David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

[Binkie4]

Unfortunately I was too ill to make the journey this weekend. Bedbound while waiting for some scans.
I look forward to reading how it went. Disappointing not to hear David and see the S4ME members.

 

[dave30th]

I wasn't there but I had a sandwich lunch with David on Friday and provided him with an A4 copy of the SMILE trial for him to tear up on Saturday.

And it was only one-sided printing so there were more pieces, although it was worse for the environment.

 

[MSEsperanza]

Trial By Error: Bristol’s Report Due Soon; Slides from My Oxford Talk
by David Tuller, DrPH

The full video of the talk will be posted in the near future. In the meantime, here are my slides:
LP Study talk

 

[2kidswithME]

Thanks to everyone who came, especially @dave30th of course! we from OMEGA felt it went well, there was lots of interaction before and after, and we had to stop the q&a session so as to finish more or less on time. I found David much more entertaining than I’d expected, and appreciated getting a thorough overview of the LP trial. And he ended with his ‘academic performance art’ of tearing up the printed copy.

We had specially invited local contacts who might be interested and one in particular showed up, as @Andy mentioned, so a lot of networking happened. Sadly no one from the local ME service attended, although we had invited. (There is no longer a GP with a special interest so it’s entirely run by OTs with very mixed reviews.)

Priscilla, OMEGA chair

 

[2kidswithME]

Just want to give credit to our lovely healthy volunteers from Good Gym, who’ve already posted about the event! They were a huge help with logistical support at the event.

https://www.goodgym.org/reports/goo...suffering-from-m-e-c-f-s-for-m-e-david-tuller

 

[2kidswithME]

And this is @dave30th ripping up the LP trial at the end of his talk.

 

[Kalliope]

And this is @dave30th ripping up the LP trial at the end of his talk.

I'd love to have that clip as a GIF

 

[Trish]

A new thread has been started for David Tuller's latest Trial by Error article that covers both this Oxford meeting and news on the Bristol report here:
Trial By Error: Bristol’s Report Due Soon; Slides from My Oxford Talk

 

[Sly Saint]

The Lightning Process Trial: A Saga of Very Bad Research--and Even Worse Editorial Decisions

A talk by David Tuller, DrPH Senior Fellow in Public Health and Journalism Center for Global Public Health School of Public Health University of California, Berkeley. David discusses the scandal of the poor research continuing to inform treatment policies for patients with ME/CFS. In this talk he focuses on the numerous failings of Esther Crawley's latest trial on the effectiveness of The Lightning Process for adolescents with ME/CFS. Oxford, England: October 19, 2019

 

[2kidswithME]

The Lightning Process Trial: A Saga of Very Bad Research--and Even Worse Editorial Decisions

A talk by David Tuller, DrPH Senior Fellow in Public Health and Journalism Center for Global Public Health School of Public Health University of California, Berkeley. David discusses the scandal of the poor research continuing to inform treatment policies for patients with ME/CFS. In this talk he focuses on the numerous failings of Esther Crawley's latest trial on the effectiveness of The Lightning Process for adolescents with ME/CFS. Oxford, England: October 19, 2019

Thanks @Sly Saint for posting this link. The lighting in the room wasn’t great, unfortunately, but something is better than nothing! Grateful to our member who undertook this project in her own time.

Priscilla, OMEGA Chair