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Australia: Emerge

Discussion in 'News from Organisations' started by Andy, Jul 17, 2018.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Post on Facebook from Emerge.
    Code:
    https://www.facebook.com/EmergeAustraliaInc/videos/10156541270639111/
     
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Australia - Inside Melbourne's Ross House, a heritage building filled with charitable souls
    https://www.abc.net.au/news/2019-01...-heritage-listed-non-profit-building/10610824
     
    Last edited by a moderator: Nov 17, 2020
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  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Article - Dr Heidi Nicholl explains what we need to know about chronic fatigue syndrome - 7News June 2019

    https://7news.com.au/the-daily-edit...ondition-heres-what-you-need-to-know-c-160622

    (couldn't view the video, but guess the above is a transcript?)
     
    Last edited by a moderator: Nov 17, 2020
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  4. MeSci

    MeSci Senior Member (Voting Rights)

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    "We know it affects about 80 per cent of women compared to 20 per cent of men," Nicholl said.

    Not very well put. Sounds like 80% of women can expect to be infected!
     
  5. pteropus

    pteropus Senior Member (Voting Rights)

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    yes, there's one ambiguity in one of Heidi's comments. but otherwise she's mentioned all the key points about the disease - prevalence, severity, triggers, management - and used language that the general public can understand. it was a short interview, with a lot of detail.

    Heidi is a superb advocate. Her brief interview might help undiagnosed patients, & change public perceptions.
    Her team are helping to influence politicians, medical authorities, welfare agencies, disability support agencies, etc.

    i'm not gonna quibble about a minor error.
     
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  6. sea

    sea Senior Member (Voting Rights)

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    The “transcript” is not verbatim and doesn’t include the questions or comments from the hosts. In context it was clear what was meant. Heidi compared it to other illnesses like MS, lupus and RA where there is also a similar higher prevalence in women than men.
     
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    NOTICE OF ANNUAL GENERAL MEETING
    NOTICE is hereby given that the 2019 Annual General Meeting of

    EMERGE AUSTRALIA INCORPORATED

    will be held at

    Ross House, 247-251 Flinders Lane, Melbourne

    on

    Thursday 21 November 2019

    commencing at 6.00 pm

    https://emerge.org.au/notice-of-2019-annual-general-meeting/#.XVauMrjk_CM
     
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  8. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Code:
    https://www.facebook.com/MEAdvocacyNetworkAustralia/posts/2386256471442704


     
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  9. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    Is there anyone who can give a condensed highlights? The broadcast is 4 hours long.
     
  10. Willow

    Willow Established Member (Voting Rights)

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    After you connect to the link that gives the 4 hr program, look to the right where it says "Living with Chronic Fatigue Syndrome 48 min 46 sec" and click on that. Then just the part on CFS will play. I thought the presenters did a very good job. The message that this is a serious, complex disease is starting to make the rounds. It gives me hope. Thanks to Emerge Australia and Dr. Fisher.
     
  11. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    Thanks, @Willow I didn't notice that.
     
  12. oldtimer

    oldtimer Senior Member (Voting Rights)

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  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    [​IMG]
    AUSTRALIA'S #1 ONLINE CPD EDUCATION PLATFORM

    Busting the myths and redefining myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)

    https://www.thinkgp.com.au/education/mecfs
     
  14. Simone

    Simone Senior Member (Voting Rights)

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  15. Simone

    Simone Senior Member (Voting Rights)

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    Apologies for posting a link to FB for those not on there, but this is the full interview:
     
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  16. Andy

    Andy Committee Member (& Outreach when energy allows)

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  17. Simone

    Simone Senior Member (Voting Rights)

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    I was worried about that!

    The clip has been uploaded to YouTube. Unfortunately, the presenter introducing the interview refers to the illness as ‘chronic fatigue’ twice in the beginning (a huge issue for us in Australia), but if you can get past that, the rest is worth it. The highlight for me is the very end, when the panel are shocked by Casey’s ongoing limitations: that he can test ride a new bike, but then he’s out for a week.

     
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  18. wingate

    wingate Established Member (Voting Rights)

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    Aside from the references to 'chronic fatigue' by the presenter, I thought the video did a good job of painting a picture of the illness.

    Had not heard of Casey before today (then again I don't follow MotoGP), but good for him for speaking out about his illness!

    And very good news about OMF!
     
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  19. Colin

    Colin Established Member (Voting Rights)

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    Wow. Casey Stoner. That is a celebrity name. I hope he's doing okay. As an old, bike rider who had to give it away, I feel for him.

    I'm also very impressed, having posted only yesterday on how it is almost the norm in media reports for women to be presented as the typical sufferer. I've heard the odd, radio interview in Australia in which a chap admitted to having ME/CFS but I can't think of a single one on teevee before this. Good on Casey for doing it.

    I'm not quite so enthusiastic about the presenters' reaction. The blokes come across to me as struggling awkwardly to say the right thing. But if the new policy is to acknowledge such misfortune, and they have to go along with it, that's fine by me.
     
    Last edited: Oct 23, 2020
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  20. Andy

    Andy Committee Member (& Outreach when energy allows)

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