Maeve Boothby O'Neill - articles about her life, death and inquest

Trial By Error: Whitney Dafoe and Naomi Whittington Reflect on Severe ME and the Inquest into the Death of Maeve Boothby O’Neill

"On Friday, August 9th (tomorrow), Deborah Archer, the coroner who presided over the inquest into the death of Maeve Boothby O’Neill, will issue her findings of fact. Following that, she has tentatively scheduled another day of testimony on September 27th. The testimony during the two-week inquest, held in Exeter, England, UK, revealed starkly that the National Health Service consultants at the Royal Devon and Exeter Hospital had little or no idea what was wrong with Maeve and how to address it. The hope is that Archer will issue a set of tough recommendations to help ensure that such situations no longer occur.

The press coverage was extensive and largely sympathetic. ME Research UK has compiled a helpful compendium of quotes from the nine days of testimony and links to coverage in The Times, The Guardian, BBC, and many other news outlets, with highlights from the first week presented here and the second week here. Some patients have also commented on the events in moving posts of their own."

https://virology.ws/2024/08/08/tria...quest-into-the-death-of-maeve-boothby-oneill/
 
It's M.E. Linda said:
perhaps also @MEMarge might know?
Only from having re-read Bob’s experiences today :emoji_disappointed_relieved:

https://www.s4me.info/threads/bob.1068/page-9#post-176284
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I spoke with both Bob's sisters and his Mum, following the funeral and we exchanged a few emails.
I was keen to share what he had gone through with the DHSC and sent a couple of emails to Vicky to ask if they would like to send in an outline of what he had gone through.

I did not hear back, but was able to share a summary, from what he said on here with some info from chats with graham as well.
 
MEMarge said:
I spoke with both Bob's sisters and his Mum, following the funeral and we exchanged a few emails.
I was keen to share what he had gone through with the DHSC and sent a couple of emails to Vicky to ask if they would like to send in an outline of what he had gone through.

I did not hear back, but was able to share a summary, from what he said on here with some info from chats with graham as well.
Click to expand...


Just as we are most of us too sick to fight for ourselves, for most of the time, most bereaved families will be too traumatised by having cared for and lost a loved one under such circumstances to continue any further engagement.

I am scared for parents who do. Will their physical and psychic selves survive such an ordeal.

I’m grateful anyone will put themselves through this.

Nervous. Nearly 2pm.
 
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IMG_2991.jpeg Proceedings are not yet underway, usually 15 mins after start time. 197 people online watching.

via Paul R Keeble on X Twitter

coroner will read statement that will be passed to press after

-Lots of discussion about other cases and whether Article 2 [ECHR - right to life] can be engaged or not, sounds like it won’t
 
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We are at the first discharge (March 21) in the Coroners statement.

I can see we will have a lot to discuss later.
Bear in mind the 27 September will be purely looking at whether Prevention of Future Deaths report is required.
 
We are now up to the 2nd admission. {I will add text to this a little later to describe what the tweet says}

Failure to refer to DR Strain and GP at the centre of control they failed to recognise the danger. This could have contributed to Maeve’s decline. Not enough determine it caused her death.

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Dr Roy - was confident she would not survive aspiration
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The Coroner is up to Maeve’s 3rd admission. She’s been reading her findings of fact for around an hour.

[edit at 16.30- Paul Keeble made a correction, we are still on 2nd admission in May]
 
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Nobody on twitter is feeling positive about the statement so far. It’s a detailed review of evidence and the press release etc will probably sum up the facts much better than the tweets could. It’s going over the evidence we’ve all heard.

But we still have the Prevention of Future Deaths hearing on 27 September.

ME Advocates Ireland - as we see it, overarching points
1. NO contingency plan if artificial feeding failed, hospital or community
2. ZERO Severe ME or ME expertise anywhere
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