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Blog Africa Clockwise: M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness

Discussion in 'General ME/CFS News' started by Kalliope, Aug 7, 2018.

  1. Kalliope

    Kalliope Senior Member (Voting Rights)

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  2. Trish

    Trish Moderator Staff Member

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    That is a really excellent article. I hope she can get it published.
     
  3. Ravn

    Ravn Senior Member (Voting Rights)

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    Totally agree. An excellent and wide-ranging piece by a writer who's been ill for more than 25 years. Thoughtful and well written.
    Very long but can easily be read in sections due to its structure:
    • A brief snapshot of the writer's life at a given time.
    • A brief description of an encounter, at that same time, with a doctor (mostly negative).
    • A section of general information on a particular aspect of ME.
    Repeat above three sections. Many times.

    Lots of links to other ME bloggers and relevant sites.
    There's even a rare glimpse of an African perspective on the illness (albeit mostly question marks).
     
  4. Dr Carrot

    Dr Carrot Senior Member (Voting Rights)

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    I didn’t particularly take to the article but it’s good to hear a snapshot of what it’s like in South Africa. We rarely get to hear anything that isn’t US/UK/Australia-based.
     
  5. andypants

    andypants Senior Member (Voting Rights)

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    I loved the Stranger Things reference - having moderate to severe ME is exactly like being trapped in the Upside Down! I’m borrowing it to explain ME to all my friends from now on.
     
    adambeyoncelowe, MEMarge, Mij and 4 others like this.
  6. TiredSam

    TiredSam Moderator Staff Member

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    I enjoyed reading it.

    upload_2018-8-11_15-11-23.png

    I looked at the picture before I read the text, and thought "Oh, that's cool, a tatoo of an electrical socket in someone waiting to be charged up".

    But it's a pause sign. I might get it anyway, just have to decide where to put it.
     
  7. Mij

    Mij Senior Member (Voting Rights)

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    "I dream of public resting places Cloud-Spotter Cafés, with chaises longues for people with chronic illness or chronic pain. Where we could lie down without shame and use the saved energy to squabble . . . " right on.

    Very well written article. I can relate to a lot of it.
     
  8. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  9. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Me too.
     
    MEMarge and Trish like this.
  10. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  11. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  12. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  13. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  14. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  15. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  16. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  17. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  18. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  19. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  20. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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