Do graded activity therapies cause harm in chronic fatigue syndrome? (Kindlon, 2017)

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Tom Kindlon, Mar 20, 2019.

  1. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,293
    It's the 2-year anniversary of this open access paper of mine, so I'm giving it a plug in a few places.

    It could be useful if there is any suggestion that somebody should be coerced into doing graded activity or exercise programmes; also to counter claims that the PACE Trial showed graded activity programs are safe.

    The word limit for the abstract was 100 words, so I couldn't say as much as I would have liked.

    I would have liked to have mentioned the PACE trial in the title as a lot of the focus was the harms reporting in the PACE Trial but the journal's editor wanted something shorter.

    https://journals.sagepub.com/doi/full/10.1177/1359105317697323


     
    Deanne NZ, bobbler, Wonko and 29 others like this.
  2. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,293
  3. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    All those papers were two years ago? That's such a long time. Progress since then feels so slow!

    Thanks for all your work. This was a really useful paper on a difficult topic.
     
  4. Dechi

    Dechi Senior Member (Voting Rights)

    Messages:
    552
    Thank you for doing such amazing work and not giving up !
     
  5. Obermann

    Obermann Senior Member (Voting Rights)

    Messages:
    130
    Location:
    Stockholm
    Solid and scientifically sound criticism of the reporting of harm in GET trials. As always, it is a pleasure to read your papers, Tom! :thumbup:
     
    Wonko, Invisible Woman, Sean and 10 others like this.
  6. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,293
  7. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,293
  8. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    10,280
    I have actually used the original paper when someone was considering recommending GET for me. I think they felt I had little to lose by trying it but the paper made them think again.

    Thank you @Tom Kindlon :thumbup:
     
    Wonko, lycaena, MEMarge and 6 others like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    10,239
    Location:
    UK
    maybe someone could enlighten the author of this blog:
    Code:
    https://medium.com/@djsan77/6-long-term-negative-effects-of-lack-of-physical-activity-b4970374d40b
     
    Wonko, Simbindi and Invisible Woman like this.
  10. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,293
    Not sure if I have said this much but this was written for the PACE Trial special issue. The original title had the PACE Trial in it because that is what it focuses on but then the editor asked me to shorten it. If I was writing something from scratch on “Do graded activity therapies cause harm in chronic fatigue syndrome?” I would have written something more general.
     
    Last edited: Mar 9, 2025

Share This Page