Dianna Cowern, Physics Girl, fundraiser 2024 and other news

Yann04 said:
I can’t help but feel jealous watching Diana get better… Why her and not me? Is it the money and trying a bunch of random treatments? Is it not having to crash yourself fighting the system because you can afford doctors who understand? Is it just plain luck?
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She has around the clock care and can avoid PEM. She’s probably also lucky.

She might have responded to some treatments, but that’s just speculation and n=1.

Suffering and effort isn’t enough for most people, you need to be in the right circumstances as well.
 
Edit: Responding to an edited post

We should be wary of diagnosing someone's state of health on how they look on a short video clip. Many of us can look well when very ill. Think of how many of us are disbelieved by colleagues, clinicians, friends, even family we live with on the grounds that we don't look sick. No way should we assume someone is 'just deconditioned' or 'recovered'.

I'm pleased for her she's made some improvement.
 
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I feel quite sad for her, seeing the awful state she was in last year (and is still in). I'm glad to see she's getting a little better. We should also be grateful of the amount of energy she's expended to remain in the public eye as an activist through all of it.
 
RedFox said:
I feel quite sad for her, seeing the awful state she was in last year (and is still in). I'm glad to see she's getting a little better. We should also be grateful of the amount of energy she's expended to remain in the public eye as an activist through all of it.
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I just pray and hope that she doesn’t become one of the «I know how to recover from ME/CFS» people if she ends up being one of the lucky ones. It can happen to the best.
 
Snow Leopard said:
Glad she's doing a bit better but so many of the comments she receives are as if she's recovered, when she's far from that.
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I have even seen a (probably now deleted) Reddit thread accusing her of taking donations and then not sharing with the public what she did to recover. That really rubbed me the wrong way, even though I understand how devastating living with this disease is.
 
Wyva said:
I have even seen a (probably now deleted) Reddit thread accusing her of taking donations and then not sharing with the public what she did to recover. That really rubbed me the wrong way, even though I understand how devastating living with this disease is.
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If someone got the impression that they could pay for her to experiment on herself to their advantage, they have seriously misread the room..
 
She might want to be careful what she posts on social media. Insurance companies monitor people receiving disability benefits, if they see pictures of you walking on a beach enjoying the sunshine they will assume you are healthy again and cut your benefits. This happened to a woman in Canada who suffered from depression and posted a picture of herself walking on the beach one time in her life.
 
Mij said:
She might want to be careful what she posts on social media. Insurance companies monitor people receiving disability benefits, if they see pictures of you walking on a beach enjoying the sunshine they will assume you are healthy again and cut your benefits. This happened to a woman in Canada who suffered from depression and posted a picture of herself walking on the beach one time in her life.
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I think compared to the money she’s amassed from her fame, that disability benefits in the US would be negligible to her.
 
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