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Article: Chronic fatigue syndrome sufferer considered euthanasia after lack of help from NHS Dec 2019

Discussion in 'General ME/CFS News' started by Sly Saint, Dec 28, 2019.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    full article here
    https://www.dailyrecord.co.uk/news/scottish-news/author-who-endures-crippling-chronic-21172609
     
    Last edited: Dec 28, 2019
    Louie41, Yessica, Wonko and 10 others like this.
  2. rvallee

    rvallee Senior Member (Voting Rights)

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    Superb job, BPS cultists. Hope you're having fun out there with the voices in your head telling you you're doing an amazing job and assure you it's the patients who are wrong. You, on the hand, are a flawless little snowflake whose perfect intuition definitely is worth more than the lives of millions.

    We won't forget this. People told you what would happen and you did it anyway and you insist on continuing to do the thing that continues to fail.
     
  3. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Sometimes I think we're in a Catch 22 situation in the UK.

    On the one hand we are to be seen as having a psychological or behavioural disorder that perpetuates our condition. Naturally, we are in denial and by virtue of protesting are confirming our mental health issues.

    On the other, when one day people suddenly wake up to our plight and the encroaching menace of IAPT and the ultimate lack of useful treatment for anything by the NHS thanks to the psychologization (?) of everything, that's good for the BPS paymasters too. Everyone will feel obliged to invest in private healthcare to get any healthcare at all.

    It feels like a heads you win, tails I lose situation. :banghead:
     
    Last edited by a moderator: Dec 29, 2019
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  4. Dolphin

    Dolphin Senior Member (Voting Rights)

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    I remain to be convinced private health insurers are major BPS paymasters. A lot of what the BPS promote is cheap therapy. Also tends to discourage testing and more expensive interventions.

    Some have got money from disability insurers but they are generally different companies to private health insurers.
     
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  5. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Maybe not directly, in the same way as insurance companies. However, in the UK, making it tougher to get benefits and having that publicized initially suited Unum and the likes as it meant people were more likely to take out private policies they would probably never need to claim on. Then, of course, it suited them to deny payments.

    Also if the only treatments patients will be offered are access to IAPT then people are more likely to take out private health care policies in the hopes they might actually get to see a rheumatologist or endocrinologist if they need to one day.

    So although they might not be direct paymasters, there will be a lot of influence peddling going on.
     
    Last edited by a moderator: Jan 5, 2020
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  6. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Personally I think we could easily lose credibility by claiming BPS proponents have health insurance paymasters without more evidence. Just because the BPS approach could lead people to want to get private health insurance doesn’t prove to me BPS proponents have secret paymasters. I think BPS proponents genuinely believe in their approach.
     
    Last edited: Dec 30, 2019
  7. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    You may be right @Dolphin, but some of these guys wield an awful lot of influence through the health system.

    Again, I can't say what they do or do not believe, but if they had nothing to hide then why so secretive with the data from PACE for example. Why all the outcome switching? If their trials have demonstrated anything it is that the BPS model does not work.

    I'm not suggesting that there's necessarily been a master plan or sinister conspiracy behind this on the part of the BPSers. It may well be that events have overtaken some of them and they cannot turn back without personal loss of face, status & influence. Thus they may continue to support the ongoing regime to protect their own careers.
     
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