Action for ME: "We need your help! Connect M.E. survey"

Hmm. I am skeptical. Is it a good use of AfME's resources to try to set up an app based volunteering system that would necessitate scrupulous checks of the both users and volunteers for every local area across the UK. They would need police checks for volunteers going into vulnerable people's homes and some way of checking whether the individuals asking for help are genuine and have a genuine need.
What would AfME's liability be for any volunteers who took some kind of advantage of patients? Checks only catch known ppl and even then only if ID can be certain which is actually tricky as you have to prove the ID then that it's the same person who actually turns up at the patient's door. It's a good idea - I came up with the same idea myself a few years ago but I decided it would be v difficult to implement it safely. You have to remember there are predatory ppl out there looking for access to vulnerable victims and you'd have to safeguard against that.
 
Makes me wonder if the idea has been tried before to assist other groups of people like the elderly, perhaps we could learn some lessons from how it worked out for them. I've not found anything yet but it seems quite unlikely to me that something approximating this hasn't been attempted before somewhere in the world.
 
There are local initiatives already in some areas. For example befriending for lonely people, transport for hospital appointments, minor DIY jobs for elderly people, meals on wheels etc. All of these are organised and run by local groups and they are responsible for properly vetting and supervising their volunteers who they would know in person, not just via an app. And they would need insurance against things going wrong.

But I doubt any of them provide volunteers to do the sort of things care agencies and cleaning agencies provide as regular paid services. People usually need these to be reliable and regular work, which you can't ask volunteers to do.
 
Is there no PVG process in England / Wales/ NI?

In Scotland if you work/ regularly volunteer with groups classed as vulnerable , you have to be vetted via a national scheme: there are degrees of checks depending on the interaction.
It is only as good as the records that are checked.

I have to have certification for working on some contracts within a mental health setting. My employer pays for this.

My son has a higher level of certification for working with autistic males (aged 16-25) .

It is not a cheap process, as each person has to be checked.
 
At least 1 person on the AfME board of directors believes they were cured of ME by the lightning process. Their overarching philosophy seems to be to try everything and see what works.

While not the Lightning Process, I saw this quote recently on the Optimum Health Clinic site. The OHC is, in my opinion, of a similar ilk.

“After 10 years as a trustee of Action for ME, and after struggling to get clarity when I wrote a book on ME in the late nineties, I just wish that the thorough and integrated approach at The Optimum Health Clinic had been available then.”

Gill Jacobs

https://www.theoptimumhealthclinic.com/patient-stories/

(Not sure if the trustee status is past or present?)
 
This might have worth, they’re presenting it as a helping hand, more like you might call on a friend. People with me can be hit as many friends fall away with this illdue to skepticism and it’s limitations

However AFME specialise in DIY self management and volunteer stuff, part funded by government and in a country that medically also gives us the DIY ticket on everything I get frustrated. But AFME are never going to be what I want them to so perhaps I should stop judging them according to my own standards for a general national charity where they always fail.
 
It sounds a bit like an extension of their Mentor scheme in Scotland:
Mentor M.E. peer support network is a five-year Action for M.E. project, launched in 2016, and funded by the Scottish Government and the Health and Social Care Alliance Scotland (the Alliance) from the Transforming Self-Management in Scotland Fund.

https://www.actionforme.org.uk/reso...what-is-mentor-me-and-how-can-i-get-involved/

Thanks @Sly Saint. Not much use for housebound or bed bound then.

The mentoring relationship lasts for a fixed period of time, with you deciding how regularly you wish to meet, and at a time and in a public space agreed by you and your mentor.

(my bolding)
 
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