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David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

Discussion in 'General ME/CFS news' started by John Mac, Sep 1, 2019.

  1. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Unfortunately I was too ill to make the journey this weekend. Bedbound while waiting for some scans.
    I look forward to reading how it went. Disappointing not to hear David and see the S4ME members.
     
    Lisa108, JaneL, Joh and 9 others like this.
  2. dave30th

    dave30th Senior Member (Voting Rights)

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    And it was only one-sided printing so there were more pieces, although it was worse for the environment.
     
  3. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Location:
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    Last edited: Oct 21, 2019
    Sean, Lisa108, Binkie4 and 8 others like this.
  4. 2kidswithME

    2kidswithME Established Member (Voting Rights)

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    Thanks to everyone who came, especially @dave30th of course! we from OMEGA felt it went well, there was lots of interaction before and after, and we had to stop the q&a session so as to finish more or less on time. I found David much more entertaining than I’d expected, and appreciated getting a thorough overview of the LP trial. And he ended with his ‘academic performance art’ of tearing up the printed copy.

    We had specially invited local contacts who might be interested and one in particular showed up, as @Andy mentioned, so a lot of networking happened. Sadly no one from the local ME service attended, although we had invited. (There is no longer a GP with a special interest so it’s entirely run by OTs with very mixed reviews.)

    Priscilla, OMEGA chair
     
  5. 2kidswithME

    2kidswithME Established Member (Voting Rights)

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  6. 2kidswithME

    2kidswithME Established Member (Voting Rights)

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  7. Kalliope

    Kalliope Senior Member (Voting Rights)

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  8. Trish

    Trish Moderator Staff Member

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    2kidswithME, Nellie, Andy and 3 others like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    The Lightning Process Trial: A Saga of Very Bad Research--and Even Worse Editorial Decisions

    A talk by David Tuller, DrPH Senior Fellow in Public Health and Journalism Center for Global Public Health School of Public Health University of California, Berkeley. David discusses the scandal of the poor research continuing to inform treatment policies for patients with ME/CFS. In this talk he focuses on the numerous failings of Esther Crawley's latest trial on the effectiveness of The Lightning Process for adolescents with ME/CFS. Oxford, England: October 19, 2019

    https://www.youtube.com/watch?v=xUwU-e79hPk


     
    Liessa, EzzieD, JellyBabyKid and 10 others like this.
  10. 2kidswithME

    2kidswithME Established Member (Voting Rights)

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    Thanks @Sly Saint for posting this link. The lighting in the room wasn’t great, unfortunately, but something is better than nothing! Grateful to our member who undertook this project in her own time.

    Priscilla, OMEGA Chair
     
    rvallee, Sly Saint, MEMarge and 5 others like this.

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