Article: Chronic fatigue syndrome sufferer considered euthanasia after lack of help from NHS Dec 2019

[Sly Saint]

Eileen Munro suffers from ME (myalgic encephalomyelitis) and believes not enough is being done to help people like her.

These photos show the shocking deterioration caused by chronic fatigue syndrome.

And sufferer Eileen Munro believes not enough is being done to help people like her, whose lives have been devastated by ME (myalgic encephalomyelitis).

She is demanding NHS Scotland provides services fit to cope with the 21,000 people who have the much-misunderstood condition.

Eileen, 56, from Edinburgh, has suffered constant fatigue and often intense pain for more than two decades and says she has had little support from NHS Scotland.

She believes that with so many people affected, Scotland needs a centre of excellence to tackle the symptoms and improve the lives of sufferers.

In Scotland, there is one nurse-led clinic, based in Fife.

Eileen, the author of two best-selling memoirs, said: “They do their best but don’t have the
expertise or the resources to make a difference and they’re not accessible to ME patients in distant parts of Scotland.

"Given the number of people whose lives are ruined by this condition, you’d think there would be greater urgency to provide support and that the NHS would fund research and effective treatment.

full article here
https://www.dailyrecord.co.uk/news/scottish-news/author-who-endures-crippling-chronic-21172609

 

[rvallee]

Superb job, BPS cultists. Hope you're having fun out there with the voices in your head telling you you're doing an amazing job and assure you it's the patients who are wrong. You, on the hand, are a flawless little snowflake whose perfect intuition definitely is worth more than the lives of millions.

We won't forget this. People told you what would happen and you did it anyway and you insist on continuing to do the thing that continues to fail.

 

[Invisible Woman]

Sometimes I think we're in a Catch 22 situation in the UK.

On the one hand we are to be seen as having a psychological or behavioural disorder that perpetuates our condition. Naturally, we are in denial and by virtue of protesting are confirming our mental health issues.

On the other, when one day people suddenly wake up to our plight and the encroaching menace of IAPT and the ultimate lack of useful treatment for anything by the NHS thanks to the psychologization (?) of everything, that's good for the BPS paymasters too. Everyone will feel obliged to invest in private healthcare to get any healthcare at all.

It feels like a heads you win, tails I lose situation.

 

[Dolphin]

On the other, when one day people suddenly wake up to our plight and the encroaching menace of IAPT and the ultimate lack of useful treatment for anything by the NHS thanks to the psychologization (?) of everything, that's good for the BPS paymasters too. Everyone will feel obliged to invest in private healthcare to get any healthcare at all.

I remain to be convinced private health insurers are major BPS paymasters. A lot of what the BPS promote is cheap therapy. Also tends to discourage testing and more expensive interventions.

Some have got money from disability insurers but they are generally different companies to private health insurers.

 

[Invisible Woman]

I remain to be convinced private health insurers are major BPS paymasters. A lot of what the BPS promote is cheap therapy. Also tends to discourage testing and more expensive interventions.

Some have got money from disability insurers but they are generally different companies to private health insurers.

Maybe not directly, in the same way as insurance companies. However, in the UK, making it tougher to get benefits and having that publicized initially suited Unum and the likes as it meant people were more likely to take out private policies they would probably never need to claim on. Then, of course, it suited them to deny payments.

Also if the only treatments patients will be offered are access to IAPT then people are more likely to take out private health care policies in the hopes they might actually get to see a rheumatologist or endocrinologist if they need to one day.

So although they might not be direct paymasters, there will be a lot of influence peddling going on.

 

[Dolphin]

I remain to be convinced private health insurers are major BPS paymasters. A lot of what the BPS promote is cheap therapy. Also tends to discourage testing and more expensive interventions.

Some have got money from disability insurers but they are generally different companies to private health insurers.

Personally I think we could easily lose credibility by claiming BPS proponents have health insurance paymasters without more evidence. Just because the BPS approach could lead people to want to get private health insurance doesn’t prove to me BPS proponents have secret paymasters. I think BPS proponents genuinely believe in their approach.

 

[Invisible Woman]

You may be right @Dolphin, but some of these guys wield an awful lot of influence through the health system.

I think BPS proponents genuinely believe in their approach.

Again, I can't say what they do or do not believe, but if they had nothing to hide then why so secretive with the data from PACE for example. Why all the outcome switching? If their trials have demonstrated anything it is that the BPS model does not work.

I'm not suggesting that there's necessarily been a master plan or sinister conspiracy behind this on the part of the BPSers. It may well be that events have overtaken some of them and they cannot turn back without personal loss of face, status & influence. Thus they may continue to support the ongoing regime to protect their own careers.