https://www.bbc.co.uk/programmes/p05y3tpw 2:11 in. Very good interview from knowledgeable, sympathetic interviewer and great interview by SC who I usually think is weak, not today. Covers numbers, why not better recognised /funded and cared for, how Sonya became AFME CEO and her son getting ill and impact. Calls for more recognition and injection of money for research and says public health scandal. I'd like to have seen this since 2013 but much more impressed. John was excellent too.