To clarify my earlier post, I would second Jonathan's point about alternative practitioners. Dr Worthley who I mentioned is a former NHS doctor who ran an ME clinic (he can be contacted through the ME Trust) and Dr Speight is too, I believe (contactable through the TYMES Trust). Maybe Jane at TYMES can help put you in touch with someone appropriate? From personal experience, I've also found a sensitive occupational therapist to be really helpful. My OT's report was crucial in obtaining help for me, because it clearly documents which aids and adaptations you need (even if you don't install them), which in turn is 'proof' of disability. My OT supplies reports for the NHS, but I didn't want to wait and hired her privately, and it was the best £180 I've ever spent. Anecdotally, I know a few people who've had better results from an OT's report than anything else. If you use Natural Health Worldwide (which I suggested in my earlier post), look for GPs or OTs, rather than alternative practitioners. There are some on there. Also check their credentials. Asking people you know may be a better idea, though.