Dianna Cowern, Physics Girl, fundraiser 2024 and other news

[Utsikt]

I can’t help but feel jealous watching Diana get better… Why her and not me? Is it the money and trying a bunch of random treatments? Is it not having to crash yourself fighting the system because you can afford doctors who understand? Is it just plain luck?

She has around the clock care and can avoid PEM. She’s probably also lucky.

She might have responded to some treatments, but that’s just speculation and n=1.

Suffering and effort isn’t enough for most people, you need to be in the right circumstances as well.

 

[Snow Leopard]

Standing up for the first time in 2 years is still a long way from remission. It could simply be natural recovery.

 

[poetinsf]

I'm impressed with her progress. I didn't see sluggishness in her motion or lethargy in her expression, and she's in good humor. Best wishes for her.

[edit: deleted/edited "diagnostic" portions]

 

[Trish]

Edit: Responding to an edited post

We should be wary of diagnosing someone's state of health on how they look on a short video clip. Many of us can look well when very ill. Think of how many of us are disbelieved by colleagues, clinicians, friends, even family we live with on the grounds that we don't look sick. No way should we assume someone is 'just deconditioned' or 'recovered'.

I'm pleased for her she's made some improvement.

 

[poetinsf]

We should be wary of diagnosing someone's state of health on how they look on a short video clip.

Noted. I was impressed on her progress, but I can see it being diagnosis. The point taken.

 

[RedFox]

I feel quite sad for her, seeing the awful state she was in last year (and is still in). I'm glad to see she's getting a little better. We should also be grateful of the amount of energy she's expended to remain in the public eye as an activist through all of it.

 

[Utsikt]

I feel quite sad for her, seeing the awful state she was in last year (and is still in). I'm glad to see she's getting a little better. We should also be grateful of the amount of energy she's expended to remain in the public eye as an activist through all of it.

I just pray and hope that she doesn’t become one of the «I know how to recover from ME/CFS» people if she ends up being one of the lucky ones. It can happen to the best.

 

[forestglip]

Update from Dianna. Very moving video. She's doing a lot better, though still far from fully recovered. She describes the the suffering of another person with severe ME/CFS that she's gotten close to, Tobias in Germany. GoFundMe describing Tobias's situation.

 

[wigglethemouse]

Update from Dianna. Very moving video.

I normally skip this type of video as it's too much for me. Very moving and well done. Thanks for sharing.

 

[Utsikt]

It’s surreal to hear people I followed long before I got sick, talk so compassionately about my illness.

 

[Snow Leopard]

Glad she's doing a bit better but so many of the comments she receives are as if she's recovered, when she's far from that.

 

[Wyva]

Glad she's doing a bit better but so many of the comments she receives are as if she's recovered, when she's far from that.

I have even seen a (probably now deleted) Reddit thread accusing her of taking donations and then not sharing with the public what she did to recover. That really rubbed me the wrong way, even though I understand how devastating living with this disease is.

 

[Utsikt]

I have even seen a (probably now deleted) Reddit thread accusing her of taking donations and then not sharing with the public what she did to recover. That really rubbed me the wrong way, even though I understand how devastating living with this disease is.

If someone got the impression that they could pay for her to experiment on herself to their advantage, they have seriously misread the room..