Joan Crawford
Senior Member (Voting Rights)
This looks like a positive step forward. In the neurological disorders section too.
Does anyone know if it has teeth and likely to be supported, committed with funding and decent scientific leadership?
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2024: USA NIH NINDS ME/CFS Research Roadmap - now published
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This looks like a positive step forward. In the neurological disorders section too.
Does anyone know if it has teeth and likely to be supported, committed with funding and decent scientific leadership?
Dolphin
Senior Member (Voting Rights)
Summary of Report of the [NANDS] ME/CFS Research Roadmap Working Group of Council – May 2024
https://www.meresearch.org.uk/repor...ch-roadmap-working-group-of-council-may-2024/
https://www.meresearch.org.uk/repor...ch-roadmap-working-group-of-council-may-2024/
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Yann04
Senior Member (Voting Rights)
ME Action is circulating around an open letter to try and get funding for the roadmap. Anyone can sign (including people outside US I think, and orgs)
https://bit.ly/MEcfsRoadmap
Edit (my comment): don’t necessarily feel very impressed by the roadmap upon a quick skim. Mentioning things like chronic inflammation as if true and overly focusing on chronic infection theories. But probably still worth supporting. Solid biomedical data is useful in any case. And I feel finding the abnormality in ME is very possibly something that just has to be brute forced.
https://bit.ly/MEcfsRoadmap
Edit (my comment): don’t necessarily feel very impressed by the roadmap upon a quick skim. Mentioning things like chronic inflammation as if true and overly focusing on chronic infection theories. But probably still worth supporting. Solid biomedical data is useful in any case. And I feel finding the abnormality in ME is very possibly something that just has to be brute forced.
Rationale behind the $50m funding call for the roadmap that is part of #MEActions campaign
- "$50 million would allow for clinical trials, which we have none currently. It’s a number that is achievable in a time of extreme budget cuts. Yes, we want a billion dollars but the reality is we are facing the most extreme research budget cuts in our lifetime. This was thought through with a collection of lobbyists, advocates and allies on the hill as something we could win." taken from their facebook page.