I wish it were so. My more cynical view would be that it will not. Those who try to keep up with science will think 'nothing much nailed then'. Those who do not may well take the message as:
"Remember those ivory tower academic colleagues of yours that you thought were attention seeking or just plain nuts?"
"Well, they're still around."
!!
Hehe. Like the frankness and your valuable sort of devils advocate perspective on different matters. Not referring to Komaroff in particular, but more in general, it clearly is a problem when overselling findings and results. To some extent that may also be a problem on the biomedical side also, but it’s surely a tenfold on the BPS-side. There are exceptions, but as a main rule, I find the researchers on the biomedical side to be somewhat more sober when presenting. But at this point in time it is counterproductive to say this is how it is, this is what pwme are.
I like that sort of sober list. Could probably add another few points to.
In hindsight of history, it is not at all strange that patients and researchers speak and presents like they do, as trying to weigh in on all the psycobabble. Knowing the history, it would be unwise not to understand and accept that patients and advocates do what they do, but if it is strategic is a different question. It is probably so muddled, patients and organizations so desperate that there are little room for strategy.
Except from a whole lot of more money, that from what we know from medical history and basic common sense, would increase the chance of substantial progress significantly, I guess we have to keep pushing on the science and non-science, the lack of methodology. Getting doctors and others outside to take a closer look at the “truth”.
Without money, little progress. We claim to hope, but it’s a bit frustrating hearing now it is happening, now it is happening, the next five years, next two years and so on. The fact is nothing or very little will happen before funding. And unfortunately, no one can say in a convincing way, that this is the pathology of ME, this is what we found and know.
Guess I’ll have to put this negative on the account of what Kyle McNease calls “Rat Bastard Monday”.
https://www.healthrising.org/blog/2...-of-all-part-iii-didnt-life-know-i-had-plans/