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Canadian Federal Health Minister to make announcement regarding ME, August 22

Discussion in 'General ME/CFS News' started by DokaGirl, Aug 21, 2019.

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  1. Milo

    Milo Senior Member (Voting Rights)

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    I am so sorry the livestream begins at 10;30 pacific time, in 10 minutes.
     
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  2. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Anyone having trouble? Time link has been replaced by “ off air” statement.
     
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  3. Wonko

    Wonko Senior Member (Voting Rights)

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    It's now 12 minutes since you posted that and it says 'off air'
     
  4. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Louie41 likes this.
  5. Forbin

    Forbin Senior Member (Voting Rights)

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    Got a still image at 10:41 Pacific Daylight Time.


    still2.jpg
     
    Last edited: Aug 22, 2019
    Louie41 and DokaGirl like this.
  6. ahimsa

    ahimsa Senior Member (Voting Rights)

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    I see a couple of comments in the chat window but, sadly, "je ne parle pas francais" ;)
     
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  7. Esther12

    Esther12 Senior Member (Voting Rights)

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    I'm getting crowd noise... that progress?
     
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  8. strategist

    strategist Senior Member (Voting Rights)

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    It works fine for me. The livestream is up, but the event will start in a few minutes.

    It will be in both English and French according to the chat participants.
     
    Louie41, DokaGirl, ahimsa and 3 others like this.
  9. ahimsa

    ahimsa Senior Member (Voting Rights)

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    FYI, for folks who are deaf or hard of hearing there are no subtitles and no signed interpreters. Probably best to wait for a transcript.
     
  10. rvallee

    rvallee Senior Member (Voting Rights)

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    Sounds like a reasonably-sized audience from the clapping.
     
  11. Andy

    Andy Committee Member & Outreach

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    Code:
    https://twitter.com/mecfsbiobank/status/1164598108413726720?s=20
     
  12. rvallee

    rvallee Senior Member (Voting Rights)

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    Emphasized the 580K number and that it does not discriminate. Good start.
     
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  13. rvallee

    rvallee Senior Member (Voting Rights)

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    Wish the framing weren't on how we "feel" that we are ignored. We are. Systematically. Measurably.

    Anyway...
     
  14. rvallee

    rvallee Senior Member (Voting Rights)

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    Confirmed that the center will be located at CHU Ste-Justine and headed by Alain Moreau.

    Woop!
     
  15. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    Good news so damn rare!!
     
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  16. rvallee

    rvallee Senior Member (Voting Rights)

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    As expected, CHU Ste-Justine being a children's hospital, there will be a pediatric focus.
     
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  17. rvallee

    rvallee Senior Member (Voting Rights)

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    Pillars:
    1. Increase research capacity
    2. Develop a national cohort and common database
    3. Develop new talent
     
  18. Denise

    Denise Senior Member (Voting Rights)

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    Any word on who will be helping on the pediatric work?
     
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  19. rvallee

    rvallee Senior Member (Voting Rights)

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    Blunt words from Dr Khan: pressing his GP colleagues to "remove the insult from this injury", that they have to accept that "I don't know" is a valid answer, one that should lead to trying hard to solve it. Important words. Thank you, Dr Khan!
     
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  20. rvallee

    rvallee Senior Member (Voting Rights)

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    Nothing specific mentioned. One of Moreau's specialty is childhood scoliosis so his team is already well-versed on pediatric research and care.
     

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