ME Association guest blog: "There’s No Point in me having a Netflix subscription or an Audible account" by Anna Wood

Andy

Andy

Retired committee member
Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most. It is the reason that I describe myself as severely affected, and the reason that I am housebound.

I know that I’m not alone and yet many of the people I talk to and the stories that I read on social media seem to be of a particular type of M.E. where pain and muscle fatigue of the primary symptoms.

Of course, this is probably because those of us who are more affected cognitively are less able to read and to interact online.
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https://www.meassociation.org.uk/20...-audible-account-by-anna-wood-07-august-2019/
 
This is a blog I very much identified with. Before I was bedridden I was disproportionately affected cognitively and socially and would like to see more research into the severely affected as to why some of us are like this even when physically mobile and others are devouring high end novels, still highly social or even working but from bed.
The brain shut down is the worst thing, especially as in my case it’s not accompanied by sleep. I saw ron davies of his son say the brain goes into survival mode
Most of the research I have seen on cognitive dysfunction has been trying to ascertain if it actually exists and tends to be on information processing speed and brain region use in the mild-moderate
Btw that picture says it all
 
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