Heavily redacted internal communication about ME/CFS between ministries in Germany has been obtained by nichtgenesen.org

Chandelier

Chandelier

Senior Member (Voting Rights)

577 pages from the Ministry of Research — with extensive redactions. We are publishing the documents for the first time today and continue working to make the contents fully accessible. Even now it is clear: In the responsible Life Sciences department there were years of delays and obstructions. In the link you’ll find, further down (scroll to January 28), three ZIP files containing the complete documents.
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Translation from image above:

FROM THE MINISTRY OF RESEARCH
WITH EXTENSIVE REDACTIONS.
We are publishing the documents for the first time today and continue working to make the contents fully accessible.
Even now it is becoming clear:
In the responsible Life Sciences department there were years of delays
and blockages. In the link you’ll find, further down, three ZIP files with the complete documents.
Click to expand...


@NichtGenesen
Apr 24

577 Seiten aus dem Forschungsministerium – mit umfangreichen Schwärzungen. Wir veröffentlichen die Unterlagen heute erstmals und arbeiten weiter daran, die Inhalte vollständig zugänglich zu machen.Schon jetzt wird sichtbar: In der zuständigen Abteilung Lebenswissenschaften kam es über Jahre hinweg zu Verzögerungen und Blockaden.Im Link findet ihr im Verlauf (nach unten zum 28. Januar scrollen) drei ZIP-Dateien mit den vollständigen Unterlagen.fragdenstaat.de/anfrage/anfr…@bmftr_bund

@dave30th might be of interest to you.
 
A lot of delays can be generic government incompetence/maliciousness - for example it took 2 years for my care stipend to even get looked at, which means they had no idea why I was requesting it before that point.

This is the consequence of laying off a third of the employees responsible handling these requests. Yes it does hurt disabled people a lot but it isn't specifically targeted against PwME.
 
dave30th said:
What are these files exactly? Who is releasing them?
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A freedom of information request to the Department of Life Sciences in the Ministry of Research asked for Long Covid and ME/CFS correspondence within the department. "577 pages from the Ministry of Research — with extensive redactions. We are publishing the documents for the first time today and continue working to make the contents fully accessible. Even now it is clear: In the responsible Life Sciences department there were years of delays and obstructions."
Tweet | FOI request and response
 
(Requests all correspondence in relation to Long Covid and ME/CFS between head of Life Sciences department of the Ministry and her Permanent Representative (not sure whether that's the correct term) and/or the Minister since late 2024.)
 
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