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German ME/CFS Association monthly updates

Discussion in 'General ME/CFS News' started by Andy, Dec 2, 2017.

  1. Andy

    Andy Committee Member

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    Read more at https://www.mecfs.de/mecfs-update-112017/
     
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  2. TiredSam

    TiredSam Moderator Staff Member

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  3. Andy

    Andy Committee Member

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    https://www.mecfs.de/me-cfs-update-01-2018/
     
  4. Andy

    Andy Committee Member

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    Question to our German speakers - is it more correct to call them the German ME/CFS Association or, as Google Translate reckons, German Society for ME/CFS?
     
  5. Joh

    Joh Senior Member (Voting Rights)

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    Hi @Andy, you're so fast and I am so upload_2018-1-10_10-11-11.png ! Thanks for creating this thread and thanks for posting the ME/CFS-Updates! I was going to but ---> see above. We were just talking to each other in the Facebook comments of the German Association, (I wrote as German Association). :)

    The official English name is "German Association of ME/CFS".
     
  6. Andy

    Andy Committee Member

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    Lol. No problems. You've probably seen already but I also shared it on the S4ME Facebook page as well.

    And in regard to the name, would it not be "German Association for ME/CFS", rather than "German Association of ME/CFS"? Or at the very least, "for" would be more correct in English than "of".
     
  7. Joh

    Joh Senior Member (Voting Rights)

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    Thanks for sharing, Andy! Science for ME and the German Association are really a perfect fit, the approach of the German Association is strictly evidence-based and biomedical. :)

    That's good to know, thanks! It's what our new English signature in the official email-address says at the moment. I will let them know.
     
  8. Joh

    Joh Senior Member (Voting Rights)

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    Last edited: Jan 10, 2018
  9. Perrier

    Perrier Established Member (Voting Rights)

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    thanks for posting
     
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  10. Joh

    Joh Senior Member (Voting Rights)

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    The German Association published my German translation of Ron David's video update today. It's a transcript because the OMF hasn't added the option to add subtitles in their videos so far (I will ask again and hope this might change). The video update is old news around here but with translations we always live a little in the past. :)

    https://www.mecfs.de/deutsche-ueber...rschungszentrum-an-der-universitaet-stanford/
     
  11. Joh

    Joh Senior Member (Voting Rights)

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  12. Joh

    Joh Senior Member (Voting Rights)

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    @Keela Too, the German ME/CFS-Update I linked to above includes a link to your blog (the part about NICE).
     
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  13. Joh

    Joh Senior Member (Voting Rights)

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  14. Joh

    Joh Senior Member (Voting Rights)

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    Not the monthly update, but a great new page on the website with six graphs about ME/CFS numbers. We have no official numbers in Germany, so one team member put a lot of work into checking databases and calculating and made two (I think?) of the graphs on German numbers.

    https://www.mecfs.de/daten-fakten/
     
    Last edited: Apr 28, 2018
  15. Inara

    Inara Senior Member (Voting Rights)

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    I like these graphs - very well done, very clear and concise.
     
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  16. Joh

    Joh Senior Member (Voting Rights)

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    Last edited: May 6, 2018
  17. Joh

    Joh Senior Member (Voting Rights)

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  18. Joh

    Joh Senior Member (Voting Rights)

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    Sebastian (board member) and Laura (an awesome volunteer) of the German Association for ME/CFS at the Invest in ME Conference.

     
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  19. Joh

    Joh Senior Member (Voting Rights)

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    ETA:
     
    Last edited: Jun 1, 2018
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  20. Joh

    Joh Senior Member (Voting Rights)

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    Newly uploaded on Youtube #MillionsMissing Berlin videos. Two talks from the board members of the German Association (in German).

    Daniel's talk:


    Sebastian's talk:
     
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