David Tuller: Trial By Error: Australian Draft Report Seeks Comment

Kalliope

Kalliope

Senior Member (Voting Rights)
Australian Draft Report Seeks Comments

In an eagerly awaited draft report, an Australian advisory committee on ME/CFS has called for the development of up-to-date domestic clinical guidelines and an increase in biomedical research into the pathophysiology of the illness. The draft report, which could have a major impact on health policy going forward, also highlights the potentially dangerous impacts of graded exercise therapy, the international controversy over the PACE trial and the challenges that Australian patients confront accessing federal disability benefits.
 
Given that the science mostly stinks, these treatments have become the standards of care based on the prestige and reputations of the proponents, not on the quality of the data.
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Excellent, as always.

Given it was an Australian whose courage and determination has enabled so much progress over the last couple of years, wouldn't it be good if this Australian advisory committee could truly do right by PwME. Another chance to set a great example.
 
An endorsement of this approach could also have provided Professor Lloyd with greater opportunity to roll-out his proposed online training program for allied health professionals interested in learning how to manage ME/CFS patients with his rehabilitative therapies.
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Wasn't Lloyd on some TV program where he was basically calling for this process to avoid re-doing the guidelines, and instead call for more widespread training?

I think I can be more pessimistic than Tuller in my reading of documents like these (maybe I spend too much time comparing them to what they should be, rather than to where things were a decade ago), but it does seem the Lloyd didn't get what he wanted, and that can only be a good thing.
 
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