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30 & 31 May | Invest in ME Research international colloquium

Discussion in 'General ME/CFS News' started by Sasha, May 22, 2018.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    This is nearly upon us and doesn't seem to have its own thread. It's the closed two-day meeting for scientists that precedes the one-day conference that's open to patients.

    Details here (scroll down to see the programme): http://www.investinme.eu/BRMEC Colloquiums.shtml#brmec8
     
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  2. Sasha

    Sasha Senior Member (Voting Rights)

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    I haven't seen much of a buzz about this. Are you going, @Jonathan Edwards? Anything in particular that you're looking forward to?
     
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  3. Trish

    Trish Moderator Staff Member

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  4. Sasha

    Sasha Senior Member (Voting Rights)

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    People arriving:

     
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  5. Sasha

    Sasha Senior Member (Voting Rights)

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    Day One today. I wonder if anyone will be tweeting from it?

    The schedule is on this page but I can't provide a direct link to where you have to scroll down and there's some finding and clicking to do so I hope IiMER don't mind that I reproduce the schedule here (I'd much rather see it on a separate tab on their site, which would be much easier, especially for PWME).

    Welcome to the 8th Invest in ME International Biomedical Research into ME Colloquium
    Dr Ian Gibson, UEA, UK

    Clinical Research
    CDC Multisite study and future plans
    Dr Elizabeth R. Unger, CDC, USA

    NIH Common Data Elements
    Dr Vicky Whittemore, NIH, USA

    Challenges in study design and identification of patients with post-infectious ME
    Dr Avindra Nath, NIH, USA

    From phenotype to endotype: empirical and data-driven approaches for parsing clinical heterogeneity of ME using immune signatures, proteomics and metabolomics
    Associate Professor Mady Hornig, Columbia University, USA

    Chaired Discussion - Clinical Research
    Professor Angela Vincent, University of Oxford, UK

    Clinical Trials
    Clinical trial Results: Rituximab
    Dr Øystein Fluge, Bergen, Norway

    Neuronal antibodies in Norwegian ME cohort
    Angela Vincent, Oxford University, UK

    Clinical trial Results: CycloME
    Dr Ingrid G. Rekeland, Bergen, Norway

    Chaired Discussion - Clinical Trials and Research
    Amolak Bansal, Epsom and St.Helier NHS Trust, UK

    Microbiome
    Double-blinded, placebo-controlled clinical Trial: faecal microbiota transplantation
    Dr Rasmus Gol /Dr Peter Johnsen, Universit of Tromso, Norway

    Virome and gut microbiota research at QIB
    Fiona Newberry/Katharine Seton, Quadram Institute Bioscience, UK

    Chaired Discussion - Microbiome
    Professor Maureen Hanson, Cornell University, USA

    Purinergic Signalling / Metabolomics
    Extracellular ATP and its role as a neurotransmitter and in regulating inflammatory responses
    Dr Samuel Fountain, UEA, UK

    Biobank Metabolomics Data
    Dr Øystein Fluge, Bergen, Norway

    How UK Biobank can facilitate research into ME
    Naomi Allen, UK Biobank / University of Oxford, UK

    Cellular energetics
    Professor Karl Johan Tronstad, Bergen, Norway

    Metabolism in ME/CFS
    Professor Maureen Hanson, Cornell University, USA

    Stanford Metabolomics/ME Update
    Professor Ron Davis, Stanford, USA

    How important are the associated metabolic changes in ME/CFS in driving the illness?
    Dr Karl Morten, University of Oxford, UK

    Chaired Discussion - Purinergic Signalling / Metabolomics
    Professor Jonas Bergquist, Uppsala, Sweden

    #BRMEC8 Day 1 is followed by a researchers' dinner organised by IiMER where more discussions are able to be carried out between researchers.
     
  6. Sasha

    Sasha Senior Member (Voting Rights)

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  7. Trish

    Trish Moderator Staff Member

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    Are they allowed to tweet from it? I thought the idea of the colloquium was that it's private and just for researchers so they can discuss unpublished research findings and argue with each other about the science out of the public eye. Or maybe it's not as secret as that?
     
  8. andypants

    andypants Senior Member (Voting Rights)

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    I really hope they will tweet or summarize in some way, there’s so much interesting stuff going on.
     
  9. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I wasn't invited to this so I don't know much about it.

    I would be interested to hear what Angela Vincent has to say about neuronal antibodies.
     
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  10. Sasha

    Sasha Senior Member (Voting Rights)

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    Neuronal antibodies? I didn't even know they were a thing.
     
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  11. Sasha

    Sasha Senior Member (Voting Rights)

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    I was hoping that people would tweet within the bounds of keeping those secrets!

    It's just nice to feel part of things that are important to us but that we're excluded from (including things that we're just too ill to turn up to). I understand why we're excluded in this instance but...
     
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  12. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    The colloquium looks really good. And a strong mix of both uk and international, mainly USA & Norway, researchers.
     
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  13. Sasha

    Sasha Senior Member (Voting Rights)

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    I keep forgetting you have to click 'Latest' to see the latest tweets...



    Anyway, at least people have shown up!

    That's a shame - I think you would have added a great deal, and it would have been good to have you there when the rituximab trial results are being discussed.
     
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  14. Trish

    Trish Moderator Staff Member

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    I agree. I hope there will be lots of tweets from the conference on Saturday which is public. I've ordered the DVD, but that takes a while to come (that's not a complaint - I realise it takes time - I really enjoyed last year's DVD).
     
  15. Sasha

    Sasha Senior Member (Voting Rights)

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    Gigantic amounts of discreet silence emanating from the colloquium - just IiMER's bear appears to be on the case, highly focused on the food:

     
  16. Trish

    Trish Moderator Staff Member

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    As I thought, it's a private meeting. But it is good to see the bear enjoying itself, and to know it's happening. We'll just have to wait for Friday's Saturday's tweets.
    Edited to correct the day.
     
    Last edited: May 30, 2018
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  17. Sasha

    Sasha Senior Member (Voting Rights)

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    Friday's! :)
     
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  18. Sasha

    Sasha Senior Member (Voting Rights)

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    Meanwhile, here is the schedule for tomorrow:

    Welcome to the 8th Invest in ME International Biomedical Research into ME Colloquium
    Dr Ian Gibson, UEA, UK

    Virology
    The role of enteroviruses in T1 diabetes
    Professor Heikki Hyöty, University of Tampere, Finland

    HPV and autoimmunity
    Dr Jesper Mehlsen, Copenhagen, Denmark

    Chaired Discussion - Virology
    Professor Tom Wileman, University of East Anglia, UK

    Immunology
    Mast cells and ME
    Professor Theoharis Theoharides, Tufts University, USA

    T cell homeostasis
    Dr Ben Seddon, UCL, London, UK

    Oxidative stress hypothesis for reprogramming PBMC to iPSCs then to Neurons in ME/CFS patients
    Malav Trivedi, Nova Southeastern University, USA

    Chaired Discussion - Immunology
    Anne Cooke, University of Cambridge, UK

    Systems Biology
    Integrated systems biology to understand the role of the gut microbiome in health and disease
    Lesley Hoyles, Imperial College London, UK

    Using machine learning to objectively define ME/CFS subtypes
    Travis Craddock, Nova Southeastern University, USA

    Chaired Discussion - Systems Biology
    Professor Jonas Bergquist, University of Uppsala, Sweden

    ANS [autonomic nervous system]
    Observations in Paediatric ME
    Professor Kristian Sommerfelt, Bergen, Norway

    Relationship between sleep quality and functioning of the autonomic nervous system in ME/CFS
    Markku Partinen, University of Helsinki, Finland

    Chaired Discussion - ANS
    Amolak Bansal, Epsom and St.Helier NHS Trust, UK

    Biomarkers
    Emerging TRP pathology: the way forward in pharmacotherapeutics and treatment
    Don Staines, NCNED, Australia

    Immunogenetic studies in ME
    Asgeir Lande, Oslo, Norway

    Proteomics, steroids and autoantibodies
    Jonas Bergquist, Uppsala, Sweden

    Dolorimetry, cerebrospinal fluid miRNA, proteomics, metabolomics data
    James Baraniuk, Georgetown University, USA

    Chaired Discussion - Biomarkers
    Professor Jonas Bergquist, Uppsala, Sweden


    Summary
    Professor Jonas Blomberg, Uppsala, Sweden​
     
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  19. Joh

    Joh Senior Member (Voting Rights)

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    The panel "Thinking the future" for students and young researchers with an interest in ME happened for the first time yesterday.






    And some familiar faces:


    ETA: The Invest in ME Research Bear is also on Instagram with the pictures from the colloquium: https://www.instagram.com/iimerbear/
     
  20. Joh

    Joh Senior Member (Voting Rights)

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