Discussion in 'General ME/CFS News' started by Sly Saint, Jun 4, 2019.
Ah, so PVFS.
The invention of CFS was probably one of the single most harmful acts of willful medical sabotage in history, one replete with such acts. It's still creating brand new confusion to this day.
And boy would I love some of that 50% reduction from pre-illness levels, aka the mild stage of ME. Those were relatively good days. Perspective changes everything.
another similar story in Australia (didn't think it warranted a new thread)
It goes on to talk about Ron Davis and the nanoneedle research.
then ends with
so rather mixed messages
Glandular Fever (common in youngsters) and PVFS.
My ‘first’ diagnosis was PVFS in 2001. 7 months completely off work (Housebound), then slow improvements, then a graduated return to (only part time) work.
Re-Reading diary from that time, I was surprised to read that I suffered with PEM & many of the typical ME symptoms
@It's M.E. Linda , likewise for me. I most definitely had PEM with what was diagnosed as PVFS. In fact it remained a predictable outcome of over reaching myself through to my most well point last year. Since my relapse I'm not altogether sure I've had more than 2-3 days without PEM symptoms!
‘Walking wounded’ - I can drive, enjoy activities, even vacuum for 10 mins at a time but any activity (even reading) will always produce symptoms and, usually, some level of PEM.
I try to use my diary to spread things out through the week......;)
Separate names with a comma.