Sly Saint
Senior Member (Voting Rights)
full title
Dear Doctor: What Not to Say to Me and Other Fibromyalgia Patients
although the author has ME/CFS
https://themighty.com/2019/09/things-doctors-say-fibromyalgia-patients/
Dear Doctor: What Not to Say to Me and Other Fibromyalgia Patients
although the author has ME/CFS
full blog hereDear Doctor,
I know you are overworked, underpaid and taken for granted by our government. I realize you can’t work miracles even if you wanted to and the NHS is on limited funding. All I’m asking is your time and human understanding for a better quality of life.
I have been ill since age 13. I have had nearly every test available. My diagnosis at present is myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia, with all the added symptoms and conditions they cause.
Unfortunately, I can only recall not even a handful of doctors who have been helpful. I understand there is no specific test and no cure as of yet, and treatment is hard to determine. But, I have reached a point where I am so deflated by going to another appointment and leaving feeling more ill, with more questions, and returning home trying to hold in the tears. I have had so many things told to me by doctors, some of which have been said to other patients in the same boat.
https://themighty.com/2019/09/things-doctors-say-fibromyalgia-patients/