Fatigatio digital symposium in Hannover, 19 September 2020

The German ME/CFS organization Fatigatio is organizing a (digital) symposium in Hannover on 19 September 2020. Speakers include Michael Stingl, Carmen Scheibenbogen, Jonas Bergquist, and Bhupesh K. Prusty.

More information here: https://www.fatigatio.de/mecfs-fachtagung-2020-des-fatigatio-ev/

 

Stingl is probably a new name for many. He is a neurologist who started taking an interest in ME/CFS a few years ago and he has already seen 500 patients. He practices in Austria.

 

Time zone for Germany is CEST (UTC+2)
Time zone converter: https://www.timeanddate.com/worldclock/converter.html (you can insert Berlin, Germany as a starting point)

For full programm see flyer attached (page 2)

 

Someone twittered a bit on Prusty's talk:

https://twitter.com/user/status/1307342455289847809

Code:

https://twitter.com/DrUte_ME/status/1307342455289847809

 

Is Prusty saying that ME/CFS patients have anti-C1q antibodies?

 

Fatigatio announced that the videos will also be posted on youtube.

Hope someone will be able to reply -- if this is possible from the tweeted snippets.

(I didn't listen and don't have the expertise to gauge the content anyway.)

 

Yes, I watched the whole thing. Prusty essentially narrowed down the "something in the blood," which causes excess mitochondrial fragmentation in healthy cells, to 3 different molecules: autoantibodies (e.g. IgG), anti-C1q antibodies, and exosomes containing viral mRNA and proteins. He also mentioned a joint collaboration with Naviaux, and showed some preliminary data about Covid-19 causing viral reactivation which may explain the sympotms in LongCovid.

 

Does anybody know why Prusty's talk is unavailable on youtube? It was the one I really wanted to rewatch because It was way over my head...

Both Scheibenbogen and Prusty touched on problems with IgG in some pwME and iirc there were a couple small & inconclusive studies from years ago on treatment with exogenous IgG. Is it plausible that this may be a sensible thing to try on at least those patients who qualify down the line?

 

Videos have been posted (most are in German, some of the English ones have a German voice-over, at least at the start, haven't watched any through):
https://www.youtube.com/channel/UC8eFBrwILKRmbLgvtVxXAFg

Prusty's is here (English):

https://www.youtube.com/watch?v=iTkVcWvwtZ0