Kalliope
Senior Member (Voting Rights)
The assistent general secretary for the Norwegian ME Association has written a letter to the editor to a news site about medicine on how hard it can be to "get through" to doctors, particularly with conditions that mostly strikes women.
She uses ME, fibromyalgia and endometriosis as examples.
Opprørende om alvorlige sykdommer
google translation Outrageous about serious illnesses
I can accept that doctors make mistakes - it's human - or that they are not updated. No one can be up to date on all diseases, but I find it hard to accept an arrogance that explains everything you do not understand "as something that has occurred in the patient's head."
How difficult is it to say: "I do not know why you're so ill, but I believe in you"? Why is it so difficult to accept patient's expertise on their own bodies?
...
If ME patients are skeptical of further research on mental causes for ME, it is because they are far better updated on research than large parts of Norway's physicians. It is not where you will find the answers to what Ron Davis, who in his time led the Human Genome project, calls "the last major disease we know nothing about".
She uses ME, fibromyalgia and endometriosis as examples.
Opprørende om alvorlige sykdommer
google translation Outrageous about serious illnesses
I can accept that doctors make mistakes - it's human - or that they are not updated. No one can be up to date on all diseases, but I find it hard to accept an arrogance that explains everything you do not understand "as something that has occurred in the patient's head."
How difficult is it to say: "I do not know why you're so ill, but I believe in you"? Why is it so difficult to accept patient's expertise on their own bodies?
...
If ME patients are skeptical of further research on mental causes for ME, it is because they are far better updated on research than large parts of Norway's physicians. It is not where you will find the answers to what Ron Davis, who in his time led the Human Genome project, calls "the last major disease we know nothing about".