Blog Africa Clockwise: M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness

Africa Clockwise: M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness

https://twitter.com/user/status/1026950559708852225

 

Totally agree. An excellent and wide-ranging piece by a writer who's been ill for more than 25 years. Thoughtful and well written.
Very long but can easily be read in sections due to its structure:

• A brief snapshot of the writer's life at a given time.
• A brief description of an encounter, at that same time, with a doctor (mostly negative).
• A section of general information on a particular aspect of ME.

Repeat above three sections. Many times.

Lots of links to other ME bloggers and relevant sites.
There's even a rare glimpse of an African perspective on the illness (albeit mostly question marks).

 

I didn’t particularly take to the article but it’s good to hear a snapshot of what it’s like in South Africa. We rarely get to hear anything that isn’t US/UK/Australia-based.

 

I loved the Stranger Things reference - having moderate to severe ME is exactly like being trapped in the Upside Down! I’m borrowing it to explain ME to all my friends from now on.

 

I enjoyed reading it.



I looked at the picture before I read the text, and thought "Oh, that's cool, a tatoo of an electrical socket in someone waiting to be charged up".

But it's a pause sign. I might get it anyway, just have to decide where to put it.

 

"I dream of public resting places Cloud-Spotter Cafés, with chaises longues for people with chronic illness or chronic pain. Where we could lie down without shame and use the saved energy to squabble . . . " right on.

Very well written article. I can relate to a lot of it.

 

https://twitter.com/user/status/1031531211146059777

 

Me too.

 

https://twitter.com/user/status/1031572164078657536


https://twitter.com/user/status/1031572622423846912

 

https://twitter.com/user/status/1031577341166858240

 

https://twitter.com/user/status/1031601832861290496

 

https://twitter.com/user/status/1031685528113045504

 

https://twitter.com/user/status/1031687010778578944

 

https://twitter.com/user/status/1031871062001295360

 

https://twitter.com/user/status/1031872261228244992


https://twitter.com/user/status/1031873285963829248

 

https://twitter.com/user/status/1031894893059178499

 

https://twitter.com/user/status/1031944513214980097

 

https://twitter.com/user/status/1032354432552456192

 

https://twitter.com/user/status/1032356320496762880