1. Guest, the 'News in Brief' for the week beginning 21st September 2020 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Canadian Federal Health Minister to make announcement regarding ME, August 22

Discussion in 'General ME/CFS News' started by DokaGirl, Aug 21, 2019.

Tags:
  1. Milo

    Milo Senior Member (Voting Rights)

    Messages:
    1,051
    Likes Received:
    7,831
    I am so sorry the livestream begins at 10;30 pacific time, in 10 minutes.
     
    ScottTriGuy, Louie41, Binkie4 and 2 others like this.
  2. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    1,308
    Likes Received:
    9,658
    Anyone having trouble? Time link has been replaced by “ off air” statement.
     
    Louie41, TigerLilea and Wonko like this.
  3. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    4,022
    Likes Received:
    29,751
    Location:
    UK
    It's now 12 minutes since you posted that and it says 'off air'
     
  4. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    1,817
    Likes Received:
    11,053
    Louie41 likes this.
  5. Forbin

    Forbin Senior Member (Voting Rights)

    Messages:
    1,161
    Likes Received:
    8,426
    Got a still image at 10:41 Pacific Daylight Time.


    still2.jpg
     
    Last edited: Aug 22, 2019
    Louie41 and DokaGirl like this.
  6. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    1,173
    Likes Received:
    8,819
    Location:
    Oregon, USA
    I see a couple of comments in the chat window but, sadly, "je ne parle pas francais" ;)
     
    Louie41, Simbindi and DokaGirl like this.
  7. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    3,701
    Likes Received:
    30,295
    I'm getting crowd noise... that progress?
     
    Louie41, DokaGirl, Joh and 2 others like this.
  8. strategist

    strategist Senior Member (Voting Rights)

    Messages:
    3,003
    Likes Received:
    29,752
    It works fine for me. The livestream is up, but the event will start in a few minutes.

    It will be in both English and French according to the chat participants.
     
    Louie41, DokaGirl, ahimsa and 3 others like this.
  9. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    1,173
    Likes Received:
    8,819
    Location:
    Oregon, USA
    FYI, for folks who are deaf or hard of hearing there are no subtitles and no signed interpreters. Probably best to wait for a transcript.
     
  10. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    4,690
    Likes Received:
    36,617
    Location:
    Canada
    Sounds like a reasonably-sized audience from the clapping.
     
  11. Andy

    Andy Committee Member & Outreach

    Messages:
    10,492
    Likes Received:
    75,824
    Location:
    Hampshire, UK
    Code:
    https://twitter.com/mecfsbiobank/status/1164598108413726720?s=20
     
  12. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    4,690
    Likes Received:
    36,617
    Location:
    Canada
    Emphasized the 580K number and that it does not discriminate. Good start.
     
    Forbin, Ravn, MSEsperanza and 11 others like this.
  13. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    4,690
    Likes Received:
    36,617
    Location:
    Canada
    Wish the framing weren't on how we "feel" that we are ignored. We are. Systematically. Measurably.

    Anyway...
     
  14. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    4,690
    Likes Received:
    36,617
    Location:
    Canada
    Confirmed that the center will be located at CHU Ste-Justine and headed by Alain Moreau.

    Woop!
     
  15. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

    Messages:
    618
    Likes Received:
    4,414
    Good news so damn rare!!
     
    Ravn, Samuel, MSEsperanza and 11 others like this.
  16. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    4,690
    Likes Received:
    36,617
    Location:
    Canada
    As expected, CHU Ste-Justine being a children's hospital, there will be a pediatric focus.
     
    Ravn, MSEsperanza, Ebb Tide and 13 others like this.
  17. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    4,690
    Likes Received:
    36,617
    Location:
    Canada
    Pillars:
    1. Increase research capacity
    2. Develop a national cohort and common database
    3. Develop new talent
     
  18. Denise

    Denise Senior Member (Voting Rights)

    Messages:
    284
    Likes Received:
    1,769
    Any word on who will be helping on the pediatric work?
     
    MSEsperanza, Lidia, Louie41 and 3 others like this.
  19. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    4,690
    Likes Received:
    36,617
    Location:
    Canada
    Blunt words from Dr Khan: pressing his GP colleagues to "remove the insult from this injury", that they have to accept that "I don't know" is a valid answer, one that should lead to trying hard to solve it. Important words. Thank you, Dr Khan!
     
    Ravn, MSEsperanza, Ebb Tide and 41 others like this.
  20. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    4,690
    Likes Received:
    36,617
    Location:
    Canada
    Nothing specific mentioned. One of Moreau's specialty is childhood scoliosis so his team is already well-versed on pediatric research and care.
     

Share This Page