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Cochrane Exercise Review Withdrawn - Individual Patient Data

Discussion in 'General ME/CFS News' started by RuthT, Dec 8, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    but what happens to all the other 'research' that relies on it to justify a) their existence and b) whatever their reported findings are (ie that they correlate with PACE).?
     
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  2. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Yes, the lack of communication is quite disappointing.
     
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  3. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Yep seems they have succeeded in kicking it into the long grass again
     
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  4. Esther12

    Esther12 Senior Member (Voting Rights)

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    I thought that recent response to the complaint made about Cochrane's handling of CFS sounded terrible. I'm expecting the worst from them.
     
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  5. inox

    inox Senior Member (Voting Rights)

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    While we wait, a comment by Larun about the individual patient data review - on an article by Helmfrid og Edsberg, in 2017. (google english - swedish)

    Now gone - withdrawn before publishment by the editorial group: "This protocol has been withdrawn and it is no longer being progressed to a Cochrane review." ;)

    Have there been any comment by her, or others of the authors, about this?


    New overview on the way
    2017-09-28 13:43

    As the author of the Cochrane review criticized in the article above, we have been offered the opportunity to comment on the criticism in Läkartidningen. The arguments against our overview taken up in Läkartidningen are well known. We have previously responded to most in the debate department that accompanies our overview. We have also tried to argue against the criticism in more open forums, but have very bad experiences with this strategy.

    A new Cochrane review based on individual patient data is published within a few months. In this, we will take into account the criticism and show the consequences of different methods of analysis. In view of our previous experience of public debates, we do not see ourselves served by participating in them before the IPD overview is published.

    For the authors of the overview:

    Lillebeth Larun, reseacher / assistant professor, Norwegian Institute of Public Health, Division for health services Nydalen, Oslo
     
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  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    So because they've been unable to defend their work they've consciously adopted a policy of avoiding debate?

    How is this mentality seen as acceptable?
     
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  7. inox

    inox Senior Member (Voting Rights)

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    It's strange, as everyone following the 'news in scandinavia' thread probably have noticed, there is a rather strong culture for public debate over here.
     
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  8. Cheshire

    Cheshire Moderator Staff Member

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    Posts relating to the ME/CFS GET review temporarily withdrawn have been moved to the relevant thread.
     
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