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German ME/CFS Association monthly updates

Discussion in 'General ME/CFS News' started by Andy, Dec 2, 2017.

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  1. Andy

    Andy Committee Member & Outreach

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    Read more at https://www.mecfs.de/mecfs-update-112017/
     
    Andy, Dec 2, 2017
    #1
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  2. TiredSam

    TiredSam Moderator Staff Member

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    Danke.
     
    TiredSam, Dec 2, 2017
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  3. Andy

    Andy Committee Member & Outreach

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    https://www.mecfs.de/me-cfs-update-01-2018/
     
    Andy, Jan 10, 2018
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  4. Andy

    Andy Committee Member & Outreach

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    Question to our German speakers - is it more correct to call them the German ME/CFS Association or, as Google Translate reckons, German Society for ME/CFS?
     
    Andy, Jan 10, 2018
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  5. Joh

    Joh Senior Member (Voting Rights)

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    Hi @Andy, you're so fast and I am so upload_2018-1-10_10-11-11.png ! Thanks for creating this thread and thanks for posting the ME/CFS-Updates! I was going to but ---> see above. We were just talking to each other in the Facebook comments of the German Association, (I wrote as German Association). :)

    The official English name is "German Association of ME/CFS".
     
    Joh, Jan 10, 2018
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  6. Andy

    Andy Committee Member & Outreach

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    Lol. No problems. You've probably seen already but I also shared it on the S4ME Facebook page as well.

    And in regard to the name, would it not be "German Association for ME/CFS", rather than "German Association of ME/CFS"? Or at the very least, "for" would be more correct in English than "of".
     
    Andy, Jan 10, 2018
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  7. Joh

    Joh Senior Member (Voting Rights)

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    Thanks for sharing, Andy! Science for ME and the German Association are really a perfect fit, the approach of the German Association is strictly evidence-based and biomedical. :)

    That's good to know, thanks! It's what our new English signature in the official email-address says at the moment. I will let them know.
     
    Joh, Jan 10, 2018
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  8. Joh

    Joh Senior Member (Voting Rights)

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    Last edited: Jan 10, 2018
    Joh, Jan 10, 2018
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  9. Perrier

    Perrier Senior Member (Voting Rights)

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    thanks for posting
     
    Perrier, Jan 10, 2018
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  10. Joh

    Joh Senior Member (Voting Rights)

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    The German Association published my German translation of Ron David's video update today. It's a transcript because the OMF hasn't added the option to add subtitles in their videos so far (I will ask again and hope this might change). The video update is old news around here but with translations we always live a little in the past. :)

    https://www.mecfs.de/deutsche-ueber...rschungszentrum-an-der-universitaet-stanford/
     
    Joh, Jan 29, 2018
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  11. Joh

    Joh Senior Member (Voting Rights)

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    Joh, Feb 27, 2018
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  12. Joh

    Joh Senior Member (Voting Rights)

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    @Keela Too, the German ME/CFS-Update I linked to above includes a link to your blog (the part about NICE).
     
    Joh, Feb 27, 2018
    #12
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  13. Joh

    Joh Senior Member (Voting Rights)

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    Joh, Apr 4, 2018
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  14. Joh

    Joh Senior Member (Voting Rights)

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    Not the monthly update, but a great new page on the website with six graphs about ME/CFS numbers. We have no official numbers in Germany, so one team member put a lot of work into checking databases and calculating and made two (I think?) of the graphs on German numbers.

    https://www.mecfs.de/daten-fakten/
     
    Last edited: Apr 28, 2018
    Joh, Apr 28, 2018
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  15. Inara

    Inara Senior Member (Voting Rights)

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    I like these graphs - very well done, very clear and concise.
     
    Inara, Apr 29, 2018
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  16. Joh

    Joh Senior Member (Voting Rights)

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    Last edited: May 6, 2018
    Joh, May 6, 2018
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  17. Joh

    Joh Senior Member (Voting Rights)

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    Joh, May 20, 2018
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  18. Joh

    Joh Senior Member (Voting Rights)

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    Sebastian (board member) and Laura (an awesome volunteer) of the German Association for ME/CFS at the Invest in ME Conference.

     
    Joh, Jun 1, 2018
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  19. Joh

    Joh Senior Member (Voting Rights)

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    ETA:
     
    Last edited: Jun 1, 2018
    Joh, Jun 1, 2018
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  20. Joh

    Joh Senior Member (Voting Rights)

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    Newly uploaded on Youtube #MillionsMissing Berlin videos. Two talks from the board members of the German Association (in German).

    Daniel's talk:


    Sebastian's talk:
     
    Joh, Jun 3, 2018
    #20
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