ME generation want better care across Scotland

(What generation would that be? We are of all ages!)

https://www.pressandjournal.co.uk/f...-generation-want-better-care-across-scotland/

It’s an illness which affects more than 20,000 people in Scotland.

And yet there is not a single specialist in the country to deal with patients who suffer from ME – myalgic encephalomyelitis.

This condition is a debilitating neuro-immune disease which leaves those afflicted unable to work or even carry out basic everyday tasks. It causes profound tiredness and can lead to cognitve impairment.

It strikes indiscriminately, often devastating people who have led previously healthy and active lives.

Yet there are still those who refuse to believe the evidence which has been assembled by the charity MEAction and other UK-wide groups.

More at link

 

What a very weird way of referring to people with ME! As if the only people who suffered with it were the young. The "ME generation" makes it sound as if they are choosing to have ME.

 

I wonder if anyone from the leading edge of 'generation ME' is still about from 1934? Even early teens would be nearly 100 and this is not a disease that lends itself to longevity. Heck of a generation.

 

I worry about this.....

They are asking for more care or enhanced care..... The establishment will see that as asking for more CBT/GET. Cause thats pretty much all that's on offer and this gives them the excuse to say it's on offer by popular demand.

Now, if they were asking for proper biomedical research, that I would support.

 

I wish....they could at least supply the drug to do so if we are so....inconvenient.

 

No 'Talking 'bout ME Generation' without me.