Attention grabbing media for spreading ME/CFS awareness

forestglip

forestglip

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Staff member
I think it'd be good to compile the best attention grabbing videos and other media (art, memes, poems, etc) about ME/CFS that are good for sharing on social media to spread awareness. Maybe things that would be good to share on May 12th.

I really like these two, both originally shared by @rvallee on this thread: 'MIRAME Arts: short video on prejudicial views of ME/CFS'



 
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Berlin Buyers Club has some pretty cool stickers and posters. (It’s more axed on long COVID but includes ME/CFS as well) some examples of stickers

CURE+M.E..png
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MassDisablingEvent.png
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Imiss_02.png
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You can either buy the printed stickers from them (really cheap for something by a small cooperative) or download the designs online for free.
They also have many translated into Dutch, German, French, and Spanish
(I dunno how much this translates internationally but having stickers on lamposts, busstops etc. in population centers is pretty common form of activism in western europe)
 
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Pretty much anything by Broken Battery! Eg.


And…

*TRIGGER WARNING*
Videos detailing personal stories of significant harm and death due to mistreatment of ME patients







(Edited to add another link and because I managed to link a million things badly at first!)
 
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For explaining ME/CFS to friends and family, I find the following combo far more effective than an “official” “neutral” description (Like the Wikipedia or CDC page):

https://www.whitneydafoe.com/mecfs/whatismecfs/ for how horrible it is to live with me/cfs
And George Monbiot’s article https://www.theguardian.com/comment...atigue-syndrome-me-treatments-social-services to explain systemic disbelief and oppression and so they know not to recommend exercise or therapy.

Even though these aren’t totally factually correct or necessarily well cited, I find that for my friends and family to have a reaction and take me seriously it’s more about having a story and showing emotions than just cold facts. And I think both those articles do a mix of both well.
 


https://www.hope4mefibro.org/discover-me-experience/
The Discover ME Team

Hope 4 ME & Fibro has partnered with Silverink, and Neon to create the Discover ME Experience which is a unique, two-part awareness and educational introduction to ME (Myalgic Encephalomyelitis). The project was funded by NI Screen. Professor Deepa Mann-Kler (pictured here) directed and produced the film.

The film shares insights into the lives of 6 people living with Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome – abbreviated as ME/CFS). The viewer is placed into real life scenarios that are normally never seen, heard, or experienced. This narrows the gap between an individual’s preconceived beliefs and real personal experience.


Winner of Awards
To date, the film has won 4 international short film awards:

  • Global Shorts Winner 2022
  • Best Shorts Competition
  • Pinewood Liftoff Global Network Sessions 2022, and
  • Delta International Film Festival 2022
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RainbowCloud said:
Pretty much anything by Broken Battery! Eg.


And…

*TRIGGER WARNING*
Videos detailing personal stories of significant harm and death due to mistreatment of ME patients







(Edited to add another link and because I managed to link a million things badly at first!)
Click to expand...


Thanks Rainbow Cloud, much appreciated.

I’ve also created a trailer for that video which I’ve just put on YouTube shorts.

https://youtube.com/shorts/E8sym7aPcZc?si=kjJSjrGni7Y55rO3
 
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