“I Need to Start Listening to What my Body Is Telling Me.”: Does Mindfulness-Based Cognitive Therapy Help People with CFS?-Bridie O'Dowd July 2020

[Amw66]

From Twitter

 

[ME/CFS Skeptic]

both authors are MBP teachers and have their own personal mindfulness practice

Conflict of Interest The authors declare that they have no conflicts of interest.

Seems like a contradiction

 

[Mithriel]

I can imagine being on this course and being told to listen to my body. That would have been helpful when I was less severe and struggling to be normal and look after my kids. It would have been good to be given permission to tell my mother I could not help her in the garden because I had to avoid "boom or burst"

Good to be told I did not have to be perfectionist (mother again!) and acceptance of my illness as making things difficult rather than everyone feeling like me and managing fine.

I would have avoided the psychologisation of my disease and just took the good things out especially in the days before I understood the controversy as I doubt they make it explicit to patients and I am slow to see beyond the surface because of brain fog.

I also sympathise with the participants that felt free to talk about their problems and not feel bad. I like going to my local MS therapy centre because everyone is disabled and you can say things that you can't say to the able bodied as you just want to talk not shock people or get sympathy.

Yet you could get all this good stuff out of it while their theories are completely wrong as they do not understand what is happening and make no effort, everything is just a confirmation, no thought goes into it.

 

[Sly Saint]

Mindfulness course available at Bristol CFS/ME clinic

Mindfulness 3
This page contains all of the course materials you need to support you once you have attended Session Three of the North Bristol NHS Trust Mindfulness course.

Course materials

Session 3 recordings to practice at home:

A typical mindfulness course yoga-based movement practice. Do listen to this and make sure you are happy with it before going ahead: https://soundcloud.com/mindful-health/sets/mindful-yoga-with-taravajara

Fiona has made a lying sequence that is less strenuous: https://soundcloud.com/fiona-mckechnie108681984/sets/gentle-mindfulmovement/ s-WlmUv3bYfBQ

Mindful walking can also be an option: https://www.bangor.ac.uk/mindfulness/audio/cd1/04Track04.mp3

There is also a video Pete has made to guide you through some mindful movements:

Workbooks and handouts

You can click on the links to download the written materials which support the course. We have made each one available as a Word document or a pdf as we know that some people prefer one or another. The Word document is likely to be more useful if you want to write comments on your own copy and store them on your own computer.

Workbooks outline the practice and other activities for the week and have the option of recording and reflecting on what you are learning (you will need to use this one).

Handouts explain more about the background theory (this one is optional).



Session 3 workbook 2020.pdf

Session 3 workbook 2020.pdf
Session 3 workbook 2020.docx

Session 3 workbook 2020.docx
Session 3 handout 2020.pdf

Session 3 handout 2020.pdf
Session 3 handout 2020.docx

Session 3 handout 2020.docx

https://www.nbt.nhs.uk/our-services...onic-fatigue-syndromeme-service/mindfulness-3

Copied to this thread: North Bristol NHS Trust: ME/CFS clinic

 

[Invisible Woman]

I also sympathise with the participants that felt free to talk about their problems and not feel bad. I like going to my local MS therapy centre because everyone is disabled and you can say things that you can't say to the able bodied as you just want to talk not shock people or get sympathy.

Yet you could get all this good stuff out of it while their theories are completely wrong as they do not understand what is happening and make no effort, everything is just a confirmation, no thought goes into it.

Spot on. I used to go away with groups of ME patients and it was so freeing to be able to spend time with other people who didn't turn a hair when you fell over, walked into walls, suddenly had to lie down on the floor or your brain seized. Other people who were struggling in exactly the same way & you could laugh about the state of you together. It was quite liberating.

 

[Dolphin]

I'm not sure whether this was open access at the time but it is now.
https://link.springer.com/article/10.1007/s42087-020-00123-9