1. Guest, the 'News in Brief' for the week beginning 19th September 2022 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Fatigatio digital symposium in Hannover, 19 September 2020

Discussion in 'General Advocacy Discussions' started by ME/CFS Skeptic, Aug 25, 2020.

  1. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

    Messages:
    2,990
    Location:
    Belgium
    Andy, Milo, mango and 20 others like this.
  2. strategist

    strategist Senior Member (Voting Rights)

    Messages:
    4,504
    Stingl is probably a new name for many. He is a neurologist who started taking an interest in ME/CFS a few years ago and he has already seen 500 patients. He practices in Austria.
     
    Andy, Leila, MSEsperanza and 13 others like this.
  3. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    10,237
    Location:
    UK West Midlands
    Hope it goes well I see there’s a State level politician due to take part as well which seems positive.
     
    Andy, Leila, MSEsperanza and 7 others like this.
  4. Lisa108

    Lisa108 Senior Member (Voting Rights)

    Messages:
    665
    Location:
    Germany
    Time zone for Germany is CEST (UTC+2)
    Time zone converter: https://www.timeanddate.com/worldclock/converter.html (you can insert Berlin, Germany as a starting point)

    For full programm see flyer attached (page 2)
     

    Attached Files:

    sebaaa, Leila, andypants and 7 others like this.
  5. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
    2,392
    Location:
    betwixt and between
    Dolphin, sebaaa, Amw66 and 6 others like this.
  6. strategist

    strategist Senior Member (Voting Rights)

    Messages:
    4,504
    Is Prusty saying that ME/CFS patients have anti-C1q antibodies?
     
    sebaaa and MSEsperanza like this.
  7. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
    2,392
    Location:
    betwixt and between
    Fatigatio announced that the videos will also be posted on youtube.

    Hope someone will be able to reply -- if this is possible from the tweeted snippets.

    (I didn't listen and don't have the expertise to gauge the content anyway.)
     
    Last edited: Sep 21, 2020
    Andy, Dolphin, sebaaa and 2 others like this.
  8. sebaaa

    sebaaa Established Member (Voting Rights)

    Messages:
    26
    Yes, I watched the whole thing. Prusty essentially narrowed down the "something in the blood," which causes excess mitochondrial fragmentation in healthy cells, to 3 different molecules: autoantibodies (e.g. IgG), anti-C1q antibodies, and exosomes containing viral mRNA and proteins. He also mentioned a joint collaboration with Naviaux, and showed some preliminary data about Covid-19 causing viral reactivation which may explain the sympotms in LongCovid.
     
    Theo, Andy, biberzahn and 11 others like this.
  9. Philipp

    Philipp Senior Member (Voting Rights)

    Messages:
    222
    Does anybody know why Prusty's talk is unavailable on youtube? It was the one I really wanted to rewatch because It was way over my head...

    Both Scheibenbogen and Prusty touched on problems with IgG in some pwME and iirc there were a couple small & inconclusive studies from years ago on treatment with exogenous IgG. Is it plausible that this may be a sensible thing to try on at least those patients who qualify down the line?
     
    sebaaa likes this.
  10. Ravn

    Ravn Senior Member (Voting Rights)

    Messages:
    1,697
    Location:
    Aotearoa New Zealand
    Dolphin, sebaaa, Dakota15 and 4 others like this.

Share This Page