usa

Posted by sick times https://thesicktimes.org/2025/04/21/letter-to-the-editors-the-university-of-washingtons-long-covid-clinic/ Letter to the editors: The University of Washington’s Long COVID clinic April 21, 2025 In February, The Sick Times published a story highlighting how educating...

#MEAction has started planning for Millions Missing campaign (May 12) in the USA. Why We’re Sending out an SOS this #MillionsMissing If you go to that link you'll see there's a lot of information including this US toolkit (separate plans are in the works for the UK and other locations --...

Action alert for US citizens: Action Alert! Tell your Senators to VOTE NO on proposed 57% cut to Research Programs The link above goes to an automated tool for contacting your US senators to ask them to vote NO. Details:

Article from The Sick Times: Now offline: Government resources about Long COVID as a disability (headline refers to the US government)

For folks in the USA there is a proposal to remove the exception that allows "productivity-based subminimum wages to workers with disabilities." The current law allows certain charities, e.g., Goodwill, to hire disabled workers and pay them very low wages. Title: Employment of Workers With...

Note: This action is for folks living in the USA. #MEAction is urging folks to contact their elected officials to ask that Medicare coverage for telehealth (doctor visits via phone or video) continue to be covered past Dec. 31...

full article https://www.openaccessgovernment.org/creating-a-research-home-for-me-cfs-long-covid-and-others/184620/

FDA proposes pulling Sudafed and Benadryl from pharmacy shelves

Moderation note: Please note the title of the thread and keep on-topic. Restrict your posting to information that is highly relevant to ME/CFS and Long Covid. Consider our rules, particularly this part of Rule 11, before posting: ******* Not good. https://wapo.st/3UEZWaZ Florida surgeon...

Solve ME has created an automated tool (meant for folks in the USA) that will contact your Member of Congress (email/phone/twitter) and ask them to support a new "home" for "Infection-Associated Chronic Conditions and Illnesses" (IACCIs). Text part of the automated tool: There's another...

Protecting yourself from COVID-19 these days is hard. And it comes at a cost. https://www.marketplace.org/2024/03/20/protecting-yourself-from-covid-19-these-days-is-hard-and-it-comes-at-a-cost/

STAT Inside a push to create an NIH office for post-infection chronic illness When the White House released President Biden’s 2025 budget requests this week, funding for biomedical research was stagnant. The more conservative wishlist from the president acknowledges a reduced appetite in...

December 6 press release from the NIH: Home Test to Treat program extends nationwide Program now offers testing, telehealth and treatment for COVID-19 and flu. https://www.nih.gov/news-events/news-releases/home-test-treat-program-extends-nationwide (some line breaks added, bolding mine)...

This thread is for a list of sub-national US ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Massachusetts ME/CFS & FM Association - forum thread Minnesota ME/CFS Alliance New Jersey ME/CFS...

Prevalence of Fibromyalgia and Chronic Fatigue Syndrome among Individuals with Irritable Bowel Syndrome: An Analysis of United States National Inpatient Sample Database Abstract: Background and Aim: Irritable bowel syndrome (IBS) is a functional gastrointestinal disorder associated with other...

There's just been an interview of Professor Lisa Sanders, of Diagnosis fame, who is now running the Yale Long Covid Clinic. Sunday 17 September Radio New Zealand - If I remember, I'll add a better link when it is up...

Social Security Administration: Providing Medical Evidence for Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) This 3-page official document is from the US but could be useful for people applying for disability payments in other countries also...

falls at the first hurdle https://www.conciergehealthla.com/post/myalgic-encephalomyelitis-chronic-fatigue-syndrome maybe someone could send him a link to the excellent video on PEM https://www.s4me.info/threads/post-exertional-malaise-in-me-cfs-webinar-for-health-professionals.33887/

ABSTRACT Objective Chronic fatigue syndrome (CFS) is a debilitating illness characterized by persistent fatigue among other symptoms. Pain symptoms are common and included in the diagnostic criteria for CFS but are not required for diagnosis. Despite the association between CFS and pain, few...

Exercise Therapy for Chronic Fatigue Syndrome You Must Know (consumerhealthdigest.com)