1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Long Covid in the media and social media 2022

Discussion in 'Long Covid news' started by rvallee, Feb 3, 2022.

Thread Status:
Not open for further replies.
  1. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,279
    Location:
    Norway
    Article about Long Covid in English from Finland. It says treatment is uncoordinated and doctors disagree with each other over what it is.
    YLE Over 21,000 cases of long Covid diagnosed in Finland

    Quote:

    There is, for example, a debate among doctors about whether it is an actual physical disease or more of a functional disorder.

    According to Turku University professor of neurology Risto O. Roine, this may be the main reason why treatment in the public sector is lacking in many places.

    "In Finland, there has been a widespread perception that long Covid is a psychological or functional disorder, and that may have influenced how it is approached. It's possibly been considered that there is no need to develop treatment," he said.

    Roine pointed out that in the light of scientific research it is already known that the mechanisms of long Covid are biological, and viewing it as a functional disorder is not enough to explain the symptoms.
     
    Michelle, sebaaa, mango and 8 others like this.
  2. Andy

    Andy Committee Member

    Messages:
    21,956
    Location:
    Hampshire, UK
    Lilas, sebaaa, alktipping and 8 others like this.
  3. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,464
    Location:
    Canada
    https://twitter.com/user/status/1600217666064592896


    I tried writing something but I don't know how to put so much loss in tweet form. Maybe others will contribute things that will give a starting for more to do the same.
     
    Lilas, sebaaa, EzzieD and 5 others like this.
  4. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    8,328
    obeat, Lilas, RedFox and 2 others like this.
  5. RedFox

    RedFox Senior Member (Voting Rights)

    Messages:
    1,245
    Location:
    Pennsylvania
    Long Covid is distorting the labor market — and that’s bad for the U.S. economy
    https://www.cnbc.com/2022/12/08/lon...-the-labor-market-hurting-the-us-economy.html
    Estimates of how many people are unable to work due to long Covid vary widely. One person they cited calculated 2-4 million (1.8% of the US's labor force, yikes), another just 500,000.

    If the effect on the economy truly is this severe, politicians and scientists are much more likely to listen and take action.
     
  6. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,464
    Location:
    Canada
    https://twitter.com/user/status/1600548451413958656


    It's sad to say that given what they decide to write about first, I don't trust them. They seem to make it about themselves first. There's this:
    But, yeah I don't trust them on that point. Either they won't go there, or they didn't manage to learn much and either option is bad. I hope I'm wrong but I doubt they'll be good for us.
     
    RedFox, Peter Trewhitt and alktipping like this.
  7. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,464
    Location:
    Canada
    Ironically, the main pressure on the economy here would be in the form of rising wages, which is actually a major concern right now (even though wages are far lower than if they had followed inflation). Fewer workers mean employers have to raise wages and court employees in ways they never had before. So this actually benefits a lot of people. Just not rich people.

    Kind of similar to how the black plague basically ended feudalism in Europe, ended up raising wages for those who survived. But the overall impact is still very small. It's on the order or 2-3% of the population, that's a blip.
     
  8. Trish

    Trish Moderator Staff Member

    Messages:
    52,323
    Location:
    UK
    I don't understand your objection. There is clearly a problem that doctors and other health and care workers in the UK were not provided with appropriate PPE and were therefore in unsafe working conditions, and many have lost their jobs as a result of long covid. I think it makes sense for them to form an organisation to campaign for better support.
     
    Wonko, RedFox, Peter Trewhitt and 6 others like this.
  9. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

    Messages:
    1,894
    Ariel, alktipping, rvallee and 6 others like this.
  10. Andy

    Andy Committee Member

    Messages:
    21,956
    Location:
    Hampshire, UK
    From Long Covid Doctors for Action's Twitter bio, "A campaign and advocacy group committed to campaigning for UK doctors with post-acute #Covid complications and better workplace protections".

    Seems a weird objection when their first posts are totally in line with their stated aim.

    And the more they can do of these stated aims;

    "To promote accurate information on the rights of UK doctors with #LongCovid in the workplace and other legal rights."

    "To campaign for workplace protections against airborne SARS-CoV-2 spread."

    "To promote accurate information and education on #LongCovid, and its effects on us and others as individuals."

    the better for all.
     
    Michelle, obeat, alktipping and 4 others like this.
  11. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    3,669
    Amw66, alktipping, Laurie P and 2 others like this.
  12. Laurie P

    Laurie P Senior Member (Voting Rights)

    Messages:
    178
    Location:
    New England, USA
     
    Last edited: Dec 9, 2022
  13. Trish

    Trish Moderator Staff Member

    Messages:
    52,323
    Location:
    UK
  14. anniekim

    anniekim Senior Member (Voting Rights)

    Messages:
    322
    Location:
    UK
    Awful article in the New Republic claiming there is a debate to be had whether ME and now Long covid should be treated using a psycho social approach. Claims there is no evidence exercise harms people with ME and scoffs that ‘would make the condition suspiciously unique in the annals of medical knowledge.’
    Suggests LC and ME are FND. Interviews such luminaries as the dreadful Michael Sharp and Alan Carson. https://newrepublic.com/article/168965/might-long-covid-wrong.

    The author’s husband is a well recognised doctor apparently - Adam Gaffney - who has been anti long covid. He posted the article with gushing praise and switched off after a short while the ability for people to reply. They remind me of a younger version of our darling power couple SW and CG here in the U.K.

    Edited to add - sorry I missed there is a thread on this article.
     
    Last edited: Dec 9, 2022
    Michelle, Ariel, bobbler and 6 others like this.
  15. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,464
    Location:
    Canada
    I'm not objecting. I just assume this will be bad for us, based on messaging and precedent.

    Hoping I'm wrong about it, but the pattern so far doesn't support that, unfortunately.
     
  16. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    8,328
  17. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,464
    Location:
    Canada
    Not sure if it will be LC only, but new advocacy account with awareness videos, by a biomedical engineer.
    https://twitter.com/user/status/1601623662305546242


    Video:

    https://www.youtube.com/watch?v=S_OJEO5uLLY


     
    sebaaa, EzzieD, SNT Gatchaman and 3 others like this.
  18. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,926
    Location:
    Aotearoa New Zealand
    Peter Trewhitt and Trish like this.
  19. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    585
    Location:
    Adelaide, Australia
    A story about LC in children.

    As is usual, Australian doctors are downplaying the risk:

     
    Last edited: Dec 11, 2022
    Michelle, Lilas, sebaaa and 11 others like this.
  20. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    585
    Location:
    Adelaide, Australia
    Given the ignorant and problematic comments made by these doctors to the Senate Inquiry into LC, patients are probably lucky that they can't access these LC Clinics:

     
    Last edited: Dec 11, 2022
    Michelle, Lilas, alktipping and 9 others like this.
Thread Status:
Not open for further replies.

Share This Page