Discussion in 'General ME/CFS News' started by Kalliope, Aug 7, 2018.
Africa Clockwise: M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness
That is a really excellent article. I hope she can get it published.
Totally agree. An excellent and wide-ranging piece by a writer who's been ill for more than 25 years. Thoughtful and well written.
Very long but can easily be read in sections due to its structure:
A brief snapshot of the writer's life at a given time.
A brief description of an encounter, at that same time, with a doctor (mostly negative).
A section of general information on a particular aspect of ME.
Repeat above three sections. Many times.
Lots of links to other ME bloggers and relevant sites.
There's even a rare glimpse of an African perspective on the illness (albeit mostly question marks).
I didn’t particularly take to the article but it’s good to hear a snapshot of what it’s like in South Africa. We rarely get to hear anything that isn’t US/UK/Australia-based.
I loved the Stranger Things reference - having moderate to severe ME is exactly like being trapped in the Upside Down! I’m borrowing it to explain ME to all my friends from now on.
I enjoyed reading it.
I looked at the picture before I read the text, and thought "Oh, that's cool, a tatoo of an electrical socket in someone waiting to be charged up".
But it's a pause sign. I might get it anyway, just have to decide where to put it.
"I dream of public resting places Cloud-Spotter Cafés, with chaises longues for people with chronic illness or chronic pain. Where we could lie down without shame and use the saved energy to squabble . . . " right on.
Very well written article. I can relate to a lot of it.
Separate names with a comma.