Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament

[Melanie]

Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament

 

[Medfeb]

@Melanie Would this Tuller article on harm from GET be worth submitting? If so, how?
https://undark.org/article/chronic-fatigue-graded-exercise-pace/

 

[Emsho]

@Melanie Would this Tuller article on harm from GET be worth submitting? If so, how?
https://undark.org/article/chronic-fatigue-graded-exercise-pace/

We’ve asked Dr Tuller to submit evidence, this call out is for people to submit their personal stories of harm of GET/CBT, to back up the submissions made by Prof Edwards, S4ME and (hopefully) others we’ve contacted!

Thanks for sharing @Melanie, I completely forgot to post on here

 

[Melanie]

@Melanie Would this Tuller article on harm from GET be worth submitting?

See @Emsho as he just posted to me on this thread about some already asking David Tuller to submit evidence.

 

[Medfeb]

That's great, @eshmo and @Melanie

 

[Barry]

@Melanie Would this Tuller article on harm from GET be worth submitting? If so, how?
https://undark.org/article/chronic-fatigue-graded-exercise-pace/

Presumably the people who were happy to post their full names when commenting on that article have already been followed up on?
e.g:

I was harmed by GET at an NHS CFS clinic a few years back. I never recovered from the treatment.

I went from mild ME to severe because of Graded Exercise and PACE.

The PACE study made me believe I should get up and exercise and now I am almost completely housebound and have to spend the majority of my time in bed. What mystifies me is how Peter White’s own research prior to PACE found that inflammatory cytokines were present in ME sufferers blood for a prolonged period after exercise *(ref: JCFS 2004:12 (2):51-66). This would account for Post Exertional Malaise that is a prerequisite for an diagnosis of ME. Why did the PACE team not tell the trial participants about these findings and the potential harms of exercise? Why did the PACE team fail to record cytokine level data during the PACE trial? And why would they think Graded Exercise Therapy (GET) is any sort of treatment considering this objective biomedical evidence?