"ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" (Bateman Horne Center)

[Dolphin]

Bateman Horne Center

· RELEASED: "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" https://bit.ly/34nh5yX

The guidebook is designed for the patient, their support network, and medical providers to:

- Understand ME/CFS and its defining characteristic of post-exertional malaise (PEM).

- Help the individual prepare in advance for a crash/PEM episode, ensuring their critical needs are met.

- Offer adaptive guidance in carrying out everyday living activities that support energy conservation with ME/CFS.

Each chapter can serve as a stand-alone handout or as a part of the guidebook’s entirety. The content and concepts can be applied to #FM, #LongCOVID, #orthostaticintolerance, and #MECFS.

 

[Shadrach Loom]

When I was offered the choice to download it in a variety of front page colours, I didn’t expect the content to be as thorough, detailed and sensible as it was.

 

[mango]

This is great! Thank you so much for sharing!

 

[Dolphin]

Bateman Horne Center

During a crash, it can be incredibly difficult to communicate your
needs to others. These communication cards aim to assist you and your
support network by creating an unspoken dialogue to ensure your
critical health and comfort needs are met. https://bit.ly/34nh5yX

Communication cards are provided in the appendix of the guidebook and
can be accessed individually on the guidebook webpage.
#MECFS #FM #pasc #LongCovid #pwME #longhauler #MEwarrior #brainfog #OI

 

[Dolphin]

The Hope for More Good Days (Bateman Horne Center) (Background to the ME/CFS Crash Survival Guidebook)
https://batemanhornecenter.org/22542-2/