Andy
Senior Member (Voting rights)
I'm relying on Google translation here, if any errors are spotted please let me know.
Quote:
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome - ICD-10 G93.3
ME / CFS is a severe multi-system disease that currently affects between 26,000 and 80,000 people in Austria [1]. Depending on its severity, the disease leads to severe physical limitations and loss of ability to work for most of those affected. Despite the high number of people affected and the severity of the disease, ME / CFS is little known, insufficiently researched and those affected are poorly cared for in the health and social system.
requirements
This petition calls on Austrian politicians to support those affected by ME / CFS in four areas: 1. Information and education, 2. Development of medical treatment and care structures, 3. Social security and 4. Research funding. A working group is to be formed to implement the requirements and to carry out ongoing evaluations.
1. Information and education
Link to petition, https://www.openpetition.eu/at/peti...ng-von-betroffenen-sowie-forschungsfoerderung
The Google translate version of the page didn't seem to allow signatures, so I haven't given that link.
Quote:
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome - ICD-10 G93.3
ME / CFS is a severe multi-system disease that currently affects between 26,000 and 80,000 people in Austria [1]. Depending on its severity, the disease leads to severe physical limitations and loss of ability to work for most of those affected. Despite the high number of people affected and the severity of the disease, ME / CFS is little known, insufficiently researched and those affected are poorly cared for in the health and social system.
requirements
This petition calls on Austrian politicians to support those affected by ME / CFS in four areas: 1. Information and education, 2. Development of medical treatment and care structures, 3. Social security and 4. Research funding. A working group is to be formed to implement the requirements and to carry out ongoing evaluations.
1. Information and education
- Information, education and training of Austrian doctors and health staff according to the current state of research in order to create awareness and expertise in dealing with ME / CFS, to reduce the currently long time span of 5-8 years until receipt of the diagnosis and outdated dogmas to eliminate
- Inclusion of ME / CFS in the curricula of the Austrian medical universities in order to improve the supply situation in the long term
- Public awareness-raising campaign for society as a whole
- Financing of public contact points for diagnosis, care and treatment of ME / CFS sufferers
- Interdisciplinary connection of contact points to existing supply structures for the efficient use of existing resources and supply of ME / CFS affected persons in accordance with the current state of research
- Securing the financing of the necessary examinations for the diagnosis of ME / CFS in the existing structures of the health system
- Targeted training of experts in the structures of the social insurance agencies and the Ministry of Social Affairs service for the recognition of ME / CFS diagnoses for benefit claims
- Creation of care and support places for people severely affected by ME / CFS
- Targeted use of existing as well as expansion of flexible options for keeping slightly affected ME / CFS patients in the labor market
- Funding of research on ME / CFS to create treatment options and care for those affected using the latest scientific knowledge
Link to petition, https://www.openpetition.eu/at/peti...ng-von-betroffenen-sowie-forschungsfoerderung
The Google translate version of the page didn't seem to allow signatures, so I haven't given that link.
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