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Fatigatio digital symposium in Hannover, 19 September 2020

Discussion in 'General Advocacy Discussions' started by ME/CFS Skeptic, Aug 25, 2020.

  1. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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  2. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    Stingl is probably a new name for many. He is a neurologist who started taking an interest in ME/CFS a few years ago and he has already seen 500 patients. He practices in Austria.
     
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  3. NelliePledge

    NelliePledge Moderator Staff Member

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    Hope it goes well I see there’s a State level politician due to take part as well which seems positive.
     
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  4. Lisa108

    Lisa108 Senior Member (Voting Rights)

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    Time zone for Germany is CEST (UTC+2)
    Time zone converter: https://www.timeanddate.com/worldclock/converter.html (you can insert Berlin, Germany as a starting point)

    For full programm see flyer attached (page 2)
     

    Attached Files:

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  5. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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  6. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    Is Prusty saying that ME/CFS patients have anti-C1q antibodies?
     
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  7. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Fatigatio announced that the videos will also be posted on youtube.

    Hope someone will be able to reply -- if this is possible from the tweeted snippets.

    (I didn't listen and don't have the expertise to gauge the content anyway.)
     
    Last edited: Sep 21, 2020
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  8. sebaaa

    sebaaa Established Member (Voting Rights)

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    Yes, I watched the whole thing. Prusty essentially narrowed down the "something in the blood," which causes excess mitochondrial fragmentation in healthy cells, to 3 different molecules: autoantibodies (e.g. IgG), anti-C1q antibodies, and exosomes containing viral mRNA and proteins. He also mentioned a joint collaboration with Naviaux, and showed some preliminary data about Covid-19 causing viral reactivation which may explain the sympotms in LongCovid.
     
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  9. Philipp

    Philipp Senior Member (Voting Rights)

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    Does anybody know why Prusty's talk is unavailable on youtube? It was the one I really wanted to rewatch because It was way over my head...

    Both Scheibenbogen and Prusty touched on problems with IgG in some pwME and iirc there were a couple small & inconclusive studies from years ago on treatment with exogenous IgG. Is it plausible that this may be a sensible thing to try on at least those patients who qualify down the line?
     
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  10. Ravn

    Ravn Senior Member (Voting Rights)

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