Covid-19 vaccination experiences

@Lilas

Thank you for sharing your experience. I'm sorry to hear you're not feeling well after the Moderna and wish you a full recovery soon. A couple of friends (non M.E) have had a stronger reaction to Moderna for a couple of days after the jab.
 
Wonko said:
Isn't the point of the booster to be different from what's been used before tho?

So as to give a broader range of 'something'?
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No, a booster means more of the same. All of the current mRNA & viral Vector vaccines still use more or less the same (ancestral) spike protein. Pfizer vs Moderna in particular, there isn't much difference besides some variation in effective dosage of the spike protein itself.
 
This virus is obviously one which mutates easily so I expect that it will be case of getting your covid jag alongside your flu jab every year. People with ME may have to fight to get them in the same way it is for flu. The risks we face from a viral infection needs to be acknowledged by the medical profession so we are always offered them and then have a personal choice over whether to get them or not.
 
I finally got brave and had my booster shot this morning. After talking with my doctor we decided that the Pfizer might be better for me as I had adverse-reactions to both Moderna shots. So now the wait begins. I feel fine now, but I'll have to wait and see how the next months goes. Keep your fingers crossed for me!
 
I was interested in the shingles vaccine, so I asked the nurses today during my home visit if this service was available for other vaccines. They said no and that other homebound patients have been asking as well.

They really enjoy meeting patients at home and hope homebound services will continue after Covid for other vaccines.
 
Mij said:
Just received my 3rd dose, Moderna this time.
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I also got my booster today, also Moderna after 2 Pfizer. Nothing to report so far.

Edit to add: 12 hours later, a sore arm. Totally expected. But i wanted to mention how accommodating the vaccine center was, it was in a field hockey rink (no ice). There were 3 different line ups that people had to go through in order to reach a table to get the shot, and i was not feeling well enough to stand in line. The 2 previous time, there was no wait at all. So I told the traffic controller that i could not stand all that long due to a disability and could i please sit and wait for my turn somewhere ? That worked like a charm. I skipped line 2 and 3 and was directed to the chair where i received my vaccine. Quite a relief.
 
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JemPD said:
@TigerLilea I'm wondering how you're doing now? no pressure to reply, just thinking of you
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Thanks for asking, JemPD. I haven't recovered yet since having the 2nd vaccine in July. I am slightly better in that I can now get out and do yard work for about 10 minutes, but that is about it. I'm still not able to work. The exhaustion, brain fog, and PEM are much worse than I've ever experienced in the 30 years that I've had ME.

I had the booster shot on Tuesday so time will tell if it makes my ME any worse. I had the Pfizer this time and my doctor and I are hoping that I won't get the same reactions as I experienced with the two Modernas. I'll keep everyone updated as to how it goes.

Thanks for thinking of me! :hug:
 
Dom said:
@Sisyphus

I actually keep changing my mind. Dr Weir and Dr Jaeger seem to not be recommending vaccination for ME and LC patients for different reasons. I haven't even recovered fully from the flu vaccine yet but almost there. I don't think 3 colds in 8 weeks have helped much. But when the colds are gone I feel much stronger.

Anyway the new variant might utterly derail the entire vaccination schedule. I guess this was my greatest fear.

What I'd really LOVE is some data on double vaccination and how less likely you are to be hospitalised, get long covid, end up on oxygen, etc. That would make it so much easier to make a decision about the booster.

But I really don't want a 3 to 4 month relapse again on the back of this booster and I'm very concerned about long term injury. Check c19vaxreactions.com the mRNAs seem much worse making over 80% of reactions.

I'd prefer a moderna half dose. But I have not had much luck finding anywhere that will give me one in the west midlands.
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i can't figure wnough out either and it is getting serious as i am keeping down dental abscess with abx for a long time now. i want v. but i can't find out enough and my doctor does not seem to know about m.e. or my angioedema.

> Check c19vaxreactions.com the mRNAs seem much worse making over 80% of reactions.

maybe my browser but i can't make head or tails of that site. i can't tell if disinformation / antivax or not. cnanot concentrate. but the letter from the senate [from one senator] talked about a few hundred victims. which sounds like it should not affect our decision.

https://www.howbadismybatch.com/ is another. i strongly suspect that that one is antivax. cannot concentrate enough.

i need to know what to do for bedridden m.e. and if mrna v ingredients are soap-related. non-histaminergic angioedema of type seemingly not covered in uptodate. glycerin in coq10 capsules does not produce reaction.
 
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Samuel said:
i can't figure wnough out either and it is getting serious as i am keeping down dental abscess with abx for a long time now. i want v. but i can't find out enough and my doctor does not seem to know about m.e. or my angioedema.

> Check c19vaxreactions.com the mRNAs seem much worse making over 80% of reactions.

maybe my browser but i can't make head or tails of that site. i can't tell if disinformation / antivax or not. cnanot concentrate. but the letter from the senate [from one senator] talked about a few hundred victims. which sounds like it should not affect our decision.

https://www.howbadismybatch.com/ is another. i strongly suspect that that one is antivax. cannot concentrate enough.

i need to know what to do for bedridden m.e. and if mrna v ingredients are soap-related. non-histaminergic angioedema of type seemingly not covered in uptodate. glycerin in coq10 capsules does not produce reaction.
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Can you get the tooth repaired or removed? Long term abx is trouble, possibly big trouble. If your doc knows nothing about M.E in 2021, you need a new doc.

c19vaxreactions, howbad… I’ve never heard of either websites you mention. The domain names are very specific, single topic names, the sort of thing used for a campaign and not a general interest blog or medical site. It’s the sorta thing used to sell magnetic bracelets, coral calcium, etc.
 
Sisyphus said:
Can you get the tooth repaired or removed? Long term abx is trouble, possibly big trouble. If your doc knows nothing about M.E in 2021, you need a new doc.
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the point of abx was to put off extraction or repair until end of delta but omicron arrived without delta going down. my doctor said to get v would be tempting fate. thus he prescribed abx.

his emails are kind of a different person from himself. maybe he forgets my case or has to say things in email he canoot over phone or something. a more recent email says get fuloly v before dentist without any futher description. a new doc is not possible as i am bedridden. he is a caring doctor but knows nothing about m.e. or angioedema and he says he is getting old.

maybe i can try to make my nose breathable and fit a surgical mask over it with tape.

ETA: removed a senetnce that made it seem like my doctor described the dental thing when that was me.
 
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