Well, if they want a community email, maybe we should give them one. Maybe we ask @dave30th to write a short letter, noting the harm that the ongoing existence of the old review is causing, and we get individuals and ME/CFS organisations to sign it? I don't know, @Medfeb, what do you suggest we do that might have any hope of achieving some useful progress? Surely 'the community' deserves to be told on whose desk the draft protocol is sitting? You and I both have sons affected by ME/CFS; I know you feel as determined as I am to make things better for young people with this damn disease before they are better described as old people. Could some of the patient representatives on the IAG tell us what is going on, or do they not have any idea? I mean, if one or two of them stuck their head above the parapet and actually communicated with 'the community', what's the worst that could happen?