Article: Verywell: Exercise for Fibromyalgia and Chronic Fatigue Syndrome

[chrisb]

How quickly do they think deconditioning sets in?

I'd say about twenty years before it is significant.

 

[rvallee]

fatigued people did too much in the past, built up a long-term deficit in energy

I guess these people never heard of professional athletes and ultra marathon types.

Do too much and of course you will fall ill. Do too little and you will remain ill. Like I said: Catch-22 disease.

Tripe. Tripe tripe tripe. Tripe tripe tripe tripe tripe tripe.

 

[rvallee]

I'd say about twenty years before it is significant.

Definitely quicker than this for severe bed-bound patients but that's about 10% or so. I've never been bedbound, thankfully. Plenty of otherwise healthy people are actually less active than I am even at my sickest. Some people really hate moving around and yet they are merely highly sedentary, deconditioning simply doesn't work like that.

But then again we are dealing with people who keep mocking us for "staying in bed and pouting" while also being "relatively active" during PACE trial and as such not needing actimeter testing since we clearly are sedentary, not pathologically deconditioned. Wearing an actimeter is obviously too much of a burden but clearly it can't be actual patients doing all those FOI requests and writing to medical journals since we are so sick.

Tails they win, heads we lose. What a nightmare.

 

[Mij]

It also mentions endorphins as making you feel better, yet my experience of exercise is that I no longer produce endorphins when I'm ill. It was the first sign that led me to ME as a diagnosis. Has anyone else noticed that?

Yes, but this was only during the viral onset. Years later after a diagnosis of ME (when I was improving) the endorphins came back and I felt like a million bucks after a 30 minute jog, until the next day of course when PEM set in.

 

[chrisb]

Definitely quicker than this for severe bed-bound patients but that's about 10% or so.

I don't doubt it. I was being provocative. For those with a relapsing/remitting form the deconditioning model in no way fits the facts. But why let evidence get in the way of a tidy story?