Maeve Boothby O'Neill - articles about her life, death and inquest

I can’t read the comments section not having a Times subscription. But…

Its occurs to me that the types- medical professionals, researchers, psychologists, life coaches, members of the public, whoever, who’ve fashioned their identity based upon their ability to be a ‘good’ cop, spy, bouncer, bully, to maintain the purity of the society, no ‘abnormalities’ or ‘inconsistent presentations’ here, ‘no troubled people’ no ‘mental illness’ allowed over here, just me and my pals, hoarding all the healthcare for ourselves and other ‘normals’- are only going to get more and more and more nasty.

What else can they do?

Everyone is off sick with Covid and their papers are telling them that’s a failure of people who allow themselves to think that they’re sick. You’re barely even allowed to be acutely sick now, for these enforcers are roaming around the ruins of our society, they are managers everywhere.

They could admit that bullying people into work and health has been a bit of a failure. But they won’t.

Either they know that they need to get the boot in while they can, before public opinion turns for whatever reason or perhaps they are worried that a changed perception of us necessarily brings a changed perception of them. They may be seen as mean petty tyrants which they may or may not mind, but that they will also appear foolish and easily led, that they will. They must maintain past behaviour, but harder. For perhaps they think that by keeping up the front they might hold off change, forever.

Also being realistic medicine will just do this again to people without ME. So let’s get an agreement that fewer people would die if you believe that people who say they are physically sick almost certainly are. Also that if you’re not treating ‘mentally ill’ people like dirt, you remove the possibility of people trying pick up their symptoms and flee from your treatment into another category, which seems a big fear of medical professionals looming very large in their imaginations, and that doesn’t reflect well on them tbh.


Every doctor who leaves an unsupportive comment beneath articles on Maeve or anyone else’s death needs one upstanding person who knows them professionally of equal or higher status to have a patient but insistent word with them about their inappropriate behaviour.

Right now I feel glad that Maeve’s story is tearing at the seams.
 
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The first comment on the article accuses the Times .......

"The Times is running a deplorable campaign of misinformation about so-called ME/CFS. There is no evidence this "disease" has any physiological or biological origin. Deeply troubled individuals latch on to this mythical diagnosis and your relentless campaign to have it taken seriously will only encourage more people to frame their mental health issues with this invented narrative. Just because one of your staff members has had a terrible tragedy in his life does not mean you have the right to mislead and gaslight thousands of other people."
The above has 4 likes.
Mythical diagnosis?? The naysayers have not gone away.

edit: response t above comment. "
"Chronic fatigue certainly does exist, commonly following viral infections, and I - a retired hospital doctor- suffer from long Covid fatigue myself.

I am not a “deeply troubled individual”, and neither are the majority of the thousands of other normal patients with this group of conditions.

Just because we have not yet elucidated the causative pathway, it does not mean we can pretend the disease does not exist. Nobody knew the cause of TB until the tubercle bacillus was isolated, but it killed literally millions through human history prior to that point.

I wonder what your medical qualifications are, and hope that you are not in a patient facing specialty." ( 5 likes)
This comment has now been deleted.

“This comment violated our policy.”

IMG_2668.jpeg

Times subscribers can report any comments that they believe violate the newspaper’s policy.
 
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@Robert 1973
Thank you for posting that the first comment originally posted under this article has been deleted. (See below for comment in question). It very quickly gained 4/5 likes, almost as if people were waiting for comments of this sort.
I am actually surprised it has been erased, very glad but surprised because I think the views expressed there have been pretty mainstream about ME until very recently. Now they are not acceptable, to the Times at least. One step forward perhaps.

"The Times is running a deplorable campaign of misinformation about so-called ME/CFS. There is no evidence this "disease" has any physiological or biological origin. Deeply troubled individuals latch on to this mythical diagnosis and your relentless campaign to have it taken seriously will only encourage more people to frame their mental health issues with this invented narrative. Just because one of your staff members has had a terrible tragedy in his life does not mean you have the right to mislead and gaslight thousands of other people."
 
@Robert 1973
Thank you for posting that the first comment originally posted under this article has been deleted. (See below for comment in question). It very quickly gained 4/5 likes, almost as if people were waiting for comments of this sort.
I am actually surprised it has been erased, very glad but surprised because I think the views expressed there have been pretty mainstream about ME until very recently. Now they are not acceptable, to the Times at least. One step forward perhaps.

"The Times is running a deplorable campaign of misinformation about so-called ME/CFS. There is no evidence this "disease" has any physiological or biological origin. Deeply troubled individuals latch on to this mythical diagnosis and your relentless campaign to have it taken seriously will only encourage more people to frame their mental health issues with this invented narrative. Just because one of your staff members has had a terrible tragedy in his life does not mean you have the right to mislead and gaslight thousands of other people."

DARVOin action, now we’re gaslighting people? By having symptoms which we actually have? Troll.
 
Well that's a load of dangeous bullshit.

The Millers and Walitts of this world have a lot to answer for. Let's hope at an inquest someday.


So, Walitt and Nath's unevidenced, hyper-ridiculous pseudo-theorising is now Actually Undermining Realistic Assessment of the death of a woman with ME in the NHS!!

Walitt has a hell of a lot to answer for. And so does everyone who let him loose.

.
 
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Is it 10am tomorrow? Apparently you can use the same teams link to attend, if you attended the inquest

it is 14:00 Friday 9 August, per Sarah Boothby’s tweet

https://twitter.com/user/status/1819678810066895345


“…GP Surgery and both divorced parents). HMC is taking time to reflect on the evidence and refer to relevant inquest law before concluding. Conclusion will be read into the public record at *Devon Coroner's Court 14:00 BST Friday 9 August 2024*.
2/4”

use the same link as listening to the inquest.
 
it is 14:00 Friday 9 August, per Sarah Boothby’s tweet

https://twitter.com/user/status/1819678810066895345


“…GP Surgery and both divorced parents). HMC is taking time to reflect on the evidence and refer to relevant inquest law before concluding. Conclusion will be read into the public record at *Devon Coroner's Court 14:00 BST Friday 9 August 2024*.
2/4”

use the same link as listening to the inquest.

Thank you
 
Trial By Error: Whitney Dafoe and Naomi Whittington Reflect on Severe ME and the Inquest into the Death of Maeve Boothby O’Neill

"On Friday, August 9th (tomorrow), Deborah Archer, the coroner who presided over the inquest into the death of Maeve Boothby O’Neill, will issue her findings of fact. Following that, she has tentatively scheduled another day of testimony on September 27th. The testimony during the two-week inquest, held in Exeter, England, UK, revealed starkly that the National Health Service consultants at the Royal Devon and Exeter Hospital had little or no idea what was wrong with Maeve and how to address it. The hope is that Archer will issue a set of tough recommendations to help ensure that such situations no longer occur.

The press coverage was extensive and largely sympathetic. ME Research UK has compiled a helpful compendium of quotes from the nine days of testimony and links to coverage in The Times, The Guardian, BBC, and many other news outlets, with highlights from the first week presented here and the second week here. Some patients have also commented on the events in moving posts of their own."

https://virology.ws/2024/08/08/tria...quest-into-the-death-of-maeve-boothby-oneill/
 
perhaps also @MEMarge might know?
Only from having re-read Bob’s experiences today :emoji_disappointed_relieved:

https://www.s4me.info/threads/bob.1068/page-9#post-176284

I spoke with both Bob's sisters and his Mum, following the funeral and we exchanged a few emails.
I was keen to share what he had gone through with the DHSC and sent a couple of emails to Vicky to ask if they would like to send in an outline of what he had gone through.

I did not hear back, but was able to share a summary, from what he said on here with some info from chats with graham as well.
 
I spoke with both Bob's sisters and his Mum, following the funeral and we exchanged a few emails.
I was keen to share what he had gone through with the DHSC and sent a couple of emails to Vicky to ask if they would like to send in an outline of what he had gone through.

I did not hear back, but was able to share a summary, from what he said on here with some info from chats with graham as well.


Just as we are most of us too sick to fight for ourselves, for most of the time, most bereaved families will be too traumatised by having cared for and lost a loved one under such circumstances to continue any further engagement.

I am scared for parents who do. Will their physical and psychic selves survive such an ordeal.

I’m grateful anyone will put themselves through this.

Nervous. Nearly 2pm.
 
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