Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

Sarah94 said:
Well OCD and health anxiety are legitimate problems too, and this time is hard for people who suffer from those. There's no need to criticise people for speaking about these conditions.
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You understand she includes us in that description?

It's an important topic where good advice can be useful. This isn't what is meant here. This is the fear leads to ME bit that we'll have to endure for a while.
 
Caroline Struthers said:
Agreed. I will write/Tweet to Cochrane . I love the placeholder shadow on the website where the leaflet used to be - classic!
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On Tuesday, to follow up from a message I sent on Friday 17th I wrote to the Cochrane Independent Advisory Group for the update to the Exercise review (Chair Hilda Bastian)

Dear Hilda

Following protests from myself and others, and a letter of concern from Forward-ME, https://www.meassociation.org.uk/wp...sition-to-Oxford-Fatigue-Leaflet-20.04.20.pdf Oxford Health NHS Trust have now removed the leaflet on post-COVID fatigue in which they called it CFS/ME and said Graded Exercise and CBT were effective treatments. https://www.oxfordhealth.nhs.uk/publication/coronavirus/

What is the point in updating the Cochrane Exercise review to acknowledge the lack of evidence for Exercise, but doing nothing more to publicize the fact that the review conclusions have changed? Cochrane have designated this a high-profile review, yet the NHS in Oxford at least have completely ignored it. Perhaps if there had been a press release from the Cochrane publicity machine to alert the media to the amendment to a “high-profile” review, this unfortunate evidence-free publication would not have been produced in the first place.



Best wishes

Caroline
 
In this case the leaflet you have identified was adapted from materials representing UK national NICE guidance.
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  1. The UK national NICE guidance that must at least include CG53, which is under review.
  2. The UK national NICE guidance that cannot possibly be based on any evidence relating to Covid 19.
 
Kalliope said:
Trial by Error: Oxford Health's Response to My Freedom of Information Request

I asked the Oxford Health NHS Foundation Trust three questions. Yesterday I received the following response. I do not consider the response particularly responsive or enlightening.
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The response says about the pamphlet:
  1. In light of concerns expressed by a small group of individuals it has been taken down from trust sites for further review.

    Wonder if the group was very vocal too?
 
Kalliope said:
The response says about the pamphlet:
  1. In light of concerns expressed by a small group of individuals it has been taken down from trust sites for further review.

    Wonder if the group was very vocal too?
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[my bold]

The size of a group is irrelevant, it is the group's validity that counts. History must be full of cases where small groups of individuals have been responsible for settings wrongs to right.
 
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