Carol Monaghan asks question of Prime Minister in PM’s questions today 27th March

Sectioned under the mental health act you mean?

 

Schools seem to be as much of an issue, if not more.

Those who have had Safeguarding proposed / instigated that i know (3) had this happen via school when attendance dropped.

One was stirred up via a school nurse even when the child had a diagnosis.

Another was told their child would be placed in foster care " to ensure their attendance improved"

The key aspect is lack of knowledge, combined with seemingly unbelievable pressure on attendance targets being met .
With children there seems to be a presumption that you grow out of it.

You don' t have to refuse GET to be taken down this route

 

Unfortunately I don’t. This is a figure I have seen used repeatedly by the Tymes Trust and others (podcast, twittter, etc.) but I don’t know what it’s based on, which is why I wrote “according to”.

edited: name

 

Thymes have a clear distinction re ME v CFS.

 

Note it's Tymes Trust (no h)

 

Thanks @Sly Saint . Autocorrect now off

 

No, it was the school SENCO who made the threat, but what he intended was unspecified. However it was clear at the time that swift reintegration was the aim, he wanted to manage it, not let us have much if any say

The paediatrician (who was brand new to our case!) and GP were both supportive when the school threatened legal action and both wrote letters on our behalf. The paediatrician even wrote that [son] had to manage his own reintegration! The Gp attended a couple of the worst meetings.

The SENCO was not best pleased but couldn’t override the clear instruction, he did continue to make things difficult!

(I’ll add that random conversations with parents who had to deal with the SENCO for other reasons indicated that almost no one found him easy to work with, and he was often unhelpful. Lesser staff clearly didn’t feel free to contradict or override him either.)

I was relieved when the kids moved on to 6th form, they were totally supportive. By then our medical support was only writing letters, we were managing the illness ourselves. And the 6th form allowed part time attendance which gave space for the kids to recover.

 

If the SENCO behaves in that manner does one not have the right to take the matter first to the Headteacher, and failing that, to the responsible Governor.

 

I think it's from an AfME survey; that's what's mentioned in the parliamentary briefing document that all the charities put together. I'll put up a picture.

 

A key issue is all the trauma caused to families by the downright terrifying proceedings leading up to a decision. And Wessely's comment shows that in the vast majority of cases it was all unnecessary.

GET is akin to the witches' ducking stool. Take it and you drown, don't and you are presumed guilty.

 

I did, and made two formal complaints. Should have made a couple more! In the end I asked that I not have to deal with him anymore so mostly I dealt with the head of year, who was helpful.

 

The ME show, threads here:
series 1 https://www.s4me.info/threads/the-me-show.3712/
series 2 https://www.s4me.info/threads/the-me-show-series-two.7873/

 

Two paediatric related documents from the MUS services in UK and other MUS related issues thread:


https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf

MEDICALLY UNEXPLAINED SYMPTOMS (MUS) IN CHILDREN AND YOUNG PEOPLE A GUIDE to assessing and managing patients under the age of 18 who are referred to secondary care

This Guide is endorsed by the Royal College of Psychiatrists (RCPsych) and the Paediatric Mental Health Association (PMHA).

August 2018

-----------------------------------

Slides from a presentation:

http://medicine.exeter.ac.uk/media/...psychiatry/Rory_Conn_-_Child_Liaison_2018.pdf

Why do we need specialist Paediatric Liaison Services?
Dr Rory Conn Consultant Paediatric Liaison Psychiatrist Royal Devon & Exeter Hospital


"Childhood MUS" from slide #65

Slide #67:




Note some of the content of these slides is taken from the paediatric MUS guideline above.


Dr Rory Conn had also presented at:

https://www.swpc.org.uk/meetings_old.htm

South West Paediatric Club
An organisation of paediatricians and others working in child care in the South West of England.

Spring Meeting, Thursday 18th May 2017
RILD lecture theatre, Royal Devon and Exeter NHS Foundation Trust

Study day on Medically Unexplained Symptoms.