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Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center

Discussion in 'BioMedical ME/CFS News' started by Andy, Oct 22, 2017.

  1. Andy

    Andy Committee Member

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    Columbia's announcement of the grant award.
    https://www.mailman.columbia.edu/pu...yelitischronic-fatigue-syndrome-collaborative

    NIH announcement
    https://www.nih.gov/news-events/new...alomyelitis-chronic-fatigue-syndrome-research

    Microbe Discovery Project announcement
    http://microbediscovery.org/2017/09...centers-data-management-center-announcements/
     
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  2. Andy

    Andy Committee Member

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    Coverage from Simmaron (who are one of Columbia's partners)
    http://simmaronresearch.com/2017/10/simmaron-lipkin-nih-chronic-fatigue-syndrome-research-centers/
     
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  3. Andy

    Andy Committee Member

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    Article in Columbia Public Health 2018 newsletter
    columbia.jpeg
     
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  4. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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  5. Andy

    Andy Committee Member

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  6. Andy

    Andy Committee Member

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    Source: Direct communication with me.
     
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  7. Andy

    Andy Committee Member

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  8. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Okay, thanks for letting us know. It seems quite unprofessional that there was no communication throughout the process, including no announcement that a committee has been selected.
     
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  9. Andy

    Andy Committee Member

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    Sadly, I can't disagree.

    Just to expand on my "Direct communication with me", I asked them via DM on Twitter "Hi there, is there any update on your patient advisory committee that you were taking applications for last year?" on the 12th Feb, chased it up after no response 2 days later, and then received the above response late yesterday. Hopefully they will improve their interactions with patients in the future, it certainly needs a lot of work at the moment.
     
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  10. Andy

    Andy Committee Member

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    Update from the Microbe Discovery project
    Code:
    https://www.facebook.com/notes/the-microbe-discovery-project/microbe-discovery-project-merges-with-cii-center-for-solutions/2121009531301403/


     
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