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Canadian Federal Health Minister to make announcement regarding ME, August 22

Discussion in 'General ME/CFS News' started by DokaGirl, Aug 21, 2019.

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  1. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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  2. rvallee

    rvallee Senior Member (Voting Rights)

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    CHU Ste-Justine. That's where Alain Moreau works!

    Fingers crossed this is good news.
     
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  3. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Further to this - I know there is a pending decision about a grant offering.

    As well, reps from Millions Missing Canada including @ScottTriGuy and Action CIND, and possibly others met with the Minister a couple months ago.

    The Health Minister has acknowledged ME as a serious but stigmatized disease, and has tweeted about Severe ME Day.

    I do not know what the announcement will be about.

    Perhaps others do.

    @ScottTriGuy?
     
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  4. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Yes, @rvallee, it's probably likely about the grant application decision, given the location.

    ETA: I am hoping it is more than that, and a general statement about the biomedical reality of ME. I know a successful grant app can do this as well, but not as directly.
     
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  5. Milo

    Milo Senior Member (Voting Rights)

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    Merged thread

    CFCE4E25-8ACB-4272-B95B-E27D43FD2772.jpeg

    Link to the Livestream:
    It will start at 10:30 EST.

    We encourage all Canadians to attend in person or online. International patients also welcome. Please share with your family and friends.
     
    Last edited by a moderator: Aug 22, 2019
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  6. Lisa108

    Lisa108 Senior Member (Voting Rights)

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    Time Zone Converter here
     
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  7. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    I'm flying to (and fro) Montreal tomorrow for the announcement, but can neither confirm nor deny rumours about content :)

    I can say it will be good (but not enough, of course) news.
     
    Last edited by a moderator: Aug 22, 2019
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  8. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    For others who are also technically inept:
     
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  9. strategist

    strategist Senior Member (Voting Rights)

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    Piecing together all the bits of information, it appears that funding of biomedial research will be announced and that Alain Moreau will play a role.
     
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  10. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Thanks for all the time, energy and money (I presume) you have spent/invested for your activism.
     
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  11. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    Thanks - fwiw, the govt is footing the travel costs for this, but yeah, lots of time and energy...and relationship building by a group of us, so today is pivotal.
     
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  12. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Thank you very much @ScottTriGuy and others who were involved in this!

    Cheers!
     
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  13. Andy

    Andy Committee Member & Outreach

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    https://www.canada.ca/en/institutes...le-living-with-myalgic-encephalomyelitis.html
     
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  14. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Time confusion: 2h00pm in the original release means? I assumed 2:00 pm, but others here have said the event starts at 10:30 EST, and the release to the media says - 2:00pm.

    The count down clock says about 3 1/2 hours left till the event starts.

    Any comments?
     
  15. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Thanks @Andy for posting the media release from the federal gov't. I note the release says "formerly known as chronic fatigue syndrome". Thank you to the government for this big change, and an enormous thanks to all who promoted the change - it's taken decades!

    I hope the name is standardized to ME world-wide.
     
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  16. Kalliope

    Kalliope Senior Member (Voting Rights)

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    ipolitics: Team Trudeau front benchers fan out to promote federal support for health research, women entrepreneurs and Yukon conservation efforts

    After spending the last few days making the rounds on her Atlantic Canadian home turf, Health Minister Ginette Petitpas Taylor heads to the Sainte-Justine University Hospital Research Centre in Montreal with a fresh tranche of federal cash to boost research that, according to the advisory, aims to “improve the quality of life of people living with myalgic encephalomyelitis,” which, it notes, was “formerly known as chronic fatigue syndrome.”
     
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  17. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Still troubled by time confusion.

    2pm Montreal equates to 7pm BST or have I got that wrong? That is 1 hour 5 mins from now which does not equate with the 35 mins on the countdown clock. ???
     
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  18. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    I hope the announcement can be posted online later. I imagine it will be.
     
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  19. ahimsa

    ahimsa Senior Member (Voting Rights)

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    I saw this tweet last night that said the livestream starts a half hour early.
    Code:
    https://twitter.com/wigglethemouse/status/1164384541311524864
     
  20. Binkie4

    Binkie4 Senior Member (Voting Rights)

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