From: Dr. Marc-Alexander Fluks

Source: UK House of Commons
Date: March 12, 2021
URL:
https://questions-statements.parliament.uk/written-questions/detail/2021-02-08/150966
Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster


[Written Answers]

Coronavirus: Vaccination
------------------------

Navendu Mishra

To ask the Secretary of State for Health and Social Care, what
assessment he has made of the (a) potential merits of including ME/CFS
on the list of neurological conditions in group 6 of the JCVI priority
list and (b) consistency of GP decisions on including ME/CFS patients in
group 6.


Nadhim Zahawi

The Joint Committee on Vaccination and Immunisation has not identified
any robust data to indicate that, as a group, persons with myalgic
encephalomyelitis/chronic fatigue syndrome are at higher risk of dying
from COVID-19, therefore this group is not included as part of the
prioritisation for phase one of the programme.
 
From: Dr. Marc-Alexander Fluks <


Source: UK House of Commons
Date: March 12, 2021
URL:
https://questions-statements.parliament.uk/written-questions/detail/2021-03-09/165694
Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster


[Written Answers]

Coronavirus: Vaccination
------------------------

Navendu Mishra

To ask the Secretary of State for Health and Social Care, what
assessment he has made of the potential merits of including inclusion of
Myalgic encephalomyelitis in the group 6 specified conditions for
covid-19 vaccination; and what estimate he has made of the number of
people with that condition who have received a covid-19 vaccination.


Nadhim Zahawi

The Joint Committee on Vaccination and Immunisation (JCVI) has not
identified any robust data to indicate that, as a group, persons with
myalgic encephalomyelitis/chronic fatigue symdrome (ME/CFS) are at
higher risk of dying from COVID-19, therefore those under 50 years old
are not prioritised for phase one of the programme.

Prioritisation for Phase two has not yet been decided, but interim
advice has been published by the JVCI recommending an age-based
approach, which the Government has accepted in principle subject to
final advice. The information on estimates of people with ME/CFS who
have received a covid-19 vaccination is not held centrally in the format
requested.
 
So, if they admit to not having the info then the statement that pwME are not known to be more at risk, and therefore a priority, would seem to be 'misleading'.

Given that they know they don;t have this information it might even IMO be classed as active 'disinformation'.
 
anyone have any comments on the suspension of the Astrazeneca vaccine roll out in several EU countries plus I think Thailand, due to a number of patients having blood clots; I think 3 health workers in Norway among them.
I am booked in for vaccination on Weds (AZ) and was nervous enough about it already.
 
From: Dr. Marc-Alexander Fluks <

This may be a minority view, but I think the UK has it right here. Here in the US some states have adopted practice of preferentially offering the vaccine to any number of politically connected groups along with the elderly. The net affect has been to make it difficult for the Old to get their shot and to slow the overall rollout.

The UK, as I understand it, simply walked down the ladder from oldest age and included a very small subset of known high-risk groups along with them. This has the positive side effect of catching the most vulnerable people in many different groups; a 60 year old grocery store clerk will get their shot before their 21 year old coworker, etc. This simplification seems to have allowed the UK to get the shots rolled out faster and with fewer people left out.

Now, I don’t live in the UK So I don’t know personally what’s going on at ground level there. But I do live in a very large US state famous for “caring” policies. Because of the number of connected or preferred groups tossed in along with the elderly and immune compromised, there’s a dramatic shortage of shots compared to demand.

I was only able to get my shot by a confluence of two circumstances: One, somebody with a bit of programming knowledge took it upon themselves to write a website which is alternative to the city and state’s useless, confounding, time wasting, opaque appointment search website and instead offers something that actually works. Two, MECFS sleep disruption had me up at 1 AM on a morning when several hundred new appointments were released, And I happen to be viewing that website at that moment.

Result: My state has the second highest rate of virus deaths in the country and one of the highest in the world. The epidemic will burn out here despite, rather than because of the State and city governments efforts. In contrast, the UK’s virus fatalities have dropping like a 737 Max flown by 2 green pilots for at least a month now. UK, you’re doing it right.
 
Hi, update, had a very difficult few days after the vaccine. On the day I was just more tired so I thought not much is happening. But the next day, shivering. Became feverish, hot but then freezing cold, heat pads constantly, couldn’t eat.. wasn’t helped by me exerting myself with an email. Also sharp increase in all over body pain as well as sensitivities. Severe migraine. I just felt more ill. Of course my arm where the jab was, hurt a lot. The pain and sensitivity has come down very slightly now. But still more ill. Today is the 5th day.. I’m still struggling to eat. Haven’t eaten “properly” (I mean, as much as I was eating before, which wasn’t much) since the vaccine. Still only able to eat /drink very little as I feel like throwing up. I hope it gets better. I’m sure it’s still much better than getting covid though so I’m still glad I had it.

Not looking forward to having to get booster jabs / new vaccines for new variants which the AZ doesn’t protect against. desperately hoping that at some point the U.K. goes for proper elimination strategy instead of their current thing, I’m scared about having to keep having new jabs.

Are you sure AZ vx provides no protection from variants?

There’s an often quoted study from South Africa which showed that it didn’t work very well with people who are being treated for HIV and we’re exposed to the local variant. Results for s.a variant protection in people with no HIV condition were better. But then, if one’s immune system is whacked by both HIV and the treatments for it you wouldn’t expect much from any vx.
 
I'd like to know why nobody suspects after getting vaccine & developing fever, that they may have coincidentally caught actual covid? nobody seems to be sugesting testing, but after discovering the ludicrous & imo dangerous mask policy at some counties' vaccination centres, theres certainly a chance of catching covid at the vaccination centre, or on the way there/back on public transport etc. Why is it always seem to be assumed to be side effects?

If i get fever after mine i'll be trying to get tested? or is there soe reason thats not allowed/advised?
I have seen reports of people catching covid after being vaccinated. Given the precision of such things, it seems possible that at least some of these cases were infected during the vaccination 'process' i.e. the trip to, the visit, and the trip back to home. Pretty sure I saw reports of a report about a collection of people all saying that they had been shielding prior to vaccination, and went back into shielding afterwards, but still developed covid.

Presumably they know they contracted covid somehow, I have no recollection of anyone saying for definite, that they had been tested, only that they had caught it.

However, even if we accept the PR based media assertions that some of the vaccines have a 95% efficacy rate, that means that 1 in 20 people have no statistically detectable protection. Scale that up to many millions of people and it may be apparent that quite a few people are indeed likely to get infected even after vaccination has been attempted.

Nothing is perfect, not even perfection (not tried it myself but I've heard it said it gets very boring).
 
Preliminary study of vaccine impact on Long Covid. Suggests no significant effect either way, sample probably too small.

Yes, small changes like this in uncontrolled studies is usually just response bias.

Are you sure AZ vx provides no protection from variants?

It certainly provides much lower protection from the South African variant. But I think lunarainbows was talking about in the years to come, when further new variants emerge, which vaccine-escape is more likely.
 
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So what's needed here is a service to remove and then collect the arm of choice, take it away (possibly supplying a 'loaner' arm), vaccinate it, and when it's no longer showing any signs of side effects, bring it back and reattach it?

Medicine, still in the not very bright ages.

Looking at Corts chart thing it looks like the best vaccines, for both side effects and duration of them, are the ones that are not in widespread circulation yet, the second dose for them looks positively benign.

But then again up until very recently people called my ME benign so......
 
I hope other places (ideally everywhere) have similar. For California Fact Sheet (ca.gov) was quite relieved to read both of these:

you don't need a letter to verify qualifying disability

and it doesn't have to be on the list of high risk to qualify if

What high-risk conditions or disabilities make a person under 65 eligible for a vaccine after March 15?
  • A COVID-19 infection is likely to result in severe life-threatening illness or death; OR
  • Acquiring COVID-19 will limit the individual’s ability to receive ongoing care or services vital to their well-being and survival; OR
  • Providing adequate and timely COVID care will be particularly challenging as a result of the individual’s disability.
These three criteria include people with a range of physical and behavioral disabilities.


Please be advised that those of you with qualifying underlying conditions do NOT need a letter from your health care provider in order to receive the COVID-19 vaccine.

Per the CA Department of Public Health, "To protect confidentiality, verification documentation of the diagnosis or type of disability is not required but instead anyone meeting the eligibility requirements will be asked to sign a self-attestation that they meet the criteria for high-risk medical conditions or disabilities."
 
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