USA: Long Covid clinics - general discussion

A long article with a good focus on ME/CFS and interviews Lucinda Bateman and Jaime Seltzer:

 

I've observed a trend towards increasing use of ME, and it's continuing:

They want to set up Centers of Excellence for long Covid:

Due to the lack of treatments, the main benefit will be not harming patients with CBT/GET. I hope this gets expanded to ME/CFS, as getting specialist care is basically impossible.

 

Merged
Title : What patients find at long COVID clinics: rejection, outdated therapies, and unanswered questions

Subtitle : Roughly 16 million Americans are living with long COVID, but many are not getting the right medical care. One way to improve the system is by letting patients lead.

Author : Miles W. Griffis

Link : https://www.popsci.com/health/long-covid-care-chronic-illness/?utm_source=pocket-newtab-global-en-GB

Published : 5 Dec 2022

This summer, the US Census Bureau reported that close to 16 million American adults are living with long COVID, a debilitating condition that lasts at least four weeks beyond an initial coronavirus infection and affects multiple organ systems. It has been observed in all age groups, and has placed stress on the US healthcare model that relies on short doctor’s visits. Even though high-demand clinics, sometimes called post-COVID care centers, now offer services for the illness, many fail the very patients they have set out to help. Long COVID patients share anecdotes about how the clinics they are admitted to often turn a blind eye to the gravity of their needs and fail to incorporate knowledge learned from myalgic encephalomyelitis, or ME, and other infection-associated illnesses.

Well worth reading, in my opinion. Has many mentions of ME, PEM, how GET is damaging, ...