“Guidelines for ME/CFS outdated and dangerous”

[Simone]

A member of the Australian ME/CFS community was networking at a medical writers’ conference recently, and met Felicity Nelson, a medical writer who later expressed an interest in writing about issues with clinical guidelines for ME/CFS. This is the resulting article.

“The tide is slowly turning against GET, with the CDC in the US now warning doctors that patients with ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) cannot tolerate vigorous exercise regimens.

NICE is aware that the evidence to support GET with CBT is shaky and is in the process of revising its recommendations. But new guidelines won’t be issued for another two years. That is too long for Australian patient advocate groups, Emerge Australia and ME/CFS Australia, which have both expressed concerns.”

http://medicalrepublic.com.au/guidelines-mecfs-outdated-dangerous/16761

 

[Barry]

CBT should only be used to support patients and not to perpetuate the myth that ME/CFS was a psychological disorder, medical ethicist Heidi Nicholl, the CEO of Emerge Australia, said.

“We don’t support research based on an assumption that ME/CFS is based on deconditioning or a fear of exercise,” she said.

Yep.

 

[Invisible Woman]

“We don’t support research based on an assumption that ME/CFS is based on deconditioning or a fear of exercise,” she said.

Sadly, these days she also needs to add central sensitization to the list.

Although why "they" keep coming up with new theories to promote a therapy when that therapy clearly doesn't work is beyond me.

 

[NelliePledge]

Sadly, these days she also needs to add central sensitization to the list.

Although why "they" keep coming up with new theories to promote a therapy when that therapy clearly doesn't work is beyond me.

$$$$$$$$££££££££€€€€€€€