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Action for ME GP webinars

Discussion in 'General ME/CFS news' started by Amw66, Jul 12, 2018.

  1. Trish

    Trish Moderator Staff Member

    Messages:
    51,880
    Location:
    UK
    I think there's a lot of truth in that. After all, they supported the PACE trial that used the Oxford definition of 6 months fatigue.

    Perhaps we should ask Action for M.E. to change its name to action for chronic fatigue. I have no idea why the acronym AfCF suddenly made me think 'covfefe'
     
    Annamaria, MEMarge, Snowdrop and 8 others like this.
  2. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    Action for Covfefe or Covfefe Action seems like a good name for them...
    How about the Association of semi Alternative Facts
     
    Last edited: Aug 1, 2018
  3. Alison Orr

    Alison Orr Established Member

    Messages:
    14
    :laugh::rofl::laugh::rofl::laugh::rofl::laugh::rofl: Thank you for the laugh! I hadn’t heard of this and followed your link. Teehee!
     
  4. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,263
    @Action for M.E. can we have some feedback on this please - this is causing concern and risks harm.
     
    Sarah94, Annamaria, MEMarge and 5 others like this.
  5. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,263
    Bump - no response still
    Slide with GET recommendation still in place on dropbox link
     
    Sarah94, Annamaria, MEMarge and 3 others like this.
  6. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,263
    Bump - still no change
    @phil_in_bristol , can you advise if anything is happening with this?
    ETA tagged Phil
     
    Last edited: Oct 9, 2019
  7. TiredSam

    TiredSam Committee Member

    Messages:
    10,482
    Location:
    Germany
    I think I remember that if you edit a post to add a tag, the tag doesn't work.

    @phil_in_bristol
     
  8. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,522
    Emily also has 'Sharpee Syndrome'....prone to block unwelcome tweets and cannot discuss genuine concerns raised....
     
    alktipping, ladycatlover and MEMarge like this.

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