1. The 'News In Brief' post for w/c 8th October is now available Guest, click here.
    Dismiss Notice

Excellent radio Bristol Sonya chowdhury interview

Discussion in 'General Advocacy Discussions' started by Cinders66, Mar 16, 2018.

  1. Cinders66

    Cinders66 Senior Member (Voting Rights)

    Messages:
    425
    Likes Received:
    2,703
    https://www.bbc.co.uk/programmes/p05y3tpw

    2:11 in.

    Very good interview from knowledgeable, sympathetic interviewer and great interview by SC who I usually think is weak, not today. Covers numbers, why not better recognised /funded and cared for, how Sonya became AFME CEO and her son getting ill and impact. Calls for more recognition and injection of money for research and says public health scandal. I'd like to have seen this since 2013 but much more impressed. John was excellent too.
     
  2. dangermouse

    dangermouse Senior Member (Voting Rights)

    Messages:
    204
    Likes Received:
    1,731
    So, I’ve managed to listen to the interview with Sonya...it was really good!
     
  3. Andy

    Andy Committee Member

    Messages:
    3,805
    Likes Received:
    28,658
    Location:
    Hampshire, UK
    Actually 2:11:00 in.
     
  4. Cinders66

    Cinders66 Senior Member (Voting Rights)

    Messages:
    425
    Likes Received:
    2,703
    Thank you. I thought it looked wrong!
     
    MEMarge, Barry, Melanie and 3 others like this.
  5. Trish

    Trish Moderator Staff Member

    Messages:
    7,008
    Likes Received:
    41,677
    Location:
    UK
    I make it 2:10:11
    But who's counting ;)

    I agree it was a good interview.
     
    Last edited: Mar 16, 2018
  6. Melanie

    Melanie Senior Member (Voting Rights)

    Messages:
    439
    Likes Received:
    2,313
  7. Melanie

    Melanie Senior Member (Voting Rights)

    Messages:
    439
    Likes Received:
    2,313
    I noticed that she is better at getting the correct message out ever since the disease got a strong grip on her kid. She is now facing its realities and is putting out a correct message as opposed to when her son first became ill and she still couldn't get the messaging straight as it hadn't pulled her child into its pits yet. I think I remember her saying that her kid could still play sports and get to some classes and she wasn't understanding herself that her son should not be back at school and play sports. I am pretty sure he had already been diagnosed with CFS and already past PVFS diagnosis when he was back in school and playing sports.
     
    MEMarge, Webdog, dangermouse and 4 others like this.
  8. Seven

    Seven Senior Member (Voting Rights)

    Messages:
    108
    Likes Received:
    406
    I like she used the word “scandal” they have to keep using this word on all the interviews.
    To be honest we need a few more things on each interview specially in the lack of support of family members, government and doctors we need some buzz words for them.
     
  9. JemPD

    JemPD Senior Member (Voting Rights)

    Messages:
    268
    Likes Received:
    2,388
    Well that was an excellent interview. Very well done to SC, professional, real, succinct, direct & i particularly liked the emphatic tone. very good thank you.

    Thank you also to John Darvall, very well conducted interview
     
  10. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    1,060
    Likes Received:
    6,726
    Location:
    Cornwall, UK
    For those wanting to know, it finishes at 2:32:55.
     
    MEMarge, dangermouse and Melanie like this.
  11. Skycloud

    Skycloud Senior Member (Voting Rights)

    Messages:
    1,113
    Likes Received:
    8,448
    Location:
    UK
    I agree, it was good.

    More generally, I do wish that very severely ME/CFS would be mentioned in the media. The public, and the medical and care professions, need to know that it can be that serious in some cases.
     
    Jan, MEMarge, Webdog and 9 others like this.
  12. Action for M.E.

    Action for M.E. Established Member (Voting Rights)

    Messages:
    34
    Likes Received:
    297
    Thank you for your feedback on this interview, which I've shared with Sonya. I agree that the phrase "public health scandal" is effective and we will add this to the key messages we share about M.E. and its impact.

    Clare Ogden
    Head of Communications and Engagement
    Action for M.E.
     
    Hutan, Jan, Barry and 13 others like this.
  13. Awol

    Awol Senior Member (Voting Rights)

    Messages:
    219
    Likes Received:
    1,622
    "Echoing the subtitle of the book Science, Politics .......and ME -a health scandal in our generation by Dr Ian Gibson and Elaine Sherriffs - Carol Monaghan described this trial as one of the biggest medical scandals of the 21st century." http://www.investinme.org/IIMER-Newslet-1802-02.shtml
     
  14. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    1,550
    Likes Received:
    11,159
    Location:
    UK East Midlands
    The only thing that’s new about the use of scandal is that AFME have discovered it.

    it shows they’ve picked up that the wind is blowing in a different direction.......
     
    Moosie, Webdog, Barry and 1 other person like this.
  15. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

    Messages:
    1,538
    Likes Received:
    10,762
    Location:
    UK
    Long may it blow that way
     
    Moosie, Rosie, Hutan and 3 others like this.
  16. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    2,993
    Likes Received:
    19,631
    Yep, that snowball effect again. The more people and organisations see the tide of opinion changing, the more they're are jumping on board. The more it changes, the faster it changes. I think a lot of the BPS'ites are in half-a-crown-sixpence mode.
     
    Last edited: Mar 24, 2018
    dangermouse likes this.
  17. Cinders66

    Cinders66 Senior Member (Voting Rights)

    Messages:
    425
    Likes Received:
    2,703
    It's good to be Using more forthright language given the terrible impact the neglect is having. This forthrightness and powerful advocacy has to extend to where it really punches eg when you have meetings with NICE, MRC , DoH etc. Eg at the CMRC conference, when there was an hour discussing why the ME field was unattractive and not progressing, no one from the charities spoke up on anything and even when Hugh parry started blaming hostile patients in the style of wessely & esther only MERUK countered it at all.
     
  18. Skycloud

    Skycloud Senior Member (Voting Rights)

    Messages:
    1,113
    Likes Received:
    8,448
    Location:
    UK
    What does this mean, Barry? :confused:
     
    Barry likes this.
  19. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    2,993
    Likes Received:
    19,631
    T'is slightly rude. Cannot recall when I first encountered the term, but was a long time back. Relates to someone getting cold feet, and a certain sphincter getting a bit twitchy. A half-crown was a coin of quite large diameter, whereas a sixpence was of quite small diameter ...
     
    Skycloud likes this.
  20. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    4,266
    Likes Received:
    19,956
    Still none the wiser. Can you explain it a bit more clearly?
     

Share This Page