CFS.
Link to video

Novel Gene Variants in ME/CFS and Fibromyalgia
Bateman Horne Center
Alan Light
2017
Link to video

 

*Sleep

ME and sleep disorders
Wetenschap voor Patienten - ME/cvs Vereniging
Kenny de Meirleir
2013
Link to video

Can ME CFS and Fibromyalgia Research Help You Sleep?
Dr. Lucinda Bateman
Solve ME/CFS
2014
Dr. Lucinda Bateman tells us about the body systems that regulate and affect sleep and how these systems are affected in patients with ME/CFS and Fibromyalgia. Dr. Bateman will discuss sleep research can translate into practical solutions and treatment in ME/CFS and FM.
Link to video

ME and sleep
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Julia Newton
2014
Link to video

Sleep and ME/CFS
Suzanne Vernon, PhD
Bateman Horne Center
2015
Link to video


*Cognition

Cognition & CFS: What Do We Know?
Dr. Gudrun Lange and Dr. Suzanne Vernon
Solve ME/CFS
2012
Impaired cognition in CFS is one of the most disabling and frustrating symptoms patients experience. Deficits in short-term memory, information processing and processing speed have been documented by several research groups. How closely does the medical literature reflect patients' experiences and how can cognitive testing help support self-reported measures?
Link to video

ME/cfs and neuropsychological symptoms
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. M. Vollema, clinical neuropsychologist
2013
Link to video

Neurocognitive problems in ME
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Julia Newton
2014
Link to video

ME versus psychiatric disorders
Wetenschap voor Patienten - ME/cvs Vereniging
Prof. Leonard Jason
2014
Link to video

Cognitive challenges for children/adolescents with ME
Norges Myalgisk Encefalopati Forening
Professor Kristian Sommerfelt
Norwegian with English Subtitles
2017
Link to video

*Pain

ME and pain
Wetenschap voor Patienten - ME/cvs Vereniging
Kenny de Meirleir
2013
Link to video


*Cardiology

Wetenschap voor Patienten - ME/cvs Vereniging
With Prof. Dr. F.C. Visser, cardiologist
2013

ME/cfs and the heart
Link to video
ME/cfs and palpitations
Link to video
ME/cfs and cardiac arrhythmias
Link to video
ME/cfs and POTS (Postural Orthostatic Tachycardia Syndrome)
Link to video
ME/cfs and the blood flow in the brain
Link to video
ME/cfs and orthostatic intolerance
Link to video


* Children and adolescents

Wetenschap voor Patienten - ME/cvs Vereniging
With Dr. Nigel Speight
In this web seminar the English paediatrician Dr. Nigel Speight is being interviewed by Rob Wijbenga, chairman of the Dutch ME/cvs Association and coordinator of the project 'Wetenschap voor Patiënten' or in English 'Science to Patients'.
Dr. Nigel Speight has been involved in 30 child protection cases where children with ME have been threatened by removal from their families by social services. In this interview he talks about this cases and the situation with regard to children with ME in Great Brittain.

Interview with Dr. Nigel Speight (paediatrician)
Link to video
What is ME and what is CFS?
Link to video
Diagnostic tools for ME
Link to video
ME/cfs and the course of the disease
Link to video
ME & children, part 1
Link to video
ME & children, part 2
Link to video
Future and hope
Link to video

A Clinical Approach to ME/CFS in Adolescent and Young Adults: A Practical Primer
Solve ME/CFS
Peter Rowe
2017
Link to video

*Ageing

Ageing and ME
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Julia Newton
2014
Link to video


*Diagnosis

Defining CFS: Diagnostic Criteria and Case Definitions
Dr. Leonard A. Jason
Solve CFS/ME
2010
In this presentation, Dr. Leonard A. Jason of DePaul University explores current CFS and ME/CFS case definitions and whether they adequately identify patients who have this illness. He offers the argument that better case definitions might help identify more homogenous patient groups, which could facilitate the identification of biological markers for this illness. Dr. Jason has been engaged in several of the efforts to craft meaningful definitions for CFS. He will discuss the various CFS case definitions, how they impact research and care, and how the definitions might be improved to better serve researchers, clinicians, and patients.
Link to video

What is the difference between ME and CFS
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Charles Shepherd
2014
Link to video

How is ME diagnosed?
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Charles Shepherd
2014
Link to video

ME and its triggers
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Charles Shepherd
2014
Link to video

Criteria and diagnosis, part 1
Wetenschap voor Patienten - ME/cvs Vereniging
Prof. Leonard Jason
2014
Link to video

Criteria and diagnosis, part 2
Wetenschap voor Patienten - ME/cvs Vereniging
Prof. Leonard Jason
2014
Link to video

Population and social impact
Wetenschap voor Patienten - ME/cvs Vereniging
Prof. Leonard Jason
2014
Link to video

P2P 2014 Meeting on ME and CFS
Leonard Jason's presentation
2014
Link to video

Dr Ellen Wright Clayton at the SMCI IOM briefing
Solve ME/CFS
Ellen Clayton
2015
On March 25,2015, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the Institute of Medicine’s report on myalgic encephalomyelitis/Chronic Fatigue Syndrome.
Link to video

Will SEID Diagnostic Criteria Improve Diagnosis and Treatment?
Solve ME/CFS
Dr Lucinda Bateman
2015
Link to video

Sub Groups

CFS Subgroups
Younger Lab
Jarred Younger
2017
Here are some new results from the daily blood draw Chronic Fatigue Syndrome study that suggests there are important subgroups.
Link to video

 

Documentaries/TV report

*Documentaries

I remember ME
Kim Snyder
2000
Link to information
Link to documentary

Voices from the shadows
Natalie Boulton and Josh Biggs
2012
“Voices from the Shadows” shows the brave and sometimes heartrending stories of five ME patients and their carers, along with input from Dr Nigel Speight, Prof Leonard Jason and Prof Malcolm Hooper. It was filmed and edited between 2009 and 2011 by the brother and mother of an ME patient in the UK. The film shows the devastating consequences that occur when patients are disbelieved and the illness is misunderstood. Severe and lasting relapse occurs when patients are given inappropriate psychological or behavioural management: management that ignores the reality of this physical illness and the severe relapse or exacerbation of symptoms that can be caused by increased physical or mental activity, over exposure to stimuli and by further infections.
Link to trailer
Link to film website

Forgotten Plague
Ryan Prior
2016
Ryan Prior’s life imploded October 22, 2006 when he was struck down by a disease that dozens of doctors were powerless to diagnose, let alone treat. Against great odds, he becomes a reporter and ventures to tell the story of his suffering and improbable recovery. He is shocked that millions globally remain sidelined by the same disease, many bedridden for decades.

Forgotten Plague is a journey into the hidden world of myalgic encephalomyelitis (chronic fatigue syndrome). It is a chilling tale of our medical system’s failures in addressing many chronic, complex diseases. Yet it is also a riveting story of science’s remarkable ability to transform medicine and improve human life itself.
Link to film website

Unrest
Jennifer Brea
2017

Jennifer Brea is an active Harvard PhD student about to marry the love of her life when suddenly her body starts failing her. Hoping to shed light on her strange symptoms, Jennifer grabs a camera and films the darkest moments unfolding before her eyes as she is derailed by M.E. (commonly known as Chronic Fatigue Syndrome), a mysterious illness some still believe is “all in your head.”

In this story of love and loss, newlyweds Jennifer and Omar search for answers as they face unexpected obstacles with great heart. Often confined by her illness to the private space of her bed, Jen is moved to connect with others around the globe. Utilizing Skype and social media, she unlocks a forgotten community with intimate portraits of four other families suffering similarly. Jennifer Brea’s wonderfully honest portrayal asks us to rethink the stigma around an illness that affects millions of people. Unrest is a vulnerable and eloquent personal documentary that is sure to hit closer to home than many could imagine.

Unrest world-premiered January in the documentary competition at the 2017 Sundance Film Festival, where it won a Special Jury Prize for editing. It has since screened at SxSW, CPHOX, HotDocs, River Run (Audience Award for Best Documentary Feature), the Nashville Film Festival (Grand Jury Award for Best Documentary Feature), among Sheffield Doc/Fest (Illuminate Award). It also has a companion VR piece which premiered at Tribeca and won the Jury Award for best VR at Sheffield/DocFest.

Link to watch movie
Link to trailer


TV shows and series

The Golden girls


*Living with ME /Patient's perspective

Stuart Murdoch of Belle and Sebastian ME/CFS Interview in L.A.
Solve ME/CFS
Stuart Murdoch
2015
Stuart Murdoch, lead singer of the indie band Belle and Sebastian, talks to the Solve ME/CFS Initiative about his experience with the disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
Link to video

QUB ePatient Conference
Sally Burch
2015
Link to video

What happens when you have a disease doctors can't diagnose
TedTalk
Jennifer Brea
2017
Five years ago, TED Fellow Jen Brea became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome, a debilitating illness that severely impairs normal activities and on bad days makes even the rustling of bed sheets unbearable. In this poignant talk, Brea describes the obstacles she's encountered in seeking treatment for her condition, whose root causes and physical effects we don't fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat.
Link to video

 

*Advocacy

6 Ways to Maximize Your Congressional Advocacy Impact
Solve ME/CFS
2017
Join Advocacy and Engagement Manager Emily Taylor to learn 6 ways to maximize your advocacy impact and hear about SMCI’s 2017 congressional advocacy strategy.
Link to video

ME/CFS Advocacy Week: Local Action Training
Solve ME/CFS
Emily Taylor, Gail Cooper
2017
Solve ME/CFS Initiative Director of Advocacy and Public Relations, Emily Taylor, and #MEAction Congressional Chair, Gail Cooper, teach you how to be a part of your local advocacy team for ME/CFS Advocacy Week.
Link to video

ME/CFS Advocacy Week: District Action Training
Solve ME/CFS
Emily Taylor, Gail Cooper
2017
Link to video

Welcome Washington! How to conduct your D.C. Meeting
Solve ME/CFS
Emily Taylor, Gail Cooper
2017
Link to video

*ME (lack of) funding

Money and ME
MEAnalysis
2013
Link to video

NIHspending2017
MEAnalysis
2016
Link to video

*Politics

California Passes a Resolution for ME/CFS
Solve ME/CFS
2017
We did it! Watch California become the 6th state to pass a resolution for ME/CFS with unanimous support!
Link to video

Senator Markey Stands Up for ME/CFS disease!
Solve ME/CFS, #MEAction
2017
U.S. Senator Ed Markey (D-MA) speaks about the urgent need to support ME/CFS and increase federal funding at a congressional briefing organized by the Solve ME/CFS Initiative and #MEAction
Link to video

*ME history

CFS and the CDC's Failure to Respond
Primetime Live
1996
This is a Primetime Live news piece on chronic fatigue syndrome (CFS) from 1996. It covers the sudden U.S. outbreaks in the 1980s and the CDC's lack of response. Discussion includes Dr. Paul Cheney, Dr. Daniel Peterson, Dr. David Bell, Elaine DeFreitas, Hillary Johnson, and Osler's web.
Link to video

CFS / CVS - Dr. Byron Hyde
Wetenschap voor Patienten - ME/cvs Vereniging
2016
Dr Byron Hyde talks about 1930’s epidemics.
Link to video

 

Biopsychosocial view of ME and CFS

*Royal Society of Medicine “Chronic Fatigue Syndrome” Conference - 2008

CBT and GET - Professor Rona Moss-Morris
Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
Professor Rona Moss-Morris
2008
Link to video

Epidemiology
Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
Professor Simon Wessely, King's College London
2008
Link to vide

What is Chronic Fatigue Syndrome? And What is ME? What is CFS?
Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
Peter D White
2008
Link to video
Comments on lecture by Charles Shepherd

Assessment: psychiatrists approach
Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
Professor Matthew Hotopf Institute of Psychiatry, London
2008
Link to video

Pathophysiology
Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
Dr Anthony Cleare Institue of Psychiatry, London
2008
Link to video

What drugs can I use?
Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
Dr Alastair Miller Royal, Liverpool University Hospital
2008
Link to video

Management: NICE Guidelines
Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
Professor Richard Baker, Leicester University
2008
Link to video
Me Association Statement about RSM 2008
MEAction Concerns about RSM 2008

*Lectures

Psychological issues in the management of Chronic Fatigue Syndrome and other long term conditions
Alison Wearden
Date unknown
Link to video

'Understanding and managing chronic fatigue syndrome in an interpersonal context'
Professor Alison Wearden
2014
'Understanding and managing chronic fatigue syndrome in an interpersonal context', Professor Alison Wearden speaking at 2014 Division of Health Psychology annual conference in York.
Link to video

Severe M.E. Symposium
Action for M.E.
Dr Clare McDermott
2014
Link to video

ME/Chronic Fatigue Syndrome: Not Just Tired All The Time!
Dr Alistair Miller
2015
ME/CFS is a complex, long-term, chronic illness affecting an estimated 250,000 people in the UK. This lecture will provide a general account of the history, epidemiology, suggested cause, disease mechanisms and current treatment approaches for ME/CFS.
Link to video

UK CMRC Conference 2016
Esther Crawley
Paediatric CFS/ME, by Dr Esther Crawley (Bristol University) Involving severe and very severely affected CFS patients and M.E. individuals in research - a clinician's point of view, by Victoria Strassheim (Newcastle University).
2016
Link to video

Disrupting Your View Of ME
TEDxBristol
Esther Crawley
2017
S4ME thread
Link to video: Part 1 - Part 2

*Other videos

Training videos for English GPs on how to deal with CFS patients
Link to video
Link to video
Link to video
Link to video

Chronic fatigue syndrome - 10 Minute CBT
2013
Link to video


*Medically unexplained symptoms

Patients with Medically Unexplained Symptoms
EADMT Conference 2014
Helen Payne
Link to video

Dr Jim Bolton presents 'Medically Unexplained Symptoms'
Undergraduate Psychiatry
Jim Bolton
2015
Be warned, this is a pretty nasty video.
Link to video

DHP 2015 LIVE - VINCENT DEARY
VINCENT DEARY
We need to talk about Anne: Towards a multidisciplinary understanding of human suffering
2015
Link to video

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Critique of BPS/psychosomatic theories

*ME and CFS BPS model

Medical, Scientific, Political and Journalistic Pitfalls in the Study of Confusing Illnesses
Julie Rehmeyer
Santa Fe Institute
2014
When illnesses are confusing, without clear mechanisms or sharply-defined symptoms, they are often considered psychosomatic, and there's a consistent pattern of poor handling by federal agencies, researchers, doctors, and the media. AIDS, multiple sclerosis, chronic Lyme disease, and chronic fatigue syndrome are all cases of this. I'll describe this pattern, focusing on chronic fatigue syndrome in particular, along with my understanding of why it happens.
Link to video

Pr. James Coyne on poor British and Dutch fatigue studies
Unrest presentation (The Nederland)
2017
Link to video

ObjectiveEvidence&CFS
MEAnalysis
2017
Link to video

*The PACE trial

The Pace Race
MEAnalysis
2012
Link to video

How's That Recovery?
MEAnalysis
2014
Link to video

Dr. David Tuller discusses the flaws of the PACE trial
David Tuller
2016
The PACE trial, a research project that should investigate the effects of CBT and GET in CFS is at this moment famous for it's severe and obvious flaws. Nevertheless it was the basis for guidelines in many countries. But for how long? And how long can the Lancet uphold their support for this in scientific terms disastrous research project?
Link to video

Pre conference Dinner Presentation London 2017
#IIMEC12
David Tuller
2017
Link to video

Interview with David Tuller PhD
David Tuller
2017
An interview with David Tuller PhD, investigative reporter and academic coordinator at University of California, Berkeley. David discusses his ongoing investigations into the PACE trial, including his dealings with Esther Crawley and Stephen Holgate, of the CMRC.
Link to video


The death threats campaign

UK Column News
2017
Link to video (37.30 - 39.33)
S4ME thread

Other diseases

Conversion Disorder & Somatization Disorder
Richard Barnum, M.D. Private Practice of Psychiatry and Previously Forensic Psychiatrist for the State of Massachusetts
2013
This lecture addresses the true definitions of Conversion Disorder and Somatization Disorder in the past DSM and the current DSM and how kids with Ehlers-Danlos are commonly misdiagnosed with these psychiatric disorders. It further explores the actual psychological support needed by patients with Ehlers-Danlos Syndrome and how that help can be impeded with misdiagnosis.
Link to video

Diane O’Leary, PhD presents - “All in Your Head”: The Problem of Psychogenic Diagnosis for EDS
EDS Awareness
Diane O’Leary
2016
Link to video

“Psychiatric Misdiagnoses in EDS: When is Anxiety not Anxiety?”
EDS Awareness
Dr. Alan Pocinki
2016
Link to video