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ME generation want better care across Scotland

Discussion in 'General ME/CFS news' started by MeSci, Jan 31, 2018.

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  1. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    4,492
    Location:
    Cornwall, UK
    (What generation would that be? We are of all ages!)

    https://www.pressandjournal.co.uk/f...-generation-want-better-care-across-scotland/

    It’s an illness which affects more than 20,000 people in Scotland.

    And yet there is not a single specialist in the country to deal with patients who suffer from ME – myalgic encephalomyelitis.

    This condition is a debilitating neuro-immune disease which leaves those afflicted unable to work or even carry out basic everyday tasks. It causes profound tiredness and can lead to cognitve impairment.

    It strikes indiscriminately, often devastating people who have led previously healthy and active lives.

    Yet there are still those who refuse to believe the evidence which has been assembled by the charity MEAction and other UK-wide groups.

    More at link
     
    MeSci, Jan 31, 2018
    #1
    Woolie, Allele, Joh and 10 others like this.
  2. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    6,088
    Location:
    UK
    What a very weird way of referring to people with ME! As if the only people who suffered with it were the young. The "ME generation" makes it sound as if they are choosing to have ME.
     
    Arnie Pye, Jan 31, 2018
    #2
    Woolie, Allele, Invisible Woman and 2 others like this.
  3. Trish

    Trish Moderator Staff Member

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    Location:
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    And the phrase ''me generation'' more commonly refers to the self centredness of youth. A very unfortunate connotation. Headline writer gets it wrong again.
     
    Trish, Jan 31, 2018
    #3
    Arnie Pye, Woolie, Allele and 3 others like this.
  4. Stuart

    Stuart Established Member (Voting Rights)

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    48
    I wonder if anyone from the leading edge of 'generation ME' is still about from 1934? Even early teens would be nearly 100 and this is not a disease that lends itself to longevity. Heck of a generation.
     
    Stuart, Jan 31, 2018
    #4
    Allele, Joh, Wonko and 1 other person like this.
  5. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    10,280
    I worry about this.....

    They are asking for more care or enhanced care..... The establishment will see that as asking for more CBT/GET. Cause thats pretty much all that's on offer and this gives them the excuse to say it's on offer by popular demand.

    Now, if they were asking for proper biomedical research, that I would support.
     
    Invisible Woman, Jan 31, 2018
    #5
    Trish, Woolie, Arnie Pye and 1 other person like this.
  6. TiredSam

    TiredSam Committee Member

    Messages:
    10,496
    Location:
    Germany


    People try, to put us down ...
     
    TiredSam, Feb 4, 2018
    #6
    Invisible Woman, NelliePledge, Indigophoton and 1 other person like this.
  7. Wonko

    Wonko Senior Member (Voting Rights)

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    6,682
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    I wish....they could at least supply the drug to do so if we are so....inconvenient.
     
    Wonko, Feb 4, 2018
    #7
    Invisible Woman, Alvin, Indigophoton and 1 other person like this.
  8. Stuart

    Stuart Established Member (Voting Rights)

    Messages:
    48
    No 'Talking 'bout ME Generation' without me.
     
    Stuart, Feb 10, 2018
    #8
    Invisible Woman likes this.

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